When is any of this going to make sense?

I found this website I was doing research on a new product ... PR@\/3nt (which seem interesting but really weird).
Tons of info here, and im hoping to find something that makes sense.
First me...
Now at 6 years diagnosed with both obstructive and central sleep apnea. basically I snore, and slowly stop breathing... multiple times a night.
I have been tested 3 times (gotten a worse grade each time).
I had nasal surgery due to chronic rinisitus (i think thats spelled right).
I have been through two C-CRAP machines, and after many many attempts I still cant use the machine.
My basis problem is this... I stop breathing WHEN I HAVE THE MACHINE ON, and most times it irritates me and I take it off while sleeping.

My question is this at what point does it make any sense that shoving air up our noses is going to keep us from stopping to breathe?
I cannot use it, because it really irritates my sinuses and gives me raging headaches.

Any thoughts?

I was going to look into dental route cause if I could breathe through my mouth (and not snore) I think I might be better off.
I dont think that magical new thing is going to work either.

My basis problem is this... I stop breathing WHEN I HAVE THE MACHINE ON, and most times it irritates me and I take it off while sleeping.

My question is this at what point does it make any sense that shoving air up our noses is going to keep us from stopping to breathe?
I cannot use it, because it really irritates my sinuses and gives me raging headaches.

Because you are using the wrong machine?
What are you using? A plain vanilla cpap machine is not for someone who has centrals.
If it irritates your sinuses you need to adjust your humidity until they are happy.

I have not looked at the machine in a while but I was one that would start when I started to breathe (so if i held my breath nothing would happen)
Also they I had the one that would "ramp" up the pressure through the night, which they couldnt figure out the right pressure due to it seemed that "low" was to little and "high" was too much and they could not find a "middle".
I did have the air pillow which was actually comfortable enough to use.
I should also say that I have really bad sinuses but no real allegies, but the air pressure (even with humidity) was irritating.
I dont think my sinuses will ever be happy..:/

I just seems that sometime I wake up on my side with my mouth open (and drooling) that I got a great 3 hours of sleep.
thats why I was thinking of the dental route or do they have home intubation kits?
Thanks for your response!

Sleepless in Va wrote:I have not looked at the machine in a while but I was one that would start when I started to breathe (so if i held my breath nothing would happen)
Also they I had the one that would "ramp" up the pressure through the night, which they couldnt figure out the right pressure due to it seemed that "low" was to little and "high" was too much and they could not find a "middle".

These all sound pretty much like generic comfort features except that the last one could be an APAP with an inappropriate range OR it could be a badly set ramp feature.

Do you still have the machine? If so, please get it out and look at it and tell us what it is. And how old is the machine? The machines have come a long way with the most recent generation of machines.

I did have the air pillow which was actually comfortable enough to use.

So you at least have a mask style you can tolerate. But---with a nasal pillows mask it's important to know: Are you also a mouth breather at night? If so, that could be why things weren't working out so well: With a nasal pillows mask, as soon as you open your mouth wide open, all the therapy pressure goes in the nose and out the mouth instead of down the upper airway. And that leaves the upper airway pretty much unprotected from the problems that cause the OSA in the first place. Which leads to apneas and hypopneas, which leads to not getting any better because the OSA is still largely untreated.

I should also say that I have really bad sinuses but no real allegies, but the air pressure (even with humidity) was irritating.
I dont think my sinuses will ever be happy..:/

You mention surgery in the first post and chronic rhinitis. Just what do you do to try to make the sinuses feel better during the daytime when you're NOT using the CPAP? In other words, since it's been a while since you even looked at your machine, I take it that you are currently NOT using your machine. But I rather doubt that your sinuses are all magically better just because you're not using the machine at night.

So---what is your nasal hygiene routine like? What, if anything, do you do to try to help the sinuses on a day-in and day-out basis? Because until you manage to figure out how to deal with your chronic congestion issues, CPAP may indeed remain very difficult for you to tolerate. Somethings to keep in mind about dealing with the congestion of chronic rhinitis: OTC Decongestant sprays like Afrin tend to make the problem worse by triggering rebound congestion. Saline sprays, nasal rinses (aka neti-pots), and prescription steroid sprays like Flonase tend to not be as bad at causing rebound congestion. Neti-pots sound gross and uncomfortable, but for many people they work wonders.

Two really good links for learning more about the importance of dealing with the congestion AND how to proactively deal with the congestion---particularly when you are on CPAP are:

• Nasal Breathing Video Series, which is from Dr. Barry Krakow's web pages
• Unstuff Your Stuffy Nose, which is from Dr. Steven Y. Park's web pages. Dr. Park is a forum member here who posts under the name sypark

I just seems that sometime I wake up on my side with my mouth open (and drooling) that I got a great 3 hours of sleep.
thats why I was thinking of the dental route or do they have home intubation kits?
Thanks for your response!

How often does this happen? If it's frequent, then you may very well be breathing through your mouth a lot of the time and that could be aggravating everything when you try to use the PAP.

Well, if it doesn't work because you don't use it I think that's an excellent reason to quit. If you want to see when it starts to make sense take the advice given you and make it work. With your attitude about "C-CRAP" and dental devices I predict nothing will work for you.

Why is it that everyone new has to hold their breath to "test" the machine. It doesn't work that way. It shows how little you understand about therapy.

Advanced funeral planning.
If you can't face this challenge, then you will probably need it.

Sleepless,

Take a look at this: viewtopic/t72335/My-Story-Do-or-Die.html

Are you going to wait until THEN to decide this makes sense??? You may not be lucky enough to make it out as that poster did.

A dental appliance probably won't help with central apnea, either, unless your central apnea is caused by CPAP. You probably need an ASV or similar "CPAP" machine, although a bilevel machine might help. Dental appliances often don't even help much with obstructive apnea.

There are full face masks that cover both the nose and mouth, and also oral masks that work exclusively through the mouth. Think something like a SCUBA mouthpiece.

chunkyfrog wrote:Advanced funeral planning.
If you can't face this challenge, then you will probably need it.

Wow, this should be the 2011 Post of the year. I stole it for my sig.