TRACHEOTOMY

Well I went through this painful difficult trach and I'm still not cured. Can barely read and type now. It was a regular trach 8mm and I'm overweight and asthmatic.
I don't understand why it didn't cure me. my soft palate is collapsing up into my nose. I also have centrals with severe desaturation maybe 65% with centrals. I don't know if enlarging or switching to a montgomery will help

Does anyone have a solution?

sickwithapnea wrote:Well I went through this painful difficult trach and I'm still not cured. Can barely read and type now. It was a regular trach 8mm and I'm overweight and asthmatic.
I don't understand why it didn't cure me. my soft palate is collapsing up into my nose. I also have centrals with severe desaturation maybe 65% with centrals. I don't know if enlarging or switching to a montgomery will help

Does anyone have a solution?

Talk to your doctor which is the advice you have been previously given.

49er

It wasn't meant to cure you, but keep you from getting a lot worse, though I imagine you can't tell the difference yet. It's more of a rescue thing than a cure thing.

There is no cure for apnea.
All we can do is treat it.

I don't understand how a tracheotomy would help with central apnea at all. I think you need a bipap for that.

nobody wrote:I don't understand how a tracheotomy would help with central apnea at all. I think you need a bipap for that.

a "bipap" won't help with central apnea either, since all but a very few specialized ones require the person to take a breath.

Yeah the ASV is the only machine that can treat centrals as far as I know. There is an AVAPS but I'm not sure what that is for.
I'm wondering if I was better off on ASV+oxygen because I have mixed apnea or if I should get a 10mm trach and/or the problem is with my asthma (can't exhale). I get weaker and can barely type or talk on the fenestrated 8mm.
I was on the ASV+oxygen for several years and it was ok but I never had energy or sharp clarity and had to add a sleep continuity medication for the centrals. I didn't have the clarity and brain activity I had before I got the horrid sleep apnea.

SWA/Sleeprider... You have been here for several years asking the same questions and getting answers from members, but somehow you don't take any advice and still come back with the same old stuff. Stop trying to fool everyone here, the only person you are fooling is yourself. And yes.. we do see that you are more than one poster.

sickwithapnea wrote:Yeah the ASV is the only machine that can treat centrals as far as I know. There is an AVAPS but I'm not sure what that is for.
I'm wondering if I was better off on ASV+oxygen because I have mixed apnea or if I should get a 10mm trach and/or the problem is with my asthma (can't exhale). I get weaker and can barely type or talk on the fenestrated 8mm.
I was on the ASV+oxygen for several years and it was ok but I never had energy or sharp clarity and had to add a sleep continuity medication for the centrals. I didn't have the clarity and brain activity I had before I got the horrid sleep apnea.

Have you worn an 02 detector overnight to see what your O2 levels are while you sleep?

Yeah the sleep study showed 65% O2 with a central. It is completely horrific and of unknown cause. There's a theory that OSA causes brain damage lesions which cause centrals.

I'm worried about leaving the ICU now since my O2 concentrator and bipap was stolen and I don't know how to get a replacement

Call your insurance co. and ask what to do, or replace them through the same dealer you got the first ones from.

well my ASV and oxygen were stolen.
there is some theory out there that in the first few months after a trach you get central apneas from the brain adjusting to the new air flow. when I had the last trach my blood oxygen/CO2 levels were very good but I felt sick, hypoxic.

I don't know why I was so weak and exhausted after the trach size 8. It was difficult to talk because of exhaustion. I do have less brain fog but not sharp clarity.