PLMD, fragmented sleep

Hi All,

A few months ago I installed a night vision camera in my bedroom because I was still fatigued during the day. I have noted that I seem to have Hypnic jerks, twitching, itching and PLMD. This is probably what is causing the fragmented sleep.

The sleep apnea is well controlled AHI 0.4

Questions

1. Can Cpap/ASV contribute to PLMD?
2. I have started taking OTC PREGNELONE very low dosage in the morning 2.5mg, it's definetly helping with energy levels. Can taking this make the PLMD worse?
3. Also I seem having the twitches and possibly PLMD during REM, eyes rolling around! Is this normal?

My clinic did not test for PLMD and because my AHI is under 5 are disinterested probably due to high work load.

Thank you!!!

There are a few posters suffering from PLMD but not I. I just want to comment on the F&P #431 mask. I tried this mask plus the #432 and had lots of leaks, b/c they don't have double Silicone flaps on the cushions. They ruined my treatment for almost a year.

This lady posts alot about PLMD:


viewtopic/t79794/viewtopic.php?f=1&t=79 ... md#p721897

My doctor believes I have PlMD in addition to OSA but he is still investigating. They are difficult disorders to separate and diagnose since one can influence the other. Both OSA and PLMD can vary from night-to-night dependent on many contributing conditions. I'm hoping enough time on my vpap machine will eventually influence the movement issues. If not, well, I'll go from there. I don't know about your OTC supplement so maybe try going without it for a while. Easier said, I know.

As far as movement during REM, my doctor was looking for that first and foremost because he initially suspected I had REM behavior disorder. However, I don't budge much during REM, which is normal; I just don't breathe. He is moving further away from his initial suspicion but is still not ready to rule it out entirely. Now I have to go see a neurologist. It's my understanding that movement during REM is unusual but eye movement is a signal.

PLMD can cause sleep fragmentation. In my study, I had 49.5 movement episodes per hour and 4.3 of these resulted in arousal. My sleep doctor mentioned that a chemical compound called ferritin is related to PLMD and that if it is out of normal range, you can take meds to correct it. Her concern was whether or not it prevented me from going to sleep, not so much after I was asleep.

I suggest you read this link very carefully... I personally would not touch the stuff with a 10' pole if I had PLMD or a lot of other things until I had learned more... and yes it increases 'energy'... whatever that might mean in relation to PLMD.

http://www.raysahelian.com/pregnenolone.html

summer wrote: Questions
1. Can Cpap/ASV contribute to PLMD?
2. I have started taking OTC PREGNELONE very low dosage in the morning 2.5mg, it's definetly helping with energy levels. Can taking this make the PLMD worse?
3. Also I seem having the twitches and possibly PLMD during REM, eyes rolling around! Is this normal?

My clinic did not test for PLMD and because my AHI is under 5 are disinterested probably due to high work load.

1. Can't say it never would because I don't know everything. What I do know is that treating OSA can provide opportunity for the PLMD to more fully manifest. When the apneas were causing requent arousals,one may not sleep enough for the limb movements to get a chance to act up much. Since they are movements of sleep, the more sleep we get the more potential for movements.
2. I'll defer to others on this particular product. In general, some complain of worsening symptoms when taking stimulants.
3. Eyes rolling around during REM is expected, which is why it's called Rapid Eye Movement. Twitching - I'll let someone else answer that one.

PLMD is pretty recognizable, as the movements are rythmic and stereotypical in nature, and you should see a pattern to their timing. Particularly look for toe, foot, ankle, and leg movements. For some it can be so slight as mainly just the big toe, for others it may look like a bicycling motion. On your ferritin level, being in the normal range alone is not adequate for limb movement sufferers. Generally >50 is suggested, but my doc wants mine even higher, closer to 100. I also take some nutritional supplements just to make sure my body has what it needs for optimal function.

avi123, yes I also had F&P 431 and that cut the bridge of my nose, it was always moving up or down. Now using the respcare hybrid and Quattro Fx. Thank you for the link.

MelindaJoan, it's good that you doctor is on the case, I hope he gets to the bottom of it. It's interesting that he looked at REN behaviour disorder as I do have eye and facial twitches and sometimes jerks.

JDS74, that'sresting that not all movement episodes equate to an arousal. I have just started to take OTC iron +B12 tablets, I thought lets give it a whirl for a few weeks and see if that improves things. I have no problems getting to sleep, it's just a few hours into sleep I noticed that I'm having these PLMD's.

Julie, thanks for the link, yes I had already looked at his site and now my dosage is only 2.5mg with a few days holiday every week.

Kteague, I seem to have a full leg movement, like a kick and bicycling motion, I have started to take Solgar gentle iron 1 a day, 20mg and also vit B12. What time of day is the best time to take the supplements? Is there any other natural supplements that can help? I have been trailing a new mask, and note that it's affecting my sleep and feel more tired. Would this make PLMD worse? Can PLMD events happen during REM?

Thanks for your help.

Join the RLS forum and you will get an education - http://www.rls.org/discussion

summer wrote: 2. I have started taking OTC PREGNELONE very low dosage in the morning 2.5mg,

That is nasty stuff. Stop it.

ChicagoGranny wrote:Join the RLS forum and you will get an education - http://www.rls.org/discussion

I used to belong to that forum and something changed on their site a while back and I guess I need to rejoin because I couldn't log in. If you have any clues, PM me please.

kteague wrote:

ChicagoGranny wrote:Join the RLS forum and you will get an education - http://www.rls.org/discussion

I used to belong to that forum and something changed on their site a while back and I guess I need to rejoin because I couldn't log in. If you have any clues, PM me please.

There was a big change. I can't get in either. At some point I may rejoin.

ChicagoGranny wrote:Join the RLS forum and you will get an education - http://www.rls.org/discussion

summer wrote: 2. I have started taking OTC PREGNELONE very low dosage in the morning 2.5mg,

That is nasty stuff. Stop it.

Thank you for the steer, your probably right