I feel your pain about dismissive doctors. I ran into the same obstacles when trying to get a sleep study and was told a healthy looking, petite, woman in her 40s couldn’t have sleep apnea. Thankfully I eventually got my sleep study (it was a one night home study) and I’m sleeping so much better wi...

I'm living in the US now, but was born/raised in UK and my extended family are still there. That BBC article is scary. My mum passed away there in 2019 (at 90), and I have to say, her level of care (from the NHS) was outstanding till the bitter end. She had doctors visiting her at home on occasion,...

Hi all, I'm new here. I'm in the UK welcome. i just wanted to add that it's a good job you put uk in the title. forum member rick blaine is a uk resident. he'll be along shortly to give some specific advice and maybe suggest something you hadn't thought of. in the meantime, good luck! I believe tha...

Because I'm having to pay £££££££££££££ for private cardiac testing procedures, I'm hoping I can rent a ResMed CPAP to try to confirm or dispense with sleep apnea as a complicating factor. Have you considered / checked the price of a home sleep test? Here's what's holding me back: because of the he...

When visiting the doctor, don't get gussied up. Look like yourself. Act and talk as bad as you feel. Make sure your doctor records your family's health issues. Be a pest. Chunkyfrog, believe it or not, I had a similar thought recently, and tried going in to the GP in very casual clothes and without...

I would push harder to get some cardiac testing or whatever's available to you there, not suggesting any of the above should be ignored. The apnea as a possible problem with EDS is one thing, but I'd want to know more about the cardiac issues first, at whatever cost you can manage at all. Thanks, J...

Use this if it helps. It may do more good than the O2 printouts: "Obstructive sleep apnea was linked to debilitating symptoms of EDS [Ehlers-Danlos Syndromes] such as fatigue, generalized pain and lower quality of life. It is thought that the reason OSA is seen in the hypermobile population is beca...

Hi all, I'm new here. I'm in the UK, and because the healthcare system here is in crisis at the moment, I'm having trouble accessing diagnostic services to find out if I have sleep apnea. Unfortunately the fact that I'm a mid-40s woman with a relatively slim build and youthful appearance means that ...