Search found 23 matches

by alv7722
Tue Jan 29, 2008 11:26 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

Right on. Many of the calming techniques definitely help in the long term. Essentially anything you can do to stop depleting the adrenaline reserves is going to be helpful. A HUGE help is getting a good nights sleep on a regular basis!
Thats where this forum has been a great help.

Al V
by alv7722
Tue Jan 29, 2008 10:16 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

Many with fibro are shipped off to a pxychiatrist. this doesn't work either. If your body is missing something necessary to function, all the "attitude" in the world will not fix it. If you are wounded and your blood drains out, you will die. No amount of positive thinking will prevent it. Once agai...
by alv7722
Mon Jan 28, 2008 10:06 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

fibro

Another characteristic of fibro is that analgesics don't seem to help a lot. If they do, it is usually only for a very limited duration.

Al V
by alv7722
Fri Jan 25, 2008 11:35 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

I think it takes about 3 times the dose of Requip as Mirapex, but I think it is somewhat esier on the stomach. Many doctors will not take on fibro patients because they have had no success treating them. Dr. Dryland has had a high rate of success, along with having to cure it in himself. (He says he...
by alv7722
Fri Jan 25, 2008 9:25 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

kteague

I'm taking 4.5 mg. Don't know much about my sleep study cause the doc fired me and didn't tell me much before that. That was after he soaked me for $2000. If I quit the Mirapex for a few days, I definitely acquire restless legs big time! I had that before starting the Mirapex anyway, seems to go wit...
by alv7722
Wed Jan 23, 2008 10:12 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Feeling hopeless and helpless
Replies: 62
Views: 8153

Have you been tested for hypothyroid? You mentioned skin condition, I did not catch what it was. You also did not say there was a lot of pain involved with the fatigue, which could indicate fibro. There will be an answer somewhere. Just don't accept "no", from the medical industry. Good Luck. Al V
by alv7722
Tue Jan 22, 2008 7:42 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

The biggest side effect for me was stomach upset. The off label use is a consideration, and yes doctors ARE very reluctant to prexcribe for an off label use. Living througjh both, I have to say the fibro symptoms and the OSA symptoms are almost undistinguishable. In Dr. Drylands first book, he has a...
by alv7722
Tue Jan 22, 2008 12:34 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

Mirapex is a dopamine agonist, as is Requip. Maybe other things work. I am not a doctor. I've read postings on forums for fibro, and see so many that have gone on for years. Many get shipped off to psychiatrists, that also can't fix it. Compared to years of disability, the dopamine agonists seen lik...
by alv7722
Mon Jan 21, 2008 10:07 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

Went through malic acid, msm, vit d, thyroid, calcium, zinc, ginseng, cymbalta,(was some help) Mirapex protocol works if it fibro. If its not fibro and you don't RLS or Parkinsons, Mirapex won't help. I don't want to see others waste more of their valuable life with stuff that doesn't work,

Al V
by alv7722
Mon Jan 21, 2008 4:45 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

That is correct. It originally was a Parkinsons drug, then was recently approved for RLS. Fibro is still an "off-label" use for Mirapex, though it has been very effective for me, and hundreds others. I haven't researched Lyrica, mainly because I'm satisfied with the results I've been getting. Somewh...
by alv7722
Sun Jan 20, 2008 8:58 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Medicare's Home Testing Proposal
Replies: 25
Views: 3542

This discussion is right up my alley! Another earlier thread on this forum had a link to a study about just this subject. Inserted here is the finding of that study: This study demonstrates that patients with OSA are capable of effective self-titration of CPAP treatment at home. The optimal CPAPs, d...
by alv7722
Sun Jan 20, 2008 8:16 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Fibromyalgia
Replies: 48
Views: 8437

Thanks for correcting the web address for me! The font size for typing messages is way small for me. Dr. Dryland is the one that referred me for sleep study, albeit with lousy sleep Dr. I've seen posts about fibro on the forum, and like xpap for osa, fibro is so easily cured that its just a shame so...
by alv7722
Sat Jan 12, 2008 11:18 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: The sleep industry and us, a presumptuous view.
Replies: 25
Views: 3996

My sleep quack that fired me got his degree in Peru. After $2,000 with him, he knew I needed a machine and refused to write an rx without another $1500 sleep study for titration. I got a machine anyway without a rx, my life changed the next day. If I hadn't done this on my own, I would be either dea...
by alv7722
Wed Dec 26, 2007 1:27 pm
Forum: CPAP and Sleep Apnea Message Board
Topic: Getting fired by your doctor
Replies: 30
Views: 5105

Fired by doctor.

I was fired by my sleep doctor. I was diagnosed (I guess) with OSA, and was scheduled for another sleep study for "titration". Somewhere in the meantime, it became so bad I was in danger of losing my job, having an auto accident, or dying. I begged his office to have him write an Rx for an auto tirt...
by alv7722
Sun Dec 23, 2007 12:25 am
Forum: CPAP and Sleep Apnea Message Board
Topic: Medicare proposal: Changing Sleep Apnea diagnosis criteria
Replies: 4
Views: 1317

If this means what I think it does, its about time. I was denied therapy on an emergency basis just because the sleep quack wanted to hold me up for a "titration" study. Aside from the $1400+, I think I would be either dead, injured in an autor accident, or at the very least, would have lost my job ...