Pissed off scared and depressed

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Derbysaddle
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Pissed off scared and depressed

Post by Derbysaddle » Thu Feb 19, 2015 9:38 pm

After being forced to go to sleep doctor by my other half I was diagnosed Osa. And now I'm just waiting to hear from the lovely home medical supplier which I picture as a cross between a used car salesman and a ambulance chaser lawyer type.
The home torture study I endured proved to me I dont have sleep apnea because I know now what not sleeping feels like.
So since so little sleep was had how the heck can they conclude that I have it .
seems like a scam to me.
So the thought of spending the rest of my life with junk hanging off my face and never getting a decent nights sleep to appease my wife pisses me off. Im a stomach sleeper snd I turn my head from Side to side to stretch out my neck. I'm so screwed. I don't want to have to adjust the way I sleep. I don't want crap in my nose on hanging off my face.
But of the plus side the side effect sound absolutely wonderful.
Gas.... Bloating... Neausa and severe cases vomiting
Face irritation, breakouts .... Marks on your face
Dry mouth
Sinus problems .... Great so I get to tAke more drugs to treat the symptoms
Nose bleeds
Sinus pressure
FML

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Bill44133
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Re: Pissed off scared and depressed

Post by Bill44133 » Thu Feb 19, 2015 9:42 pm

Take 15 minutes and review this youtube video it will help you understand what is going on with snoring, etc:
https://www.youtube.com/watch?v=-gie2dhqP2c

This video put the whole thing in perspective for me

I wish you well

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bwexler
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Re: Pissed off scared and depressed

Post by bwexler » Thu Feb 19, 2015 9:54 pm

Well you sure sold me.
I think you and I and the thousands of folks who frequent this forum, had better stop using these silly machines and throw them all in the trash.

Or is it possible that your wife and doctor have recognized something in you that needs to be treated. Maybe she wants to keep you around for a while longer, or maybe she just can't get any sleep with your snoring. Tell her to check and be sure your life insurance is paid up and maybe double your coverage and she will leave you alone.

I know folks like you that would rather die than use their CPAP equipment. Sometimes when they are forced to try it they discover it is not only possible to get used to it, but they actually get restorative sleep for the first time in years.

Good luck. Let us know how things turn out.

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Goofproof
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Re: Pissed off scared and depressed

Post by Goofproof » Thu Feb 19, 2015 9:56 pm

You have the correct mindset to be a successful XPAP user. NOT, buy some water wings if they have them. NeNile, is deep and wet! Jim

If your complaining now, you are going to love getting use to it, it's as bad as you want to make it! Maybe dying in bed sounds better.
Use data to optimize your xPAP treatment!

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OkyDoky
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Re: Pissed off scared and depressed

Post by OkyDoky » Thu Feb 19, 2015 9:59 pm

I too was forced to get a sleep study. The best thing you can do for yourself is to make it work. It's not as bad as it may seem. Some people may some of the problems you listed but not all. I had face irritation, sore nares, and leaks that I worked through. Not all the possible problems that you listed and not all at once. And when you get it right you begin healing yourself of damage you never realized you were causing. Your wife may be worried about you because she can hear all the snoring, choking, and gasping. It can be a scarry thing.
I never knew I had a problem with apnea. Just all the symptoms it can cause which were being treated separately. I think I could have worked 10 years longer if diagnosed earlier. Also now my GERD is almost nonexistent, fatigue has greatly improved, palpitations felt at night no longer, short of breath asthma symptoms gone; so I'm thankful my apnea was found and treated. I now wish we could get the message out there for others to find their way to treatment.
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Derbysaddle
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Re: Pissed off scared and depressed

Post by Derbysaddle » Thu Feb 19, 2015 10:01 pm

At this point dying seems the best option. Probably the best sleep I can hope to achieve now!

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BlackSpinner
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Re: Pissed off scared and depressed

Post by BlackSpinner » Thu Feb 19, 2015 10:02 pm

Derbysaddle wrote:Af
But of the plus side the side effect sound absolutely wonderful.
Gas.... Bloating... Neausa and severe cases vomiting
Face irritation, breakouts .... Marks on your face
Dry mouth
Sinus problems .... Great so I get to tAke more drugs to treat the symptoms
Nose bleeds
Sinus pressure
FML
I never had any of these except face irritations and a mask liner took care of that. PLUS my sinus problems and my asthma has greatly reduced, there is nothing quite like breathing filtered warm air for 8 hours to help with them.

Oh and your wife might look forward to having a better functioning sex toy to play with. I hear for some cpap therapy is better then Viagra.

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kaiasgram
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Re: Pissed off scared and depressed

Post by kaiasgram » Thu Feb 19, 2015 10:08 pm

Do you have a question for us? How can we help you?

If you have (or obtain) a copy of your sleep study report you can post it here (i.d. whited out) and get feedback on the details.

Be prepared for a lot of harsh responses to your post, but also know that many of us understand how overwhelming the diagnosis (and prospect of treatment) seems. Sometimes I'm getting 'masked up' for bed and I realize that I still can't quite believe I'm tethered to this machine for the rest of my life -- and I've been c-papping for almost three years.

Hang in there and consider letting us help you get started. There really could be some positive outcomes for you.

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Wulfman...
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Re: Pissed off scared and depressed

Post by Wulfman... » Thu Feb 19, 2015 10:09 pm

Derbysaddle wrote:After being forced to go to sleep doctor by my other half I was diagnosed Osa. And now I'm just waiting to hear from the lovely home medical supplier which I picture as a cross between a used car salesman and a ambulance chaser lawyer type.
The home torture study I endured proved to me I dont have sleep apnea because I know now what not sleeping feels like.
So since so little sleep was had how the heck can they conclude that I have it .
seems like a scam to me.
So the thought of spending the rest of my life with junk hanging off my face and never getting a decent nights sleep to appease my wife pisses me off. Im a stomach sleeper snd I turn my head from Side to side to stretch out my neck. I'm so screwed. I don't want to have to adjust the way I sleep. I don't want crap in my nose on hanging off my face.
But of the plus side the side effect sound absolutely wonderful.
Gas.... Bloating... Neausa and severe cases vomiting
Face irritation, breakouts .... Marks on your face
Dry mouth
Sinus problems .... Great so I get to tAke more drugs to treat the symptoms
Nose bleeds
Sinus pressure
FML
Welcome to the forum.
Since you're waiting for the equipment supplier (DME), you need to get smart fast. You don't want them to stick you with a non-data-capable machine. In other words, you WANT a fully, data-capable machine. If you have insurance paying for this, they'll pay by insurance code and the code for all CPAPs is E0601.
Go to CPAP.COM and look at all the machines and masks try to get a feel for what's available. The three most popular brands are Philips/Respironics, ResMed and DeVilbiss.

Read this link:

http://tinyurl.com/2arffqx

Go up to the top of the forum page and start reading the links in the "Announcements" section, go to the "CPAP Wiki" icon and just start reading in general.
We were all in your shoes at one point and the first step is "acceptance" and getting out of denial.


Den

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OkyDoky
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Re: Pissed off scared and depressed

Post by OkyDoky » Thu Feb 19, 2015 10:16 pm

You can continue to be a stomach sleeper. I have always slept on my stomach. You just have to find the right mask and pillow combination. I use the P10 nasal pillows and a soft pillow that I mold it how I want. There are answers to your needs and people that will help you.
ResMed Aircurve 10 VAUTO EPAP 11 IPAP 15 / P10 pillows mask / Sleepyhead Software / Back up & travel machine Respironics 760

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Wulfman...
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Re: Pissed off scared and depressed

Post by Wulfman... » Thu Feb 19, 2015 10:17 pm

Derbysaddle wrote:At this point dying seems the best option. Probably the best sleep I can hope to achieve now!
That attitude is not going to help.
Like I said, we've all been there. How you deal with it will go a long ways to your getting good therapy, which is apparently what you need.


Den

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palerider
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Re: Pissed off scared and depressed

Post by palerider » Thu Feb 19, 2015 10:22 pm

Derbysaddle wrote:At this point dying seems the best option. Probably the best sleep I can hope to achieve now!
well, you can do that, though your wife is trying to keep you alive... or maybe she just wants to avoid having to change your diapers after you have a stroke and are nothing but a drooling moron and huge liability for her.

either way, your whiny little temper tantrum isn't helping anyone, least of all you.

you haven't been SLEEPING, you've been PASSED OUT from exhaustion. there is a difference.

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Krelvin
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Re: Pissed off scared and depressed

Post by Krelvin » Thu Feb 19, 2015 10:24 pm

Derbysaddle wrote:Im a stomach sleeper snd I turn my head from Side to side to stretch out my neck. I'm so screwed.
So am I, can't imaging sleeping any other way. 9+ years now FFM, 7.5 hours a night avg, don't fall asleep during the day, lots of energy, basically never snore any more, BP down, weight down. Hard to fathom attempting to sleep without it now.
Last edited by Krelvin on Thu Feb 19, 2015 10:26 pm, edited 1 time in total.
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archangle
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Re: Pissed off scared and depressed

Post by archangle » Thu Feb 19, 2015 10:25 pm

Derbysaddle wrote:After being forced to go to sleep doctor by my other half I was diagnosed Osa. And now I'm just waiting to hear from the lovely home medical supplier which I picture as a cross between a used car salesman and a ambulance chaser lawyer type.
The home torture study I endured proved to me I dont have sleep apnea because I know now what not sleeping feels like.
So since so little sleep was had how the heck can they conclude that I have it .
seems like a scam to me.
So the thought of spending the rest of my life with junk hanging off my face and never getting a decent nights sleep to appease my wife pisses me off. Im a stomach sleeper snd I turn my head from Side to side to stretch out my neck. I'm so screwed. I don't want to have to adjust the way I sleep. I don't want crap in my nose on hanging off my face.
But of the plus side the side effect sound absolutely wonderful.
Gas.... Bloating... Neausa and severe cases vomiting
Face irritation, breakouts .... Marks on your face
Dry mouth
Sinus problems .... Great so I get to tAke more drugs to treat the symptoms
Nose bleeds
Sinus pressure
FML
Our entire medical mafia healthcare scheme is a scam.

However, they control the access to very real and necessary things like insulin, antibiotics, heart surgery, painkillers, blood pressure medicine, Viagra, X-rays for broken limbs, cancer treatment, etc.

Even if the medical system is corrupt, apnea is as real as diabetes or heart disease. CPAP is as necessary as insulin or heart surgery for those who need it. Fortunately, for most people, CPAP simply works after you get it adjusted right and figure out how to use it.

I don't believe the sleep labs often fake sleep test results. There are records and they don't really have that much of an incentive to do so. There are also so many real apneacs that they don't need to fake it.

If you do get stuck with a machine, read the articles linked in my "useful links" in my signature line below. They'll help you avoid being screwed as badly by the DME.

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Derbysaddle
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Re: Pissed off scared and depressed

Post by Derbysaddle » Thu Feb 19, 2015 10:31 pm

I have slept fine for the last 36 years . Why do I need to change ? Just another crutch in my life I don't need to deal with.
I wake up and feel fine. I'm not sleepy durning the day I don't wake up with headaches . It seems silly that the doctor I watched sleeping at his qualified to even judge me on my sleep habits. I felt like I just paid $250 for nothing.and then to allow sone DME as I heard someone refer to them as is qualified to determine what pressure I need to be set at. Sounds like I have a better shot at letting person form the local radio shack do it for me.

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