Being kept alive by artificial means.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Juliebove
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Re: Being kept alive by artificial means.

Post by Juliebove » Thu Apr 23, 2009 3:37 pm

tattooyu wrote:Darth CPAP!

I know what you are feeling. I am only 36 and just beginning to accept the pains of getting older. I'm hoping that CPAP will help me get off my BP meds and improve my overall health. Maybe it'll do the same for you? How long have you been on CPAP therapy?
I've only been on CPAP for just over a month. I don't know about getting off my BP meds. I was on a Beta Blocker since about age 25. We now know they can cause diabetes in those that are susceptible to it. Alas I didn't know I was. There are plenty of diabetics on both sides of the family but none admitted to it until I said I had it. I guess there used to be a bad stigma to diabetes. And perhaps there still is in some circles.

I now have a kidney problem so my BP med was pushed up to the max. For a while I was having horrid dizzy spells because of the extreme low BP caused by so many meds.

The guy at the sleep lab said the CPAP machine would take the strain off of my kidneys. I had never heard this before and am not really sure it is true.

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Re: Being kept alive by artificial means.

Post by Juliebove » Thu Apr 23, 2009 3:39 pm

nocreek1 wrote:I call all of this that I have "the disease of the day". Each time I have a doctor app't there is something new that has attacked my body. Guess I can not really complain as I lived 72 years without to much wrong and was still riding my horse. Now at 76 I just try to overlook my limitations and go with the flow. You have to have these aches and pains in order to appreciate what others are going through. I feel that everything happens for a reason.
If not for modern medicine I would not be here and am sure that there is a reason for my still limping around this world.
What a beautiful sunny day we are having today and spring is really taking hold-so all is well in the world.
I guess it is understandable to have a lot wrong as we age. Part of the thing that bugs me is when people in the medical profession tell me I am too young to have ____ wrong with me. That doesn't help at all!

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Re: Being kept alive by artificial means.

Post by Juliebove » Thu Apr 23, 2009 3:50 pm

Paul56 wrote:
Juliebove wrote:Does anyone else feel this same way? First it was the high BP. I take pills for that. Then it was the diabetes. More pills and more recently two kinds of insulin. Then the swelling and the kidneys. More pills for that and stockings for the venous insufficiency. Then a pill so my food moves through me and doesn't get stuck in my stomach. And another pill for the reflux that probably comes with that. And now a machine when I sleep. I'm begining to feel like I'm not really human any more.
This all means that you are human... like the rest of us.

I will speak for myself here... losing weight can make a tremendous different in how one feels and treatment needed for ailments. However, I have no personal expectations that losing weight will make much if any difference with the apnea.

Your apnea, blood pressure and diabetes are all inter-related. Get that apnea under control and your blood pressure may drop some on its own... which in turn will be good for preserving the function of your kidneys.

Above all else... keep a positive attitude and always be doing something good for your health.
I have lost and regained the weight so many times I can't begin to tell you. For years, I had a thyroid problem. I would be hypo. Then hyper. Then hypo. It didn't seem to matter what I ate or didn't eat as far as the weight gain/loss occurred. When I was pregnant, I got yelled at by my Dr. for losing 10 pounds in a week. Funny thing is, I was on a diet given to me by the dietician. I stuck to it to the letter.

Then after I had the baby, I began reading about soy and how it affects the thyroid. I had been eating a lot of soy, believing it was healthy. I pretty much cut out all soy. I will still have soy lecithin and I know in restaurants they often use soybean oil. But no more Edammame. No more soy protein. I also cut back on goitrogenic foods. Suddenly my thyroid was normal and I was off the meds!

I lost weight, then it slowly came back on, despite still sticking to the diet given to me by one of the many dieticians. The only variant was my exercise. Because of my many medical problems, I wasn't always able to exercise. But again this didn't seem to matter in terms of my weight loss. The only time I've noticed it helping was when I was seriously overdoing it to the point of injury. I mean several hours a day of dancing and using weights. This was before I was disabled.

I cut out lunch. Because of the gastroparesis, I am rarely hungry. So this was easy to do for me. Finally the weight came off. My Drs. were happy. They didn't seem to care how I lost the weight, only that I did.

But my blood sugar got worse out of whack than it already was. My Dr. kept not wanting to give me insulin because he said i would gain weight on it. But it finally got to where there was no other choice.

I was chastised this time by the dietician and the diabetic nurse because they said skipping lunch was playing heck with my blood sugar and I had to start eating it again. So... Up went my weight again!

I keep thinking there must be some underlying cause for my being overweight, but we just haven't found it yet. I certainly don't eat too much food. Or the wrong foods. When I dine out, I rarely order from the menu. This is also partly due to my food allergies. We dine at a select few places and they make special meals just for us. Daughter also has food allergies. Often at social events, I will bring my own food. I see so many people using such things as an excuse to eat badly.

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Re: Being kept alive by artificial means.

Post by Juliebove » Thu Apr 23, 2009 3:52 pm

DreamStalker wrote:
Juliebove wrote:Does anyone else feel this same way? First it was the high BP. I take pills for that. Then it was the diabetes. More pills and more recently two kinds of insulin. Then the swelling and the kidneys. More pills for that and stockings for the venous insufficiency. Then a pill so my food moves through me and doesn't get stuck in my stomach. And another pill for the reflux that probably comes with that. And now a machine when I sleep. I'm begining to feel like I'm not really human any more.
Yep. Some also say that you are what you eat. I'm gussing that you eat too many carbs and artificial foods based on the symptoms you describe.
Then you'd be wrong. I tried a raw vegan diet, but it wasn't working for me because of the gastroparesis. Too much fiber in it. And I find that I go anemic if I don't eat meat at least twice a week. So I do the best I can. Eat as much raw food as I can, and many of my meals are vegan. I buy very little in the way of processed foods. I can't really, because of my food allergies.

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Re: Being kept alive by artificial means.

Post by kteague » Thu Apr 23, 2009 5:51 pm

Wish I had a dollar for every time I've thought, "Who is this strange, strange woman who is masquerading as me?" (strange as in unfamiliar, and strange as is odd) Maybe the money would be enough to pay the ransom for her to release the missing Kathy.

Seems an unfair dilemma - I'd feel better if I did certain things, and I'd do certain things if I just felt better. I wish I could find the superwoman in me who would plow forward regardless of how I feel or what hurts. I'm working on it. Baby steps.

My late mother left me a legacy I have yet to live into. After her massive stroke, she was nothing short of inspirational. Nothing was easy for her, but for about 10 years she fought to maintain independent living. When a facility became necessary her last 3 years, the staff's biggest problem with her is she wouldn't let them make her life easier. They'd find her dressed in her wheechair and her bed made in the morning. (Hope I never have to put a bra on with one hand!)

In recent times I have been spending time with a terminally ill dear friend who is also 57. She broke the news of her diagnosis 3 years ago at her birthday party, with an air of celebration for all that was yet to be lived. See, what makes her feel better is for others to feel better. She has managed to eek every ounce of living out of her waning life, putting healthy folks to shame in her pursuit of appreciating every little thing she can still do. Even her daily bath is almost ceremonious.

At her request, last week we held a "Celebration of Life" at her church. A bit unconventional, with her still with us, but she didn't want to miss the presence of old friends, hearing her favorite songs, and smelling the beautiful flowers. But it wasn't just for her, it was her way of preparing us to let her go, knowing the pain would be tempered by the recent warm memories of such a special time. Supported by a family member's arm, it appeared she was just being escorted to the front row, elegant in her favorite color purple and a large Sunday-go-to-meeting hat. A shoutin' good time was had by all, even through the the floodwaters of sadness on our cheeks.

While at her home yesterday she challenged me. Her wish for my life is that I find the absolute best degree of health there is to be had for me. She wants me to do the hard things (healthy food, exercise) because they are the best for me. How can I not honor her wishes? I may for life need meds and machines, but even so, I must find and live my BEST life. Don't know exactly what that looks like at this point, but it sure doesn't look like the life this stranger is living. Will let you know when I find myself.

Kathy

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Re: Being kept alive by artificial means.

Post by DreamStalker » Thu Apr 23, 2009 6:01 pm

Juliebove wrote:
DreamStalker wrote:
Juliebove wrote:Does anyone else feel this same way? First it was the high BP. I take pills for that. Then it was the diabetes. More pills and more recently two kinds of insulin. Then the swelling and the kidneys. More pills for that and stockings for the venous insufficiency. Then a pill so my food moves through me and doesn't get stuck in my stomach. And another pill for the reflux that probably comes with that. And now a machine when I sleep. I'm begining to feel like I'm not really human any more.
Yep. Some also say that you are what you eat. I'm gussing that you eat too many carbs and artificial foods based on the symptoms you describe.
Then you'd be wrong. I tried a raw vegan diet, but it wasn't working for me because of the gastroparesis. Too much fiber in it. And I find that I go anemic if I don't eat meat at least twice a week. So I do the best I can. Eat as much raw food as I can, and many of my meals are vegan. I buy very little in the way of processed foods. I can't really, because of my food allergies.
Well I did guess ... that is why I have only been to Vegas once and I did not gamble while I was there

In any case, I was referring to carbohydrates not vegan diet. If you are overweight (just guessing again so not saying you are) then that might explain the link with OSA and diabetes ... hence my guess regarding high carb diet. So if you limit meats (protein), then there is not much left to eat except carbs and fats ... see what I mean? Carbs and fats are not good if one is overweight (again, not saying YOU are but there are others who are ... like me).
President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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Re: Being kept alive by artificial means.

Post by Juliebove » Thu Apr 23, 2009 8:57 pm

DreamStalker wrote:
Juliebove wrote:
DreamStalker wrote:
Juliebove wrote:Does anyone else feel this same way? First it was the high BP. I take pills for that. Then it was the diabetes. More pills and more recently two kinds of insulin. Then the swelling and the kidneys. More pills for that and stockings for the venous insufficiency. Then a pill so my food moves through me and doesn't get stuck in my stomach. And another pill for the reflux that probably comes with that. And now a machine when I sleep. I'm begining to feel like I'm not really human any more.
Yep. Some also say that you are what you eat. I'm gussing that you eat too many carbs and artificial foods based on the symptoms you describe.
Then you'd be wrong. I tried a raw vegan diet, but it wasn't working for me because of the gastroparesis. Too much fiber in it. And I find that I go anemic if I don't eat meat at least twice a week. So I do the best I can. Eat as much raw food as I can, and many of my meals are vegan. I buy very little in the way of processed foods. I can't really, because of my food allergies.
Well I did guess ... that is why I have only been to Vegas once and I did not gamble while I was there

In any case, I was referring to carbohydrates not vegan diet. If you are overweight (just guessing again so not saying you are) then that might explain the link with OSA and diabetes ... hence my guess regarding high carb diet. So if you limit meats (protein), then there is not much left to eat except carbs and fats ... see what I mean? Carbs and fats are not good if one is overweight (again, not saying YOU are but there are others who are ... like me).
Prior to diabetes, I was on a vegetarian diet. Yes, it was high in carbs. Mainly beans and rice, beans and pasta. Popcorn. All sorts of vegetables. Some eggs and cheese. But overall very low in fat. I pretty much followed Ornish.

I don't like fruit so usually don't eat it. We do have two pear, two apple and a cherry tree. Did have a strawberry patch until husband destroyed it, twice. I replanted it once, but the second time he filled it in with rocks, so I gave up. In season I might eat a small amount of fruit if we have excess.

A few years ago I was diagnosed with allergies to almonds, dairy and eggs. Suddenly I was no longer sick all the time. Prior, I had chronic ear and sinus infections and was often sick to my stomach. This is when I turned to the raw vegan diet after reading about it and realizing that I was already practically eating that way.

These days I am back to eating beans for protien as well as nuts. I try to get coconut oil into my diet and also use olive oil for cooking. I also eat olives. I've seen many dieticians and all said I was not eating enough fat. So I've just loosened up on that. Rather than add a dairy free margaine to my vegetables as they suggested (yuck!), I just try to eat foods that have natural fats in them.

The meats that I do eat are lean ground beef, chicken breast, turkey breast and occasionally bacon. I do eat tuna on occasion, but dislike all other fish. I have managed to eat very small amounts (about 1/8 of a cup) of finely minced roast beef. It did cause me great trouble prior in the digestion department.

For a while there I ate giant salads with all sorts of vegetables, some beans nuts and olives and no dressing. Hate dressing! After spending the Easter before last wondering if I would ever be able to leave my parent's house due to throwing up again and again, that was the last big salad I've had.

Once in a while I allow myself the salad bar at the local Central Market but I was shocked at how expensive that was, so mostly I don't do that any more. They do have a nice summer concert series that daughter and I were going to. We'd get the salad bar, some hummus and sit out to enjoy it. Most people take advantage of the cheap food they offer outdoors which is often a BBQ but I've spoken with the chef and it just won't work with our food allergies. They are good to list ingredients on their salad bar and prepared foods though so we feel safe to eat that stuff.

I do know beans contain carbs. But they are also high in fiber and oddly, fiber that I can digest. For years I used to weigh and measure my food to make sure I was getting enough carbs but not too many carbs. During the awful time period when my thyroid was out of whack, my blood sugar would go hypo at the drop of a hat. Miss a meal by 10 minutes, take one extra trip up and down the stairs, etc. I couldn't even get all of my groceries up the stairs without having to pause upstairs for candy and a 15 minute rest. Our garage was downstairs and the kitchen upstairs. Thankfully we no longer live there!

Eventually I learned how much food my various bowls and plates hold. So it was no longer necessary to weigh or measure the food. Dining out can be trickier if we try a new place or a new food. But for the most part I am very good at estimating how many carbs are on my plate. Now that I am on insulin, it is vital that I know the exact amount of carbs I am eating so I can inject the right amount of insulin. And I am restricted in the amount of insulin I can use due to the way my prescription is written. Yes, I suppose I could drive to Canada, buy some insulin without a prescription and shoot a lot of it to go hog wild on the carbs. But I don't. I also realize just how much of a problem hyperinsulemia is and I don't want that.

I also think most people would consider to me a Debbie Downer when it comes to food. I have taken my nephews and their friends to an amusement park and insisted they eat vegetables and fruit and that they had eaten far more junk than they should have. I didn't get anywhere with that because my husband was there and let them have whatever they wanted. When asked what kind of cake I want for my birthday, I always say, "No cake!' I hate cake. Always have. In fact it rather annoys me to see people eating that stuff around me on what is supposed to be my day. But they always insist on the cake and get what they want. Mostly I am a big veggie pusher and believe that everyone eat foods from all colors of the rainbow daily.

I only hope that my daughter eats all those veggies I put in her lunch each day. She eats them at home, but I've been to her school and I've seen how much food the kids throw away. It's always the vegetables. I don't understand it. Vegetables have always been my favorite food. I can remember at holidays, my parents always left out the lazy Susan with the crystal divided dish on it with the remaining raw veggies. Come dessert time, they'd push it in front of me and I'd be happily munching away on my favorite foods while they ate dessert. They couldn't understand it. And I couldn't understand why they'd want to eat the junk.

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Re: Being kept alive by artificial means.

Post by Leonbergergirl » Fri Apr 24, 2009 1:51 pm

I am getting confused: protein is bad, carbohydrates are worse, fat makes you, well, fat.
What else is there to eat?

Fortunately, in our house with two Leonbergers who together weigh 325 pounds, we
consider fur one of the major food groups. LOL

Leonbergergirl

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Re: Being kept alive by artificial means.

Post by Catnap » Fri Apr 24, 2009 2:07 pm

Leonbergergirl wrote: Fortunately, in our house with two Leonbergers who together weigh 325 pounds, we
consider fur one of the major food groups. LOL

Leonbergergirl
When my two Cardigan Corgis blow their coats twice a year (like right now, for instance), it's the same situation here. The rest of the year it's just more of a condiment. I've noticed I can even find it in the refrigerator at times, just like the other condiments!

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Re: Being kept alive by artificial means.

Post by roster » Fri Apr 24, 2009 3:02 pm

Leonbergergirl wrote:I am getting confused: protein is bad, carbohydrates are worse, fat makes you, well, fat.
.......
All three are healthy and the body needs all three. The ratio of protein/carbohydrates/fat is important and so is the volume of daily intake.

Most people who are obese have eaten a high ratio of carbohydrates and a total volume of food that is too large.

Using myself as an example, I am very active and would find it difficult to gain a lot of weight if I ate mostly fat and protein.

On the other hand, even staying active I could gain a lot of weight if I ate a high carbohydrate diet.

It is not the filet of beef and the butter and sour cream on the potato. It's the baked potato, the rolls, the sugary salad dressing, and the sugar in the iced tea that pile the pounds on.
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Re: Being kept alive by artificial means.

Post by WearyOne » Fri Apr 24, 2009 5:52 pm

Brushy Hollow Bill wrote: Maybe this will help you feel like a human again..It helps me when I get down.
It's a Wonderful World.
https://www.youtube.com/watch?v=og5_YF1NcXE

Thanks from me, too.

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Re: Being kept alive by artificial means.

Post by georgepds » Sat Apr 25, 2009 10:13 am

I'm in the same boat as you.. pills and cpap.

"I'm begining to feel like I'm not really human any more."

I'm beginning to feel that I'm not young anymore. Some of it is age, and some of it is neglect, at least for me. To stay in shape when I was young, I'd walk all summer work the highbar, and lift weights till I was pumped. If I did a third of that, I'd probably not need so many pills. Those days are probably over, but I could do much better about maintaining condition.

It's not the pills and cpap so much as the lack of bounce that bugs me. I once slid off the side of the Alps in Austria, just outside of Innsbruck, about a thousand foot slide on rock shale. When I got to the bottom of the run, I just bounced up, cleaned off the surface cuts, and looked for the low road back to Innusbruck.

The last time I tripped over a curb, I broke my wrist . The time before that, I ripped the meniscus in my knee. I really miss the bounce.

I'm all for the pills and cpap to help me keep going, but I believe I can do a much better job at staying in condition, and avoid some of the problems. So, yes, like you, I'd rather not have the mechanical / medical aids in my life.... but what I really miss is bounce.

As to how to get through it... I just look it like brushing my teeth. Brush my teeth, pop the pills, put on the mask and it's off to sleep.

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Re: Being kept alive by artificial means.

Post by Juliebove » Sat Apr 25, 2009 10:19 pm

georgepds wrote:I'm in the same boat as you.. pills and cpap.

"I'm begining to feel like I'm not really human any more."

I'm beginning to feel that I'm not young anymore. Some of it is age, and some of it is neglect, at least for me. To stay in shape when I was young, I'd walk all summer work the highbar, and lift weights till I was pumped. If I did a third of that, I'd probably not need so many pills. Those days are probably over, but I could do much better about maintaining condition.

It's not the pills and cpap so much as the lack of bounce that bugs me. I once slid off the side of the Alps in Austria, just outside of Innsbruck, about a thousand foot slide on rock shale. When I got to the bottom of the run, I just bounced up, cleaned off the surface cuts, and looked for the low road back to Innusbruck.

The last time I tripped over a curb, I broke my wrist . The time before that, I ripped the meniscus in my knee. I really miss the bounce.

I'm all for the pills and cpap to help me keep going, but I believe I can do a much better job at staying in condition, and avoid some of the problems. So, yes, like you, I'd rather not have the mechanical / medical aids in my life.... but what I really miss is bounce.

As to how to get through it... I just look it like brushing my teeth. Brush my teeth, pop the pills, put on the mask and it's off to sleep.
My injuries are generally stupid ones. Actually i haven't had too many of late, mainly because I move too slowly and have to look down at my feet when I walk!'

A few years ago, I took my daughter to So You Think You Can Dance when they were touring. We were sitting in the back row of the lower tier at the venue. When intermission came, we attempted to get out to use the restroom. I had to get past a few seats to get to the end of the aisle, but there were some girls sitting there holding up a giant sign for one of the dancers. They wouldn't move and I couldn't see well. I thought I was at the end of the aisle but it turns out I wasn't. I wound up going forwards into the seats in front of us. Luckily I didn't land exactly on anyone but I did fall onto my hand onto the hard back of a seat and I got a huge painful bruise. At least we weren't there to see So You Think You Can Walk!

in High School I managed to fall off a curb and sprain my ankle.

In Jr. High, I broke a toe going around the kitchen corner. My baby toe got caught on the corner of the wall and snapped. I also sprained my middle finger getting it caught on the arm of the couch. I had to have it splinted and had a mini golf date. I couldn't bend that finger around the club.

I guess another reason my accident seem like stupid ones is that I am quite cautious by nature and don't generally get involved in a lot of sports of other things that might be dangerous. You couldn't pay me to go skiing or skating.

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