UARS

Brief History - I posted my sleep study results here a little while back (viewtopic.php?f=1&t=63256&p=590984&hili ... 3F#p590984) and based on my ENTs examination and recommendation, he believed I had UARS and should seek a sleep specialist to get titrated with CPAP. (He wasn't too high on surgery, low success rate or dental device, due to my crossbite)
My ENT seems to be pretty up to date on sleep disorders, more so than the sleep doctor that I had evaluate the PSG w/o CPAP.

Currently - I was wondering if anyone has had any experiences with or opinions of Dr. Avram Gold, Stony Brook Sleep Disorders Center, in terms of UARS/UARS treatment. I heard his interview with Dr. Steven Park and he seemed to be one of the leading doctors/researchers in that field and since I live in Connecticut, though that it would be a good idea to seek his advice. (Guilleminault and Krakow would be others to see but they are too far) Basically I just looking to see if anyone knows anything about him other than the interview he had.

Thanks

Padron192664 wrote:Brief History - I posted my sleep study results here a little while back (viewtopic.php?f=1&t=63256&p=590984&hili ... 3F#p590984) and based on my ENTs examination and recommendation, he believed I had UARS and should seek a sleep specialist to get titrated with CPAP. (He wasn't too high on surgery, low success rate or dental device, due to my crossbite)
My ENT seems to be pretty up to date on sleep disorders, more so than the sleep doctor that I had evaluate the PSG w/o CPAP.

I agree with your the ENT about pursuing the sleep avenue more than I agree with your sleep doc who thinks there's nothing there, and I wouldn't get another study done at the same place you had the initial one (not even a titration).

Currently - I was wondering if anyone has had any experiences with or opinions of Dr. Avram Gold, Stony Brook Sleep Disorders Center, in terms of UARS/UARS treatment. I heard his interview with Dr. Steven Park and he seemed to be one of the leading doctors/researchers in that field and since I live in Connecticut, though that it would be a good idea to seek his advice. (Guilleminault and Krakow would be others to see but they are too far) Basically I just looking to see if anyone knows anything about him other than the interview he had.

I have no personal experience with him, but I read several of his articles prior to listening to his interview with Dr. Park. His niche seems to be UARS + functional somatic syndromes. Based on what he said during the interview, he feels flow limitations, with or without arousals, are problematic (so he may agree with Dr. Krakow in terms of that.) I'd expect him to be pretty aggressive in eliminating flow limitations; at the same time, he said UARS patients rarely go above a pressure of 9, so he can't be THAT aggressive... He does not think full face masks are effective, so if your deviated septum, etc interfere with your nasal breathing, I suspect he'll encourage you to pursue correction of that. More than that I can't guess. He provided his email address at the end of that interview, so you could contact him and ask him some questions.

Apparently I'm not a UARS patient myself (although I maintain my own idiosyncratic diagnostic system whereby I'm an OSA patient in REM and a UARS patient in NREM...). I'm not sure who I would go to of the three places (BTW, good job researching this, as you've nailed the three I would personally consider). If I knew it was going to be a one shot deal and I wouldn't need them for follow-up, just a place that if there's a whiff of SDB, they would find it, I would go to Stanford. If I was having trouble on CPAP/APAP and thought I might benefit from a bilevel or ASV titration, I know Dr. Krakow deals with that a lot, and I'd have to ask Dr. Gold what his approach is. If he also does, I'd go to whomever is more convenient. If I had a functional somatic syndrome, I would consider Dr. Gold, but maybe Dr. Krakow is up to speed on all that too.

Hello everyone I am newly diagnosed and tomorrow will be my first day with CPAP therapy... I am from Europe and I hope you will excuse me my spelling mistakes, english is not my first language.

I do suffer from UARS and I've got almost every symptom dr Parks described on his site, tomorrow I am going to have my autoPAP machine and I feel that I will finally get better I am so grateful to God/fate/ whatever that I've found a reason for my tiredness, brain fog, depression, heart problems etc Actually I figured out myself what is causing my problems, doctors never knew... I was treated for depression, anxiety, insomnia and it was all UARS. It is not a pleasant diagnose but way better than any other... I am 22 only and my problems is in anatomical shape and thickness of the soft palate, my airway are not narrow on cephalometric x-ray, but it is exactly soft paate what is causing a problem, so CPAP therapy should work great, maybe someday I will do the surgery...