Hi,
Not sure yet if I found the best place but it sure looks like a lot of good information so far!!
Background.....
I am 39, diagnosed sleep apnea about 1 year ago. The tech told me that if on a scale, it took a "5" to be considered sleep apnea, "I was a 45"!! I knew I had it but never had the problems that prompted my visit to a sleep doctor before then. It kinda snuck up as a major attack one week going from noticeable, to not being able to fall asleep for 3 days straight because I would immediately stop breathing. I understood from my brief experience with the techs that there are apparently about 150 different forms of sleep apnea. Mine ranges from nightly bouts of basic obstruction with the moving parts back there, to worse. I swear the moving parts thing is a matter of once they reach a certain stage of interaction, the degredation accelerates due to the stresses on these airway parts beginning to compound on themselves. Just my thoughts.
Two other rarely occuring issues I seem to suffer from (but I do not think they were occuring during the testing) are:(1) I have found myself falling asleep so fast and so deep that my body simply stops breathing. That one usually happens almost immediately upon going to sleep and then passes. (2) Even worse and more scary, and this one would occur almost immediately upon going to sleep as well, would be that my heart has stopped beating. When that one happens, I am telling you it is not an issue of obstruction, my body just shuts down so fast and hard that my heart will stop!! I have actually had it happen, awakened with no breathing issues, and pounded my chest in a severe state of panic. One time I actually jumped out of bed and started walking toward the door for help while rapping my chest. I actually got a couple of steps away from the bed before my heart started beating again!
So I got my machine and have not had any real issues breathing so far as it seems to help, but I am tired all the time even after a year. I do not think it is any discomfort associated with wearing the apparatus. I have a nose pillow that I even custom cut early on to fit more inside the nostrils. The tech that came out felt I was pretty "natural" with it. I have has suspicions all along that the machine is not set up right or malfunctioning. Last night I was finally convinced. Over the past few months I have noticed that the machine is shutting off during the night. I first realized it as a simple wake up and realizing it was off, and by that time I would hear it beep and start up again. I dont THINK I was suffering due to it, however, perhaps it is ruining my sleep. Recently and this week my apnea has been worse again. I was having the "dream" that I could not breath, and struggling to take a break through the force of that "locked" sensation in the airway. I am describing what I think is the general common symptoms of the "flappers or valves" catching in my throat. I am not sure how common it is for those of you to actually consciously experience this feeling, BUT IT IS HORRIFYING. You are lying there in a semi-conscious state with everything locked up where you cant take a breath, but still too sedated to force everything to open. So you are sitting there telling yourself in your head to breath, but you cant for a minute. It really sucks. Well, last night it happened for about the fourth time in 2 weeks and very semiconsciously. By the time I could take a breath last night I was clearly aggrivated and awake enough to confirm the machine had shut down again and caused this to happen. Its a newer Remstar series (black) with all the blue lights and the long plastic water container that slides in the left side from the front.
I am pretty convinced that my breathing slows to the point that the machine is thinking I am not there anymore and causing the shutoff, and that this is some kind of caviat to the APAP or automated features? Can anyone help me figure this out? Should I try turning off the auto shutdown feature? Do I need to just switch over to the basic CPAP setting that just blows constantly?
Hello, New here, CPAP Issues
Re: Hello, New here, CPAP Issues
Why not register and fill in your profile so we know the exact model of Remstar that you have. Also include your mask and pressure. Have you had a heart work-up with a cardiologist? CPAP can't fix everything. If it happens again I would head for the ER.
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
| Additional Comments: Back up is a new AS10. |
Re: Hello, New here, CPAP Issues
The heart is fine as far as any "normal" testing. I am pretty active and strong cardiovascularly. I am pretty sure these are just sleep related issues. I have not ever seen a cardiologist I dont think. I have recently had ECGs or EKGs maybe both and normal. I also had an ultrasound type look at it last year and normal.
I tried to show the right equipment and think I got it right. There was not a specific selection for the Remstar Auto with APAP M series. I think that was the one. The aparatus is a simple nose pillow with head gear.
Like I said the mask is a pillow type and I have no issues with it sealing properly. It actually works better that the nose Mask I have as it tends to leak around the edges at the setting of 14. I came home with a pressure setting of 8-10 from the doc. That was not enough due to the nasal mask I am pretty sure. It felt life the nasal pillow was actually suffocating me, as there was not enough air flow at the 10 setting. I have tweeked it alot. I use about 14 as a min pressure. Thats about as high as I can take and not be disturbed by too much pressure. It is also very comfortable at that setting.
The issues with the heart stopping are not related to pain or stress. It just simply tends to slow down too far too fast. Again, this is a more rare occurance.
The primary issue is the machine turning its self off!!!!! Obviously this is not supposed to happen. I would have no problems otherwise.... I am thinking it would prove interesting to visit back with the sleep doc and look at the software analysis that I am sure the card is tracking. I am positive it would show the machine turning off throughout the night. Anyone??
I tried to show the right equipment and think I got it right. There was not a specific selection for the Remstar Auto with APAP M series. I think that was the one. The aparatus is a simple nose pillow with head gear.
Like I said the mask is a pillow type and I have no issues with it sealing properly. It actually works better that the nose Mask I have as it tends to leak around the edges at the setting of 14. I came home with a pressure setting of 8-10 from the doc. That was not enough due to the nasal mask I am pretty sure. It felt life the nasal pillow was actually suffocating me, as there was not enough air flow at the 10 setting. I have tweeked it alot. I use about 14 as a min pressure. Thats about as high as I can take and not be disturbed by too much pressure. It is also very comfortable at that setting.
The issues with the heart stopping are not related to pain or stress. It just simply tends to slow down too far too fast. Again, this is a more rare occurance.
The primary issue is the machine turning its self off!!!!! Obviously this is not supposed to happen. I would have no problems otherwise.... I am thinking it would prove interesting to visit back with the sleep doc and look at the software analysis that I am sure the card is tracking. I am positive it would show the machine turning off throughout the night. Anyone??
LSAT wrote:Why not register and fill in your profile so we know the exact model of Remstar that you have. Also include your mask and pressure. Have you had a heart work-up with a cardiologist? CPAP can't fix everything. If it happens again I would head for the ER.
Re: Hello, New here, CPAP Issues
We need to know if your M Series is a 'Pro" or a "Plus" model - should say right on the top.
I don't believe your heart actually stops when you think it does, maybe just skipping a few beats as in bradycardia, when it slows down. If it were literally stopped, you wouldn't be getting out of bed banging on your chest.
The seeming paralysis when you awake is also a known phenomenon and is called sleep paralysis. It's very scary, but does pass on its own. A referral to a neurologist might help you with that - not a serious problem though except for the scary feelings. If something else is keeping you from breathing, it could even be related to anxiety, which you obviously have a lot of (understandably!) but will not kill you I don't think. Some people just have a hard time transitioning from sleep to waking.
You now have a nasal mask, but is it possible that once you're asleep, you breathe with your mouth open (lots of us do, especially when air is being pumped in like it is) and lose all the Cpap air? If that's the case you should try on some 'full face' masks (nasal ones that extend to cover your mouth as well) like the Quattro, Hybrid or Ultra Mirage. That way you won't lose all the therapy air and will sleep a lot better, not to mention feel better when you're awake.
I don't believe your heart actually stops when you think it does, maybe just skipping a few beats as in bradycardia, when it slows down. If it were literally stopped, you wouldn't be getting out of bed banging on your chest.
The seeming paralysis when you awake is also a known phenomenon and is called sleep paralysis. It's very scary, but does pass on its own. A referral to a neurologist might help you with that - not a serious problem though except for the scary feelings. If something else is keeping you from breathing, it could even be related to anxiety, which you obviously have a lot of (understandably!) but will not kill you I don't think. Some people just have a hard time transitioning from sleep to waking.
You now have a nasal mask, but is it possible that once you're asleep, you breathe with your mouth open (lots of us do, especially when air is being pumped in like it is) and lose all the Cpap air? If that's the case you should try on some 'full face' masks (nasal ones that extend to cover your mouth as well) like the Quattro, Hybrid or Ultra Mirage. That way you won't lose all the therapy air and will sleep a lot better, not to mention feel better when you're awake.
Re: Hello, New here, CPAP Issues
All it has marked on it is the following. Above the 3 buttons is RESPIRONICS, and below says REMstarAuto/A-Flex. It also denotes M series in smaller font under the word Auto. On the bottom it says the Model is M-Series Heated Humidifier - DOM. It was sold to me and my BC/BS around June of 2009.
Is there a problem with the M Series. I am starting to wonder with my initial reads here???
Regarding the heart, I would not think it was totally stopped or I would not be conscious, Right. But for sure, I have felt my chest immediately upon wakening with this and no beat. So I am thinking some severe form of fluttering or such. Else really slowed down. No paralysis when that happens. Just sheer panic. There does not seem to be a breathing issue associated with it. Breathing is very slow and almost non-existant when that happens. So is pulse rate. So clearly not starved for air I am thinking. But I dont yet understand these things as they relate to sleep and perhaps this is the whole conundrum. I am however also specultive that just as pulse can go to 30 or 40 in good fit heavy sleep, one would remain conscious with a heart rate of zero for at least 10 seconds. It would not supprise me is someone confirmed this in a study one day. These were not obstructive type events at all. Nor was I taxed. It was a big time system shutdown. The events would always occur on the immediate downslide into sleep when tired. It was like I had to fight to resist dieing for a few rounds. And finally after 20 mins or so, my body would find a slow but acceptable level to work at. I am telling you it was like a straight downhill slide from tired to death like too much shutdown occuring... This issue has never presented past the first half hour of going to sleep, and only occurs in 2-3 week periods about once a year. Knocking on wood...
Regarding the obstrucive type events that prompted the Remstar and that occurred last night. The paralysis is indeed normal sleep related paralysis. A clear starvation for air and denoted by heart pounding and lungs trying desprirately to inhale is consciously clear. As it simply gets so bad my brain starts waking my to resolve it. It is a scary feeling being trapped between sleep and consciousness and physically paralyzed. I am guessing that while the lungs are somewhat automatic in process, the opening of the airway is not. So the autopilot does not resolve the issue. I can surely see where this would kill me if older, weaker, or under the influence of the wrong drug. What do you do. Body is asleep and unable to adjust throat mechanics is certain stages??
Anxiety is not my issue, I dont think. I am very calm and understanding of the situation, simply because the issue never really presented, came on slow, and seemed temporary in my mind. Reading all this is causing axiety. I have always speculated that I am now a weaker human being, and how would I live without medical intervention is the disguisting proof. This is not comforting at 39. But finding out just how serious my problems are as I am starting to educate myself is what is now causing anxiety. Anxiety simply wont be an issue as I tell myself that all I have to do is loose some weight again to resolve. But the reality I fear, is that once you create the conditions to "rack" all the parts in the throat, you are doing permanent damage, so to speak.....
Transitioning or not, if I did not have the machine right now, I would be suffering greatly this week. The obstructive type apnea must occur during paralysis which I am guessing only occurs as a function of certain stages of sleep. Plain and simple, on my back, I would not be able to breath in a paralyzed state right now. Now thats scary....
Regarding any mouthing issues. I learned pretty early on the feeling of air comming out of my mouth as when I tried to talk you can imaging. So I experimented and payed a lot of attention as I am very sensitive. I have even trained myself to lay there with my mouth open and beath properly through the pillow with some type of "tounge and pallet" blockade. If ever I have air comming out of my mouth, and a few times, I wake pretty quick to the sound of the gargling, hissing, etc.. It has happened. I can also tell exactly when my water runs out as the back of my sinus cavity starts to get a cold dry effect that is almost intolerable, and I have actually opened my mouth to get moist air in the throat, as an intermitent for of mitigation when too tired to get up and add water. I seem to keep everything going on back behind my mouth area faily well and can even talk clearly while wearing it now. The strangest part for me is that when my apnea is minimal, the only problem is on exhalation, and not inhaling. Actually, maybe thats my entire obstructive issue?? But the "flapper" seems to catch only on exhale when I can tell. This was more apparent when I was tweaking the maching as I tried to drop back down to 12 for a while and it started occuring noticeably. I then had to go back up to 14 MIN to get it to remain open on exhale.
You may find this even odder. What is causing me more stress than anything is the thought of the place that sold me the maching knowingly selling me a dud??? So if there is anything to any M series issues please let me know as I am now on the hunt. It would not suprise me is my machine is a lemon. I Have never seen it rise above the min setting. It also just seems to drop down below the minimal setting an excessively. I thought I understood in my brief readings that the Auto function could allow it to reduce to zero assistance and a natural type flow thru. ?? But I dont even think I have the auto function on right now. I know its not is the most basic steady blow state for sure. Also every morning when I wake, it is never providing any assistance, just seems on but passive? ITs almost like I turn it on at night and it is blowing at full 14 and then straight down and only down from there. I am sure my breathing is naturally getting very slow at night as I am fairly fit, but should it not interpret that as a need for help? Why is it allowing me to sloff of to so slow that the machine turns off. There is no question this is happening. I cant tell you the nights that the mask on my nose has actually suffocated me causing me to awaken even before the thing can start thus denoted by the Beep I am starting to get annoyed with..... and clearly a clean start up at that point as i can hear the strong woosh of air as I finally breath though it and it clearly at full force again like when I started it at bed time. Funny, I dont even open my mouth to compensate for the suffocation of air being cut off to the nasal pillow... I even will apply a strong pull of air on it thru my nose as a "primer" to be sure it starts back up quickly....
Is there a problem with the M Series. I am starting to wonder with my initial reads here???
Regarding the heart, I would not think it was totally stopped or I would not be conscious, Right. But for sure, I have felt my chest immediately upon wakening with this and no beat. So I am thinking some severe form of fluttering or such. Else really slowed down. No paralysis when that happens. Just sheer panic. There does not seem to be a breathing issue associated with it. Breathing is very slow and almost non-existant when that happens. So is pulse rate. So clearly not starved for air I am thinking. But I dont yet understand these things as they relate to sleep and perhaps this is the whole conundrum. I am however also specultive that just as pulse can go to 30 or 40 in good fit heavy sleep, one would remain conscious with a heart rate of zero for at least 10 seconds. It would not supprise me is someone confirmed this in a study one day. These were not obstructive type events at all. Nor was I taxed. It was a big time system shutdown. The events would always occur on the immediate downslide into sleep when tired. It was like I had to fight to resist dieing for a few rounds. And finally after 20 mins or so, my body would find a slow but acceptable level to work at. I am telling you it was like a straight downhill slide from tired to death like too much shutdown occuring... This issue has never presented past the first half hour of going to sleep, and only occurs in 2-3 week periods about once a year. Knocking on wood...
Regarding the obstrucive type events that prompted the Remstar and that occurred last night. The paralysis is indeed normal sleep related paralysis. A clear starvation for air and denoted by heart pounding and lungs trying desprirately to inhale is consciously clear. As it simply gets so bad my brain starts waking my to resolve it. It is a scary feeling being trapped between sleep and consciousness and physically paralyzed. I am guessing that while the lungs are somewhat automatic in process, the opening of the airway is not. So the autopilot does not resolve the issue. I can surely see where this would kill me if older, weaker, or under the influence of the wrong drug. What do you do. Body is asleep and unable to adjust throat mechanics is certain stages??
Anxiety is not my issue, I dont think. I am very calm and understanding of the situation, simply because the issue never really presented, came on slow, and seemed temporary in my mind. Reading all this is causing axiety. I have always speculated that I am now a weaker human being, and how would I live without medical intervention is the disguisting proof. This is not comforting at 39. But finding out just how serious my problems are as I am starting to educate myself is what is now causing anxiety. Anxiety simply wont be an issue as I tell myself that all I have to do is loose some weight again to resolve. But the reality I fear, is that once you create the conditions to "rack" all the parts in the throat, you are doing permanent damage, so to speak.....
Transitioning or not, if I did not have the machine right now, I would be suffering greatly this week. The obstructive type apnea must occur during paralysis which I am guessing only occurs as a function of certain stages of sleep. Plain and simple, on my back, I would not be able to breath in a paralyzed state right now. Now thats scary....
Regarding any mouthing issues. I learned pretty early on the feeling of air comming out of my mouth as when I tried to talk you can imaging. So I experimented and payed a lot of attention as I am very sensitive. I have even trained myself to lay there with my mouth open and beath properly through the pillow with some type of "tounge and pallet" blockade. If ever I have air comming out of my mouth, and a few times, I wake pretty quick to the sound of the gargling, hissing, etc.. It has happened. I can also tell exactly when my water runs out as the back of my sinus cavity starts to get a cold dry effect that is almost intolerable, and I have actually opened my mouth to get moist air in the throat, as an intermitent for of mitigation when too tired to get up and add water. I seem to keep everything going on back behind my mouth area faily well and can even talk clearly while wearing it now. The strangest part for me is that when my apnea is minimal, the only problem is on exhalation, and not inhaling. Actually, maybe thats my entire obstructive issue?? But the "flapper" seems to catch only on exhale when I can tell. This was more apparent when I was tweaking the maching as I tried to drop back down to 12 for a while and it started occuring noticeably. I then had to go back up to 14 MIN to get it to remain open on exhale.
You may find this even odder. What is causing me more stress than anything is the thought of the place that sold me the maching knowingly selling me a dud??? So if there is anything to any M series issues please let me know as I am now on the hunt. It would not suprise me is my machine is a lemon. I Have never seen it rise above the min setting. It also just seems to drop down below the minimal setting an excessively. I thought I understood in my brief readings that the Auto function could allow it to reduce to zero assistance and a natural type flow thru. ?? But I dont even think I have the auto function on right now. I know its not is the most basic steady blow state for sure. Also every morning when I wake, it is never providing any assistance, just seems on but passive? ITs almost like I turn it on at night and it is blowing at full 14 and then straight down and only down from there. I am sure my breathing is naturally getting very slow at night as I am fairly fit, but should it not interpret that as a need for help? Why is it allowing me to sloff of to so slow that the machine turns off. There is no question this is happening. I cant tell you the nights that the mask on my nose has actually suffocated me causing me to awaken even before the thing can start thus denoted by the Beep I am starting to get annoyed with..... and clearly a clean start up at that point as i can hear the strong woosh of air as I finally breath though it and it clearly at full force again like when I started it at bed time. Funny, I dont even open my mouth to compensate for the suffocation of air being cut off to the nasal pillow... I even will apply a strong pull of air on it thru my nose as a "primer" to be sure it starts back up quickly....
Julie wrote:We need to know if your M Series is a 'Pro" or a "Plus" model - should say right on the top.
I don't believe your heart actually stops when you think it does, maybe just skipping a few beats as in bradycardia, when it slows down. If it were literally stopped, you wouldn't be getting out of bed banging on your chest.
The seeming paralysis when you awake is also a known phenomenon and is called sleep paralysis. It's very scary, but does pass on its own. A referral to a neurologist might help you with that - not a serious problem though except for the scary feelings. If something else is keeping you from breathing, it could even be related to anxiety, which you obviously have a lot of (understandably!) but will not kill you I don't think. Some people just have a hard time transitioning from sleep to waking.
You now have a nasal mask, but is it possible that once you're asleep, you breathe with your mouth open (lots of us do, especially when air is being pumped in like it is) and lose all the Cpap air? If that's the case you should try on some 'full face' masks (nasal ones that extend to cover your mouth as well) like the Quattro, Hybrid or Ultra Mirage. That way you won't lose all the therapy air and will sleep a lot better, not to mention feel better when you're awake.
Re: Hello, New here, CPAP Issues
I have not yet had a reply from anyone on my last posted response so I am going to add to that a little. Again help from anyone knowledgeable appreciated.
The unit I have does have a smart card and I am guessing it is highly data capable and one of the RemStar higher quality machines...?
It has options for straight up CPAP, CPAP with autoFlex, and APAP with autoflex. I am assuming the "flex" is the machines ability to lower pressure temporarily to assist with exhale?? And to my recollection from tweeking in the menu, the only difference in the Cflex and Aflex is that the Cflex has a range of only 4cms whereas the Aflex will have a spread available from 4 to 20. I have it on the lowest setting that will allow me to breath without the exhale type reverse blockade occuring, but I swear it has never gone higher than my min setting even once. The minimum is comfortable for sleep. I have experimented all the way up. HIgher settings seemed to be denoted by uncomfortable pressure on the chest not allowing for an acceptably easy exhale....
I mentioned earlier that my machine seems to go only down in pressure after beginning at bedtime. Based on my reading it would appear that the APAP type setting MIGHT be the only one that would do this? But I have not yet concluded in my reading that it is capable of going below minimum settings. So again please clairfy for me where ever anyone can. There is also no question that I usually wake up in the morning breathing through it and with the machine clearly on, just only offering little to no assist. So which settings could that possibly happen in? APAP only?
The funny thing is I have had it in CPAP/CFLEX for the past two months. Should this one allow for a pressure assist diminished below my bottom threshold of 14?
I have been complaining to my wife lately how we have to start getting the kids in their beds, and stop getting up all night for silly things, and accusing her of running me into the ground with all kinds of senseless wakenings. I am starting to wonder if I have just been creating a speculative scapegoat and this has not been an issue, and truely the machine is at fault.??
Tonight I was joking and told her that with last nights episode of the machine turning off again for no reason, I may be on to something and she is getting "off the hook" for my exhausted state. I was only joking with her, but she responded by saying "I was not even sure if you are using it because usually it is off".. This of course has really lit me up now. I asked her if she was sure, and she equated her understanding of it being on as "the blue lights" and hearing "the breathing", and says "no, its off a lot of times". So the plot thickens. There are a few mornings I pull it off around 5am and dont put it back on, I am starting to wonder why now. I am starting to wonder if the thing(machine) starts sticking a knife in my back within a couple of hours of going to sleep... How many times a night is it simmering down so slow that it just turns off. Is this even supposed to happen. I was assuming the AUTO OFF feature was associated only with the heavy flow of air as if the mask were off my face and running full speed. Should it shut of due to slow or low level breathing in ANY mode?
The unit I have does have a smart card and I am guessing it is highly data capable and one of the RemStar higher quality machines...?
It has options for straight up CPAP, CPAP with autoFlex, and APAP with autoflex. I am assuming the "flex" is the machines ability to lower pressure temporarily to assist with exhale?? And to my recollection from tweeking in the menu, the only difference in the Cflex and Aflex is that the Cflex has a range of only 4cms whereas the Aflex will have a spread available from 4 to 20. I have it on the lowest setting that will allow me to breath without the exhale type reverse blockade occuring, but I swear it has never gone higher than my min setting even once. The minimum is comfortable for sleep. I have experimented all the way up. HIgher settings seemed to be denoted by uncomfortable pressure on the chest not allowing for an acceptably easy exhale....
I mentioned earlier that my machine seems to go only down in pressure after beginning at bedtime. Based on my reading it would appear that the APAP type setting MIGHT be the only one that would do this? But I have not yet concluded in my reading that it is capable of going below minimum settings. So again please clairfy for me where ever anyone can. There is also no question that I usually wake up in the morning breathing through it and with the machine clearly on, just only offering little to no assist. So which settings could that possibly happen in? APAP only?
The funny thing is I have had it in CPAP/CFLEX for the past two months. Should this one allow for a pressure assist diminished below my bottom threshold of 14?
I have been complaining to my wife lately how we have to start getting the kids in their beds, and stop getting up all night for silly things, and accusing her of running me into the ground with all kinds of senseless wakenings. I am starting to wonder if I have just been creating a speculative scapegoat and this has not been an issue, and truely the machine is at fault.??
Tonight I was joking and told her that with last nights episode of the machine turning off again for no reason, I may be on to something and she is getting "off the hook" for my exhausted state. I was only joking with her, but she responded by saying "I was not even sure if you are using it because usually it is off".. This of course has really lit me up now. I asked her if she was sure, and she equated her understanding of it being on as "the blue lights" and hearing "the breathing", and says "no, its off a lot of times". So the plot thickens. There are a few mornings I pull it off around 5am and dont put it back on, I am starting to wonder why now. I am starting to wonder if the thing(machine) starts sticking a knife in my back within a couple of hours of going to sleep... How many times a night is it simmering down so slow that it just turns off. Is this even supposed to happen. I was assuming the AUTO OFF feature was associated only with the heavy flow of air as if the mask were off my face and running full speed. Should it shut of due to slow or low level breathing in ANY mode?
Re: Hello, New here, CPAP Issues
get the software and post a screen shot of a daily report OR take the card to the DME and ask them to print for you (or email to you would be better - don't have to scan it then) the full detail report off the card
there has been problems reported with auto off and as well as power block in the back on some machines here on the forum - we aren't the DME's -
there has been problems reported with auto off and as well as power block in the back on some machines here on the forum - we aren't the DME's -
Re: Hello, New here, CPAP Issues
"It has options for straight up CPAP, CPAP with autoFlex, and APAP with autoflex. I am assuming the "flex" is the machines ability to lower pressure temporarily to assist with exhale?? And to my recollection from tweeking in the menu, the only difference in the Cflex and Aflex is that the Cflex has a range of only 4cms whereas the Aflex will have a spread available from 4 to 20. I have it on the lowest setting that will allow me to breath without the exhale type reverse blockade occuring, but I swear it has never gone higher than my min setting even once. The minimum is comfortable for sleep. I have experimented all the way up. HIgher settings seemed to be denoted by uncomfortable pressure on the chest not allowing for an acceptably easy exhale...."
This part's a bit confusing, or at least I wonder if you're not confusing things. Cpap and Auto are two different modes of using the machine, one set to work at a fixed pressure and the other to roam between 2 set pressures, generally about 4 numbers apart, though still very capable of overriding the high setting if necessary to 'catch' a particular apneic event. C- and Aflex are for exhale and general relief with regard to breathing (you're right), but are not regulated or affected by whether you're in Cpap or Autopap mode.
Another thing, I wonder if you're using the Ramp feature to begin with, possibly beginning at a too-low to breathe level of e.g. 4 or 5, and struggling to breathe until it gets to a higher level. Well, most of us, unless our prescribed pressure is very high (e.g. above 15), don't bother with the ramp at all beyond the first few days as it is more trouble than it's worth. You might want to consider turning it off if you're using it.
Also, if you're sleeping on your back, that could easily be affecting your breathing - it's the worst position for OSA patients and you should try to sleep on your side (if necessary, using pillows or whatever to keep you there).
I also think you're making yourself crazy trying to gauge what's happening - while you're awake. You can't properly judge apneas or lack of them while conscious, and the machine won't give you accurate readings either. You must be asleep for it to do its job and report what's happening then. Also, while you might feel calm on the surface, anxiety can still have a strong effect on your state of mind or physiology, and by focusing so much on your heart and what it's doing (or not doing) and waiting for problems to crop up, you can easily be unconsciously applying a kind of biofeedback that will skew your breathing and/or even heart rate. Maybe try watching TV (mask on, all set to sleep) instead, and really relax. Which is NOT to say you aren't correct if the machine is actually turning itself off overnight -of course that has to be fixed if it's 'broken' (as opposed to a feature not having been turned on properly).
BTW, M Series are about as good as it gets when it comes to Cpap's, and rarely have problems unless they're old or have been somehow compromised in some way.
This part's a bit confusing, or at least I wonder if you're not confusing things. Cpap and Auto are two different modes of using the machine, one set to work at a fixed pressure and the other to roam between 2 set pressures, generally about 4 numbers apart, though still very capable of overriding the high setting if necessary to 'catch' a particular apneic event. C- and Aflex are for exhale and general relief with regard to breathing (you're right), but are not regulated or affected by whether you're in Cpap or Autopap mode.
Another thing, I wonder if you're using the Ramp feature to begin with, possibly beginning at a too-low to breathe level of e.g. 4 or 5, and struggling to breathe until it gets to a higher level. Well, most of us, unless our prescribed pressure is very high (e.g. above 15), don't bother with the ramp at all beyond the first few days as it is more trouble than it's worth. You might want to consider turning it off if you're using it.
Also, if you're sleeping on your back, that could easily be affecting your breathing - it's the worst position for OSA patients and you should try to sleep on your side (if necessary, using pillows or whatever to keep you there).
I also think you're making yourself crazy trying to gauge what's happening - while you're awake. You can't properly judge apneas or lack of them while conscious, and the machine won't give you accurate readings either. You must be asleep for it to do its job and report what's happening then. Also, while you might feel calm on the surface, anxiety can still have a strong effect on your state of mind or physiology, and by focusing so much on your heart and what it's doing (or not doing) and waiting for problems to crop up, you can easily be unconsciously applying a kind of biofeedback that will skew your breathing and/or even heart rate. Maybe try watching TV (mask on, all set to sleep) instead, and really relax. Which is NOT to say you aren't correct if the machine is actually turning itself off overnight -of course that has to be fixed if it's 'broken' (as opposed to a feature not having been turned on properly).
BTW, M Series are about as good as it gets when it comes to Cpap's, and rarely have problems unless they're old or have been somehow compromised in some way.
-
JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: Hello, New here, CPAP Issues
In addition to software to monitor your xPAP therapy, in your shoes, I would recommend you either request or purchase a pulse oximeter to monitor your heart rate and O2 staturation.
_________________
| Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
| Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
Re: Hello, New here, CPAP Issues
To everyone so far thanks. I am on the page.
To julie who I have not clarified myself to. I dont use the ramp ever. What would be the point when anything less than 12 feels like you are straigning to breath and against the machine. To be specific as I am sure my ignorance is confusing others than you as well.. I see two primary modes CPAP and AUTO. CPAP is one set pressure and flow both in and out with no reprieve and no increase. There does not appear to be any exhale assist in CPAP mode. This appears to be the extend of the CPAP optins. To go the AUTO route would appear to also offer the FLEXes. There appear to be 3 options. (1) no help on exhale, (2) CFLEX (ehale assist), and (3) AFLEX (exhale assist). But all three would be AUTOPAP in nature. Meaning they are providing some kind of on the fly adjustments. I am not sure the difference of the nature of the three as for as their ranges. But for the sake of setting parameters. All appear the same except for AFLEX. This one does not appear to allow the ranges to infringe within 2 or 4 whole numbers of each other ( cant remember, but earlier concept stated was totally wrong). I am assuming that this is also indicative that the AFLEX or (autopap with flexibility in exhale I am assuming) is also the most dynamicaly active of the three. I would like further explaination if possible as to the specifics of these 3 autopap settings IF POSSIBLE and I am sure need to read more for the complete detail of the functional details of each. My first impression would be that the CFLEX would mean that it can vary the assistance given, but only within the parameters you set, and the AFLEX more aggressive in nature and also attempting to pre-empt more actively rather than respond (just guesses provoking corrective answers). So go for it....The long and short is that I would be very skeptical that the AFLEX setting could work effectively in reality, and respond quickly enough to changing demands without being left open to misinterpretative actions further compounding in a hurry to failure. How could one expect it to pick up a problem on exhale? Would it not interpret this as a simple slowing of breathing rate? And how long does it have to see an action to respond? 10 seconds? And then change right back when needed. One who would be very physically fit with both obstructive, as well as CNS related breathing disruptions, and then with variation in sleep position, would have this machine dancing stupid tricks on any night.. How could it respond to one laying calmly in a deep sleep with a very slow breathing rate who then stops long enough to trigger action, and then roles to the other side dismissing the demand. ANd then again. I guess late is better than never. But does the application of air to an already locked up throat mechanix even release the glitch at that point? Or does it have to be worked out manually first and open for the machine to be effective? Is it really even opening my airway once the air responds? And how long to respond when breaths are already charted as 10 second apart at a healthy status? Or is the whole point for it to learn over an extended period of time that the breathing rate is an accurate expectation as related to historical tracking, and thus pre-emptively repond as the slightest deficiency occurs? Two primary questions remain unanswered as well.
(1) Can the AUTO function of the machine ever drop below the minimum setting in normal operating condtions, and if so, under which setting (CFLEX OR AFLEX)??
(2) Why did my machine turn off. Based on the one response above, I gather this is never supposed to happen and there are issues. Based on you last reponse, I gather that you are doubltful that I did not cause it or imagine it. Either by my mis-tweeking, dreaming it, having it set to low and having an event regardless, or just turning it off myself in my sleep. I can tell you objectively that there is no doubt that the little bastard turned itself off in my sleep I can also tell you that any heads I can roll are going to roll. I have been suffering now since I got it. And with random dimensia to totally mess with my head and health. It would not suppise me to find that the DME, or whatever polite term you use for these crooks, sold it to me even knowing it was a recall number. I was shocked when I originally found out how inexpensive the units are and knowing my BC/BS paid them 2K and they still want another 500 bucks from me. Its no wonder they are pressing me for the cash.... To have a defective unit if someone knew there was a chance and even confirmation would smoke my ass!!! For this thing to not only shut off for no reason at night, but to shut off during a serious event, changes the scenario from a limited defect to knowledgeable negligent tort & malice!! So I hope I am over reacting for now. But I think you know I am not stopping till I get to the bottom. I am starting to wonder if the pressure settings are even close to the expected numbers. I mean why should I feel like I am having to draw a "pull" against the machine when on 10 per say?? Why am I at 14 min when the techs told the doc to set at 8-10??? What a shit rig!! Something you are counting on to watch you back, stabbing you exactly when its supposed to be there. When I sit here and think about how tired I have been for the last 6 months, and how I cant stay awake for more than 6 hours at a time. Its all starting to add up.....
To julie who I have not clarified myself to. I dont use the ramp ever. What would be the point when anything less than 12 feels like you are straigning to breath and against the machine. To be specific as I am sure my ignorance is confusing others than you as well.. I see two primary modes CPAP and AUTO. CPAP is one set pressure and flow both in and out with no reprieve and no increase. There does not appear to be any exhale assist in CPAP mode. This appears to be the extend of the CPAP optins. To go the AUTO route would appear to also offer the FLEXes. There appear to be 3 options. (1) no help on exhale, (2) CFLEX (ehale assist), and (3) AFLEX (exhale assist). But all three would be AUTOPAP in nature. Meaning they are providing some kind of on the fly adjustments. I am not sure the difference of the nature of the three as for as their ranges. But for the sake of setting parameters. All appear the same except for AFLEX. This one does not appear to allow the ranges to infringe within 2 or 4 whole numbers of each other ( cant remember, but earlier concept stated was totally wrong). I am assuming that this is also indicative that the AFLEX or (autopap with flexibility in exhale I am assuming) is also the most dynamicaly active of the three. I would like further explaination if possible as to the specifics of these 3 autopap settings IF POSSIBLE and I am sure need to read more for the complete detail of the functional details of each. My first impression would be that the CFLEX would mean that it can vary the assistance given, but only within the parameters you set, and the AFLEX more aggressive in nature and also attempting to pre-empt more actively rather than respond (just guesses provoking corrective answers). So go for it....The long and short is that I would be very skeptical that the AFLEX setting could work effectively in reality, and respond quickly enough to changing demands without being left open to misinterpretative actions further compounding in a hurry to failure. How could one expect it to pick up a problem on exhale? Would it not interpret this as a simple slowing of breathing rate? And how long does it have to see an action to respond? 10 seconds? And then change right back when needed. One who would be very physically fit with both obstructive, as well as CNS related breathing disruptions, and then with variation in sleep position, would have this machine dancing stupid tricks on any night.. How could it respond to one laying calmly in a deep sleep with a very slow breathing rate who then stops long enough to trigger action, and then roles to the other side dismissing the demand. ANd then again. I guess late is better than never. But does the application of air to an already locked up throat mechanix even release the glitch at that point? Or does it have to be worked out manually first and open for the machine to be effective? Is it really even opening my airway once the air responds? And how long to respond when breaths are already charted as 10 second apart at a healthy status? Or is the whole point for it to learn over an extended period of time that the breathing rate is an accurate expectation as related to historical tracking, and thus pre-emptively repond as the slightest deficiency occurs? Two primary questions remain unanswered as well.
(1) Can the AUTO function of the machine ever drop below the minimum setting in normal operating condtions, and if so, under which setting (CFLEX OR AFLEX)??
(2) Why did my machine turn off. Based on the one response above, I gather this is never supposed to happen and there are issues. Based on you last reponse, I gather that you are doubltful that I did not cause it or imagine it. Either by my mis-tweeking, dreaming it, having it set to low and having an event regardless, or just turning it off myself in my sleep. I can tell you objectively that there is no doubt that the little bastard turned itself off in my sleep I can also tell you that any heads I can roll are going to roll. I have been suffering now since I got it. And with random dimensia to totally mess with my head and health. It would not suppise me to find that the DME, or whatever polite term you use for these crooks, sold it to me even knowing it was a recall number. I was shocked when I originally found out how inexpensive the units are and knowing my BC/BS paid them 2K and they still want another 500 bucks from me. Its no wonder they are pressing me for the cash.... To have a defective unit if someone knew there was a chance and even confirmation would smoke my ass!!! For this thing to not only shut off for no reason at night, but to shut off during a serious event, changes the scenario from a limited defect to knowledgeable negligent tort & malice!! So I hope I am over reacting for now. But I think you know I am not stopping till I get to the bottom. I am starting to wonder if the pressure settings are even close to the expected numbers. I mean why should I feel like I am having to draw a "pull" against the machine when on 10 per say?? Why am I at 14 min when the techs told the doc to set at 8-10??? What a shit rig!! Something you are counting on to watch you back, stabbing you exactly when its supposed to be there. When I sit here and think about how tired I have been for the last 6 months, and how I cant stay awake for more than 6 hours at a time. Its all starting to add up.....
Julie wrote:"It has options for straight up CPAP, CPAP with autoFlex, and APAP with autoflex. I am assuming the "flex" is the machines ability to lower pressure temporarily to assist with exhale?? And to my recollection from tweeking in the menu, the only difference in the Cflex and Aflex is that the Cflex has a range of only 4cms whereas the Aflex will have a spread available from 4 to 20. I have it on the lowest setting that will allow me to breath without the exhale type reverse blockade occuring, but I swear it has never gone higher than my min setting even once. The minimum is comfortable for sleep. I have experimented all the way up. HIgher settings seemed to be denoted by uncomfortable pressure on the chest not allowing for an acceptably easy exhale...."
This part's a bit confusing, or at least I wonder if you're not confusing things. Cpap and Auto are two different modes of using the machine, one set to work at a fixed pressure and the other to roam between 2 set pressures, generally about 4 numbers apart, though still very capable of overriding the high setting if necessary to 'catch' a particular apneic event. C- and Aflex are for exhale and general relief with regard to breathing (you're right), but are not regulated or affected by whether you're in Cpap or Autopap mode.
Another thing, I wonder if you're using the Ramp feature to begin with, possibly beginning at a too-low to breathe level of e.g. 4 or 5, and struggling to breathe until it gets to a higher level. Well, most of us, unless our prescribed pressure is very high (e.g. above 15), don't bother with the ramp at all beyond the first few days as it is more trouble than it's worth. You might want to consider turning it off if you're using it.
Also, if you're sleeping on your back, that could easily be affecting your breathing - it's the worst position for OSA patients and you should try to sleep on your side (if necessary, using pillows or whatever to keep you there).
I also think you're making yourself crazy trying to gauge what's happening - while you're awake. You can't properly judge apneas or lack of them while conscious, and the machine won't give you accurate readings either. You must be asleep for it to do its job and report what's happening then. Also, while you might feel calm on the surface, anxiety can still have a strong effect on your state of mind or physiology, and by focusing so much on your heart and what it's doing (or not doing) and waiting for problems to crop up, you can easily be unconsciously applying a kind of biofeedback that will skew your breathing and/or even heart rate. Maybe try watching TV (mask on, all set to sleep) instead, and really relax. Which is NOT to say you aren't correct if the machine is actually turning itself off overnight -of course that has to be fixed if it's 'broken' (as opposed to a feature not having been turned on properly).
BTW, M Series are about as good as it gets when it comes to Cpap's, and rarely have problems unless they're old or have been somehow compromised in some way.
Re: Hello, New here, CPAP Issues
Sorry if I implied it either didn't happen, or that it was your fault. On the other hand, I also think you could turn it down a notch - your attitude, not the machine. It's possible that you got a machine with a problem, but as that is pretty rare, it is also possible that the technician either didn't check that it was functioning properly, or that a feature was not on that should have been, or that there was a misunderstanding about how something worked. In any case, these things happen (misunderstandings, human error, whatever) but I'm not sure they are reasons to spew language like you did all over the page when we're just trying to help.
Your notes have been quite long and not easy to get through as you've packed a lot of detail into them, not all of it terribly clear, but we've tried to make sense of them for your sake. I hope you got rid of your 'steam' in that note, and will try to get the problem(s) fixed one way or another. Please remember the DME's, for all that we may not think well of them a lot of the time, are still people doing a job, whether their ability or intentions are the best or not, and like anyone else who may be rushed to begin with, can easily overlook or miss out on little things when trying to work. That does not make them monsters, or terrible human beings, just human, not always the brightest, but then maybe not always the best paid.
If you want to keep writing (notes that address one problem at a time will probably elicit effective responses) then be nice. We are ALL tired and trying to find answers here, and no one person here (or in a DME or doctor's office) is necesssarily responsible for any one problem at any time - there are often a long line of contributing factors which it's not always reasonable to trace back each and every time a machine or anything else comes in front of them.
Your notes have been quite long and not easy to get through as you've packed a lot of detail into them, not all of it terribly clear, but we've tried to make sense of them for your sake. I hope you got rid of your 'steam' in that note, and will try to get the problem(s) fixed one way or another. Please remember the DME's, for all that we may not think well of them a lot of the time, are still people doing a job, whether their ability or intentions are the best or not, and like anyone else who may be rushed to begin with, can easily overlook or miss out on little things when trying to work. That does not make them monsters, or terrible human beings, just human, not always the brightest, but then maybe not always the best paid.
If you want to keep writing (notes that address one problem at a time will probably elicit effective responses) then be nice. We are ALL tired and trying to find answers here, and no one person here (or in a DME or doctor's office) is necesssarily responsible for any one problem at any time - there are often a long line of contributing factors which it's not always reasonable to trace back each and every time a machine or anything else comes in front of them.
Re: Hello, New here, CPAP Issues
I suggest you scour craigslist and garage sales and get the oldest most archaic machine you can find with NO data and NO exhale relief and use it. Perhaps then you can get adequate treatment and then read about the different capabilities of your current machine.
We aren't a DME. We don't have the technology to diagnose what is or isn't wrong with your machine.
As I suggested above get the software and post a screen shot showing what is happening and perhaps we can help you. I would be concerned you aren't in a split night mode. But until then, follow the suggestion I have a few lines above.
If you still feel your machine is shutting off in error, demand your DME replace it.
If you feel your breathing pattern is the problem ask your sleep doctor for a different style machine based on that.
As I suggested earlier on this thread there have been problems reported here before with m series machines shutting off. Perhaps you need to search the forum archives about this.
NOTE: Oh the DME does bill your insurance that much even though the online price is lower. Take that matter up with them not us. We are in sympathy with your concerns but are powerless to solve it for you.
We aren't a DME. We don't have the technology to diagnose what is or isn't wrong with your machine.
As I suggested above get the software and post a screen shot showing what is happening and perhaps we can help you. I would be concerned you aren't in a split night mode. But until then, follow the suggestion I have a few lines above.
If you still feel your machine is shutting off in error, demand your DME replace it.
If you feel your breathing pattern is the problem ask your sleep doctor for a different style machine based on that.
As I suggested earlier on this thread there have been problems reported here before with m series machines shutting off. Perhaps you need to search the forum archives about this.
NOTE: Oh the DME does bill your insurance that much even though the online price is lower. Take that matter up with them not us. We are in sympathy with your concerns but are powerless to solve it for you.
Re: Hello, New here, CPAP Issues
I think you are confusing me with someone else. Why does everyone here keep insisting you are not the "DMEs". I mean, how many people in the field are there amongst you?? My rep was more than helpful. I now know why he was so supprised I got the best machine!!! I also understand when he heard who my doctor was that it made sence to him. She was obviously astute to the crooked game... I WOULD NOT BE HERE IF I THOUGHT YOU REPRESENTED DME'S!!!!!!!!!!!!! So save the attitude. MY ATTITUDE is not with the forum. WHy would it be? You have only helped me to pull the curtain off this wizzard..... In Fact my rep was passionate about the science related and vrey inspirational. There absorbadently earned money is WELL SPENT on his salary.....
I understand I have a good machine "theoretically", and if it worked.......... Craigslist is for pedifiles and porn addicts thank you....
You mentioned split night mode. Well thanks again, I guess.... DO I REALLY SEEM THAT INCAPABLE OF GETTING A JOB DONE????? No, it is not is split night mode.
"breathing pattern"... Is there an issue with my breathing pattern as it relates to AUTOPAP? Does someone that settles into an almost non-existant breathing pattern "spook" these machines? What gives? Most people do go into an almost non-existant breathing pattern in a deep healthy sleep. THE BIGGEST IRONY IS THAT NOT ONLY IS IT NOT HELPING ME AT THIS TIME WHEN I MIGHT OBVIOUSLY BE PRONE TO AN OBSTRUCTIVE TYPE EVENT, IT IS WAKING ME FROM THIS LEVEL OF SLEEP AS A FUNCTION OF SIMPLY CUTTING OFF MY AIR SUPPLY. DISGUISTING......
As far as the software goes I understand its about 130 bucks and not ready to shell it out until I detemine is there is a free version out there. Whether it be a "cracked" version of the manu legit or another software alltogether that works in the environment. My laptop has a card reader built in so I am dying to get going here...
I still dont entirely gather what is going on here, but I am not spring chicken so here goes. YOU are a disgruntled DME rep who is sick and tired of the BS associated. The woman with the cat as an avatar is clearly a doc in the field. You all sit out here like a forum designed to help, YET YOU KEEP CLOSED MOUTHS???? She clearly was judging me from a clinical standpoint, scrutinous, and half convinced I have done something wrong. YOU may even own a DME as would explain the attitude. Well, sh1T or get off the pot.
I have CLEARLY been suffering NEEDLESSLY... I CANT WAIT TO FIND OUT IF MY UNIT WAS ON A LIST OF RECALLS WHEN THEY SOLD IT TO ME. What ever I can dig up will be passed to the right people till they are sick of my voice.... When I told you people my machine was shutting off, I was not making it up!!! I cant tell you the nights I have been awakened partially suffocating only to try to quickly breath hard through my nose to kick start the little bastard. The fact that this is occuring when I am breathing at my slowest rate would indicate that it is indeed failing me at my most critical times!!!!! I AM NOT ATTACKING THE FORUM WITH THESE STATEMENTS,, I AM TRYING TO POINT OUT THAT THERE ARE APPARENTLY FUNDAMENTAL PROBLEMS WITH THE MOST PRIFITABLE PROVIDER IN THE INDUSTRY. I CANT IMAGINE HOW MANY PEOPLE HAVE RECEIVED A MACHINE WITH THIS ISSUE AND GIVEN UP BECAUSE OF IT......... I can probably assume that the manufacturer is aware of the problems and is providing incentive for the DMEs to go ahead and move them and not return them... Thats pathetic and criminal behavior.... THEY SHOULD ALL BE RECALLED FASTER THAN TOYOTAS CONSIDERING THE IMPLICATIONS. This is just a fine example of the most powerful entitiy in US history, and how much more protected they are than even MAJOR US COPORATE AS A WHOLE...
I am no newbie to the forum environment. You people all sit back and watch me sing whilst you say NOTHING!!!!!!!!!!!. "Search the achives"?? Why when you already know the answer and just refuse to tell me? THE MACHINES HAVE SERIOUS PROBLEMS.!!!!! CLEARLY you have an interest, but the fundamental good nature of your being that also posesses you to be here supercedes. The problem is that only those really interest or intelligent enough to put 2 & 2 together can profit by the limited amount of info you give.... Why wont you answer the last two questions I posted.??? Its because you are indeed still victims of the almighty $$$.
For your information, I put the machine in straight up CPAP mode last night, and regardless of the fact that I probably could have benefited more from a properly functioning APAP, I woke up today refreshed like I cant remember. I also experienced a range of other interesting health related positives associated with corrections to the problems the machine in its self has created. I will save that information for a better day.... Perhaps one when you people actually decide to be truthful.
I have not decided if I am going to go straight to the DME or the sleep docs first. One thing is for sure...... I am glad I withheld the 500 bucks from them as else I would not have a leg to stand on. Either way they will both get what they deserve. The doc being the one who will get the information that this machine is crap, and probably half her patients are suffering. Actually, she may even already know this considering her $$ return rate. And thus adding to the issue. I would really fear finding this out, so I will probably let the DME have it first. I just hope the crooked bastards dont erase the card.
Who is funding this site I WONDER?????
If all you people protecting the medical industry would realize that you are just slaves to their malevolent $$ wills, you might stop assuming in their favor so much..... This site is CLEARLY not in the interest of the common folk. If it were you would have been able to immediate read my first post and say, "oh, you got a messed up machine, go raise hell and return it". Instead you remain vaige, scutinous, and even accusatory......
A little REAL HELP WOULD BE APPRECIATED NOW. Or did I simply come to the wrong place???
I understand I have a good machine "theoretically", and if it worked.......... Craigslist is for pedifiles and porn addicts thank you....
You mentioned split night mode. Well thanks again, I guess.... DO I REALLY SEEM THAT INCAPABLE OF GETTING A JOB DONE????? No, it is not is split night mode.
"breathing pattern"... Is there an issue with my breathing pattern as it relates to AUTOPAP? Does someone that settles into an almost non-existant breathing pattern "spook" these machines? What gives? Most people do go into an almost non-existant breathing pattern in a deep healthy sleep. THE BIGGEST IRONY IS THAT NOT ONLY IS IT NOT HELPING ME AT THIS TIME WHEN I MIGHT OBVIOUSLY BE PRONE TO AN OBSTRUCTIVE TYPE EVENT, IT IS WAKING ME FROM THIS LEVEL OF SLEEP AS A FUNCTION OF SIMPLY CUTTING OFF MY AIR SUPPLY. DISGUISTING......
As far as the software goes I understand its about 130 bucks and not ready to shell it out until I detemine is there is a free version out there. Whether it be a "cracked" version of the manu legit or another software alltogether that works in the environment. My laptop has a card reader built in so I am dying to get going here...
I still dont entirely gather what is going on here, but I am not spring chicken so here goes. YOU are a disgruntled DME rep who is sick and tired of the BS associated. The woman with the cat as an avatar is clearly a doc in the field. You all sit out here like a forum designed to help, YET YOU KEEP CLOSED MOUTHS???? She clearly was judging me from a clinical standpoint, scrutinous, and half convinced I have done something wrong. YOU may even own a DME as would explain the attitude. Well, sh1T or get off the pot.
I have CLEARLY been suffering NEEDLESSLY... I CANT WAIT TO FIND OUT IF MY UNIT WAS ON A LIST OF RECALLS WHEN THEY SOLD IT TO ME. What ever I can dig up will be passed to the right people till they are sick of my voice.... When I told you people my machine was shutting off, I was not making it up!!! I cant tell you the nights I have been awakened partially suffocating only to try to quickly breath hard through my nose to kick start the little bastard. The fact that this is occuring when I am breathing at my slowest rate would indicate that it is indeed failing me at my most critical times!!!!! I AM NOT ATTACKING THE FORUM WITH THESE STATEMENTS,, I AM TRYING TO POINT OUT THAT THERE ARE APPARENTLY FUNDAMENTAL PROBLEMS WITH THE MOST PRIFITABLE PROVIDER IN THE INDUSTRY. I CANT IMAGINE HOW MANY PEOPLE HAVE RECEIVED A MACHINE WITH THIS ISSUE AND GIVEN UP BECAUSE OF IT......... I can probably assume that the manufacturer is aware of the problems and is providing incentive for the DMEs to go ahead and move them and not return them... Thats pathetic and criminal behavior.... THEY SHOULD ALL BE RECALLED FASTER THAN TOYOTAS CONSIDERING THE IMPLICATIONS. This is just a fine example of the most powerful entitiy in US history, and how much more protected they are than even MAJOR US COPORATE AS A WHOLE...
I am no newbie to the forum environment. You people all sit back and watch me sing whilst you say NOTHING!!!!!!!!!!!. "Search the achives"?? Why when you already know the answer and just refuse to tell me? THE MACHINES HAVE SERIOUS PROBLEMS.!!!!! CLEARLY you have an interest, but the fundamental good nature of your being that also posesses you to be here supercedes. The problem is that only those really interest or intelligent enough to put 2 & 2 together can profit by the limited amount of info you give.... Why wont you answer the last two questions I posted.??? Its because you are indeed still victims of the almighty $$$.
For your information, I put the machine in straight up CPAP mode last night, and regardless of the fact that I probably could have benefited more from a properly functioning APAP, I woke up today refreshed like I cant remember. I also experienced a range of other interesting health related positives associated with corrections to the problems the machine in its self has created. I will save that information for a better day.... Perhaps one when you people actually decide to be truthful.
I have not decided if I am going to go straight to the DME or the sleep docs first. One thing is for sure...... I am glad I withheld the 500 bucks from them as else I would not have a leg to stand on. Either way they will both get what they deserve. The doc being the one who will get the information that this machine is crap, and probably half her patients are suffering. Actually, she may even already know this considering her $$ return rate. And thus adding to the issue. I would really fear finding this out, so I will probably let the DME have it first. I just hope the crooked bastards dont erase the card.
Who is funding this site I WONDER?????
If all you people protecting the medical industry would realize that you are just slaves to their malevolent $$ wills, you might stop assuming in their favor so much..... This site is CLEARLY not in the interest of the common folk. If it were you would have been able to immediate read my first post and say, "oh, you got a messed up machine, go raise hell and return it". Instead you remain vaige, scutinous, and even accusatory......
A little REAL HELP WOULD BE APPRECIATED NOW. Or did I simply come to the wrong place???
jules wrote:I suggest you scour craigslist and garage sales and get the oldest most archaic machine you can find with NO data and NO exhale relief and use it. Perhaps then you can get adequate treatment and then read about the different capabilities of your current machine.
We aren't a DME. We don't have the technology to diagnose what is or isn't wrong with your machine.
As I suggested above get the software and post a screen shot showing what is happening and perhaps we can help you. I would be concerned you aren't in a split night mode. But until then, follow the suggestion I have a few lines above.
If you still feel your machine is shutting off in error, demand your DME replace it.
If you feel your breathing pattern is the problem ask your sleep doctor for a different style machine based on that.
As I suggested earlier on this thread there have been problems reported here before with m series machines shutting off. Perhaps you need to search the forum archives about this.
NOTE: Oh the DME does bill your insurance that much even though the online price is lower. Take that matter up with them not us. We are in sympathy with your concerns but are powerless to solve it for you.
Re: Hello, New here, CPAP Issues
You are not sorry. You are on a mission to protect you master. I did not use any unacceptable terms. I have other choices, believe me.
I gave you more than enough information. You heard and read what you wanted to. THAT IS CLEAR.
"rare". I doubt it. It is probably rare that someone as young and intermittently affected as myself gets one and actually catches it in the act. I will give you that.....
You have done nothing but judge me as some kind of idiotic ignorant "tweeker" from the start. The fact that I stated I had to turn it up to 14 when they prescribed 8-10 should have been enough to tell you there was a problem from the get go. Dance, Dance, beat around the bush... You are also a slave to the $$medical$$ industry.. Pathetic....
I gave you more than enough information. You heard and read what you wanted to. THAT IS CLEAR.
"rare". I doubt it. It is probably rare that someone as young and intermittently affected as myself gets one and actually catches it in the act. I will give you that.....
You have done nothing but judge me as some kind of idiotic ignorant "tweeker" from the start. The fact that I stated I had to turn it up to 14 when they prescribed 8-10 should have been enough to tell you there was a problem from the get go. Dance, Dance, beat around the bush... You are also a slave to the $$medical$$ industry.. Pathetic....
Julie wrote:Sorry if I implied it either didn't happen, or that it was your fault. On the other hand, I also think you could turn it down a notch - your attitude, not the machine. It's possible that you got a machine with a problem, but as that is pretty rare, it is also possible that the technician either didn't check that it was functioning properly, or that a feature was not on that should have been, or that there was a misunderstanding about how something worked. In any case, these things happen (misunderstandings, human error, whatever) but I'm not sure they are reasons to spew language like you did all over the page when we're just trying to help.
Your notes have been quite long and not easy to get through as you've packed a lot of detail into them, not all of it terribly clear, but we've tried to make sense of them for your sake. I hope you got rid of your 'steam' in that note, and will try to get the problem(s) fixed one way or another. Please remember the DME's, for all that we may not think well of them a lot of the time, are still people doing a job, whether their ability or intentions are the best or not, and like anyone else who may be rushed to begin with, can easily overlook or miss out on little things when trying to work. That does not make them monsters, or terrible human beings, just human, not always the brightest, but then maybe not always the best paid.
If you want to keep writing (notes that address one problem at a time will probably elicit effective responses) then be nice. We are ALL tired and trying to find answers here, and no one person here (or in a DME or doctor's office) is necesssarily responsible for any one problem at any time - there are often a long line of contributing factors which it's not always reasonable to trace back each and every time a machine or anything else comes in front of them.
Re: Hello, New here, CPAP Issues
Dude...what is your problem. Relax.
Take charge of your therapy and you will be fine. Most everyone here is just a regular Jane and Joe helping each other out . I have the M series and it works flawless ... if it did not I would be retuning it. I also shelled out around 150. for software for my own peace of mind
Take charge of your therapy and you will be fine. Most everyone here is just a regular Jane and Joe helping each other out . I have the M series and it works flawless ... if it did not I would be retuning it. I also shelled out around 150. for software for my own peace of mind
"If it weren't for electricity we'd all be watching television by candlelight. "
.............Kate Hepburn
.............Kate Hepburn