ASV newbie need setting help!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
dying13
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Joined: Fri Sep 20, 2013 3:00 am

Re: ASV newbie need setting help!

Post by dying13 » Sun Oct 20, 2013 2:01 am

well the resmed s9 was a big failure of over one year. and I don't have a sleep doc nearby me right now and am so exhausted I can't walk a few blocks.
I really think I need klonopin or a benza to consolidate my sleep and reduce centrals. anyone else feel that and that there aren't sides?

nanwilson
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Location: Southern Alberta

Re: ASV newbie need setting help!

Post by nanwilson » Sun Oct 20, 2013 8:24 am

dying13 wrote:well the resmed s9 was a big failure of over one year. and I don't have a sleep doc nearby me right now and am so exhausted I can't walk a few blocks.
I really think I need klonopin or a benza to consolidate my sleep and reduce centrals. anyone else feel that and that there aren't sides?
dying13 aka sickwithapnea17..... you have been given great advice by John and many others but you refuse to take it. We are not taken in by you changing your name here on the forum... your rhetoric and questions are still the same ..... and you still don't listen.
Started cpap in 2010.. still at it with great results.

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JohnBFisher
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Re: ASV newbie need setting help!

Post by JohnBFisher » Sun Oct 20, 2013 9:01 am

dying13 wrote:... I really think I need klonopin or a benza to consolidate my sleep and reduce centrals. anyone else feel that and that there aren't sides? ...
There are most certainly side effects:
Since Klonopin (clonazepam) produces CNS depression, patients receiving this drug should be cautioned against
See: http://www.rxlist.com/klonopin-drug/war ... utions.htm

By the way, Klonopin is a "Benza" as you put it.

Klonopin is primarily used for seizures and anxiety. Most doctors will not prescribe it for the long haul. They prefer to use less addictive medications if you need to take the medication for the long haul.

If you really feel the need for a long term medication to help with sleep, I recommend asking for the generic of Remeron. It helps restore a fairly normal sleep architecture, which Klonopin does not. It is not addictive. It is an older class of antidepressant, which has the known side effect of increasing sleepiness and deepening sleep.

See: http://www.rxlist.com/remeron-drug.htm

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Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

dying13
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Re: ASV newbie need setting help!

Post by dying13 » Sun Oct 20, 2013 7:44 pm

doubt that klonopin is addictive for me and I feel much more clear and energetic on it. there are studies that show it reduces central apnea events. how do they measure sleep architecture? I have 0.1% stage 3/4 sleep it should be 10%

http://imageshack.com/i/b9akjyp

as you can see I have all these spikes in pressure during the night, is it possible to get deep sleep with those pressure changes?
so I should set the epap from 9-14cm? would max ipap of 18cm be better? Guilleminault told me with my mixed apnea and 70% oxygen to go with min epap 8cm. I'm not really sure since I don't design the machines or research the disease

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JohnBFisher
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Re: ASV newbie need setting help!

Post by JohnBFisher » Sun Oct 20, 2013 10:43 pm

dying13 wrote:... klonopin ... I feel much more clear and energetic on it. there are studies that show it reduces central apnea events. ...
Klonopin is a central nervous system depressant. It WILL trigger central apneas. It might not be a big issue for MOST people. But you have problems with central sleep apnea. Thus is it NOT a good mix. That's not from me. That's what my doctor has told me.
dying13 wrote:... how do they measure sleep architecture? I have 0.1% stage 3/4 sleep it should be 10% ...
Which is why I recommended Remeron. It's available as a generic. It does not take a large dosage of it to be effective.
dying13 wrote:... as you can see I have all these spikes in pressure during the night, is it possible to get deep sleep with those pressure changes? ...
Those spikes in pressure indicate the ASV unit is doing its job. It means that either your flow rate decreased (due to hypoventilation or due to central apneas). The ASV unit will increase pressure up toward Maximum Pressure to help you maintain respiration.

Repeat after me: IT TAKES TIME FOR YOUR BODY TO ADJUST TO THE ASV THERAPY. But it will and you will adjust to it. You will awaken one morning and not be aware you are wearing the mask. It happens.
dying13 wrote:... so I should set the epap from 9-14cm? would max ipap of 18cm be better? ...
You need to work with a doctor to determine the best settings for you. This typically requires a sleep study then some trial and error. But you continue to have problems with ASV therapy, so you should work with your doctor. We really can not make a guess and have you just "take a stab at it". An ASV unit is not a toy. While wringing those dials might be fun, until you take the time to adjust to the therapy you will not be able to attain good solid sleep. And if an ASV unit is not working for you, you need to work with your doctor.

So, go see your doctor and discuss it with your doctor.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

dying13
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Re: ASV newbie need setting help!

Post by dying13 » Wed Oct 23, 2013 8:00 pm

those labels on klonopin are mostly theoretical, it is the best sleep aid, better than ambien. all the sleep docs don't know how to adjust the settings on asv that I've seen. all they tell me is to lower the settings but that seems bad since I need the higher settings to stop the hypopneas/ central apneas

does remeron work? remeron is horrible, I tried it last night and am still in a fog hours after waking up, I think I should throw it out

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JohnBFisher
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Re: ASV newbie need setting help!

Post by JohnBFisher » Wed Oct 23, 2013 8:54 pm

For others reading this, please be aware that dying13 / sickwithapnea CONSTANTLY ignores good advice and gives VERY bad advice. Klonopin acts as a central nervous system depressant. Those warnings are NOT theoretical.

And dying, how DARE you complain that all the doctors do is say to lower the pressure. ALL you EVER do is complain about the high pressure. If all you want are drugs, go to a drug dealer!!!!

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

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49er
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Re: ASV newbie need setting help!

Post by 49er » Thu Oct 24, 2013 2:19 am

John, your patience with this poster is beyond belief in light of his/her history on this board. You are an incredible person.

49er

dying13
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Re: ASV newbie need setting help!

Post by dying13 » Fri Nov 08, 2013 11:47 pm

I'm not telling you to take klonopin, but there are studies in the journal of sleep by Guilleminault and others that show klonopin is effective. anti-aging doctors also prescribe it for deeper sleep

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JohnBFisher
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Re: ASV newbie need setting help!

Post by JohnBFisher » Sat Nov 09, 2013 2:22 am

dying/sickwithapnea, I repeat that Klonopin is not a first line medicine for sleep issues. Do an internet search on "dangers of klonopin" if you want more information. Klonopin is addictive. Most doctors will not prescribe it because of that. If your doctor has done so, that is between you and your doctor. However, I ask others reading this to realize that dying/swa continues to suffer from "fog", which can probably be attributed to Klonopin.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński