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Re: Questions about study and need for cpap
Posted: Sun Jun 01, 2014 7:12 pm
by HealthyandHopeful
I thought the lady at the sleep place said I could get the S9 Elite with my prescription but I need to call and find out for sure. When I talked to her I didn't realize it was up to the doctor to specify. But according to what I have read on here that is a good machine. But it doesn't adjust automatically. I'm just wondering if the prescription is for that machine if I should just take it. I'll know more when I call in the morning. I am leaving town on Friday and it would be nice to have my machine before I go. But I guess waiting and going without for a week is better than getting a machine I would rather not have in the long run. Will let y'all know what I find out. Thanks!
Re: Questions about study and need for cpap
Posted: Mon Jun 02, 2014 6:38 pm
by HealthyandHopeful
Todzo wrote:HealthyandHopeful wrote:
One thing I failed to mention is that I did lose weight 2 years ago and have kept the weight off. I lost almost 50 pounds and am at a healthy weight now. I am even a health coach (thus my username) helping others to do the same. That is another thing that made this so shocking to me, although it shouldn't have been because my husband has always been at a healthy weight and has sleep apnea himself. I have clients who are losing weight and looking forward to shedding their CPAP machines, so to find out I needed one myself, almost made me feel like a failure. I didn't eat healthy in the past but I do now and have for a while now.
Thanks again so much!!
So I have noticed that many who train do seem to be getting sick. In spite of healthy body weight, lean muscle ratios to envy, and very active lifestyles they still get sick.
Well I know from doing a bit of training myself that you end up very hungry for protein. I eat more meat when I train. I am likely to use a protein supplement when I train. In the world of meat and protein supplements of today I am also likely to take in more chemicals used in the foods supplied to the poor critters while they were alive not to mention the chemicals put directly into them to get them to grow very fast and stay a bit less sick while slogging through their own manure[3]. The chemically farmed foods, which are not always the natural choice for the given animal, also drastically change the microbial population which lives inside every animal (not to mention the antibiotics used!!) so when the animal meat gets to us it has a much much different microbial content which is why we need to be so careful about how we cook the meat.
I also find myself bathing more often. I use the most basic simple soap I can find and rinse about as often as I use soap. I want to help my symbionts inside and outside[2].
T. Colin Campbell spent a lifetime in nutrition research only to finally see how our reductionist ways prevent our research from being effective to find out what will work for us in terms of diet and exercise[1]. I believe I would have done much better had I learned to eat better and move better at a younger age. Even if I had I can also see that I would still be learning how. It needs to be a life long endavor.
[1]
http://www.amazon.com/Whole-T-Colin-Cam ... B00APDFVLU
[2]
http://www.amazon.com/Honor-thy-Symbion ... B00ANVNQA2
[3]
http://www.amazon.com/Food-Inc-Eric-Sch ... B0027BOL4G
I am a health coach for a certain program that emphasizes all aspects of health -- food, sleep, exercise, healthy mind, etc. I'm not a trainer. I see people get healthy. Thanks for this advice, just doesn't apply to my situation! I hope this doesn't sound rude!
Re: Questions about study and need for cpap
Posted: Mon Jun 02, 2014 6:51 pm
by HealthyandHopeful
HealthyandHopeful wrote:Hi,
So glad to find a place to come ask questions! I never thought I had any kind of sleep apnea problem! I have felt tired during the day for years though. I was diagnosed with adrenal fatigue about 7 years ago and took a regimen of vitamins for that. I've taken cortisol at times. I get my bloodwork checked regularly for hormones and hypothyroid. A couple of months ago my doctor said that all of my bloodword looks find and there is no reason for me to feel tired during the day, let's do a sleep study just to cover all the bases. I agreed, although I thought it would be a waste of my insurance's money (I didn't have to even pay a co-pay). The first sleep study was ridiculous and because of the circumstances, I didn't sleep there. They said the study showed I had sleep apnea, but I wasn't convinced and finally they agreed to do the study over at a better facility.
My sleep study results (copied from report, and parts in bold were bold in report):
Description of Sleep: The total recording period was 431.0 minutes. The total sleep time was 368.5 minutes with sleep efficiency of 85.6%. Sleep onset latency was 22.5 minutes. Latency to persistent sleep (10 minutes of uninterrupted sleep) was 22.5 minutes. Arousals and awakenings occurred on an average of 23.8 per hour and her sleep architecture was fragmented. She had 2.6% delta sleep. REM latency was 83.5 minutes and REM sleep was 18% of total sleep time. The total time awake after sleep onset was 39.5 minutes.
--1.8 Apneas per hour
--AHI total = 9.4 (Non-REM AHI of 1.8 ) - (REM AHI 44.2)
--In addition to the apneas and hypopneas, she had 4.4 respiratory-effort related arousals (RERAs) per hour
--RDI total = 13.8 -(Non-REM RDI of 7.0) - (REM RDI of 45.1)
She spent 10.2% or 37.5 minutes sleeping supine. The RERA events were worse when supine (RDI was 8.0 when supine). The obstructive events were worse during REM sleep (REM-AHI was 44.2). Lowest SaO2 was 79%. Her SaO2 was less than 90% for 16.6 minutes of sleep.
Diagnosis was Mild Obstructive Sleep Apnea Syndrome.
My note: I rarely sleep on my back. I don't know why I did at the study, except maybe to have part of the report show how I sleep on my back. The strange thing was that I had a really vivid series of dreams during that time on my back and even remember having a feeling like I couldn't move. Was strange.
A couple of weeks later I had the study with the CPAP. Results are as follows:
Description of Sleep: The total recording period was 414.0 minutes. The total sleep time was 351.0 minutes with a sleep efficiency of 84.8%. Sleep onset latency was 15.5 minutes. Latency to persistent (10 minutes of uninterrupted sleep) was 18.0 minutes. Arousals and awakenings occurred on an average of 9.7 per hour and her sleep architecture was fragmented. She had 4.7% delta sleep. REM latency was 116.0 minutes and REM sleep was 16.1% of total sleep time. The total time awake after sleep onset was 47.5 minutes.
CPAP Titration:
--Mask used: medium ResMed nasal mask
--Supine sleep = 0.0%
Nasal CPAP was initiated 5.0 cmH20 and titrated upwards. Various pressures were titrated and the highest pressure attempted was 7.0 cmH2O. She slept at this pressure for 161.0 minutes, 12.4% of that being in REM sleep. AHI at this pressure was 0.0.
From the charts:
CPAP at 5/0/0 I had 9 Hypopneas, and 0 of each Central Apneas, Obstructive Apneas, Mixed Apneas; so AHI was 2.8
CPAP at 7/0/0 I had 0 of any of these.
The part that really got my attention was the SaO2 level dropping to 79% even though very briefly. I even bought an oximeter to use to record my oxygen levels at night because I was skeptical. My oxygen levels on a couple of nights went only to about 87%, one night went to 79% and another night went to 67%, so I took seriously the need for the CPAP machine. I did use the oximeter the first night I had the CPAP and even though I didn't sleep well my oxygen levels stayed in the 90s. The graph comparisons were amazing.
The story of getting the CPAP machine is long and I am about to trade for a different one. But from these results, can anyone tell me if my problem is worth using the CPAP machine?
I know my results are mild, but using the CPAP is a huge decision and change for me.
Thanks for reading this and for any help that can be given!!
So, I sent my doctor an email today and told him my situation. I used some info I was given here and asked about getting a machine with the 7-12 settings (I used the wording someone advised me here to use, I just don't have it in front of me now). I also said I wanted to be able to see the data to know that it is working, because I want to be compliant. I told him about the lady at the sleep study place and the 'shady' things that happened with her. He emailed back and said that he will have a prescription ready for me to pick up tomorrow! So, I will see then what prescription he has written. I have called trying to find a different DME that accepts my insurance (United Healthcare) but have found nothing so far. I live in the Houston area, you would think there is a place here! If I have to I will go back to the place I have been using.
I'm not sure if he will give me a prescription for the autoset machine but at least I feel he will give me a prescription for the machine with data. I'm a little torn though; I know they have the S9 Elite because told me they do. But if he wrote it for the autoset, they will have to order it. That means I will go without until it comes. I can do it, I've been without for years, but I was getting used to it. I am leaving town Friday for about 10 days so I will have to wait a while if that is the case. I'm anxious to see what I will get and when! I'll be taking the one I have back either tomorrow or Wednesday.
When I told the lady I've been working with at the sleep place that I've been looking into this and asked her questions about the S9 Elite and Autoset, -- when I mentioned autoset, she said in a rude tone: "that's a whole 'nother prescription!" I just said "I know. I just wanted to see if you have it."
Anyway, hopefully soon I will have an answer. If whatever I get is a fancy machine I will be back here asking advice on how to use it! Thank you all!
Re: Questions about study and need for cpap
Posted: Mon Jun 02, 2014 8:34 pm
by tortoisegirl
Try your insurance website's search for in network DME providers (typically the search is by zip code or city). Or if you are having issues, call your insurance and ask for a list of places closest to you. I'd definitely do what you have to do to get what you want for a machine (and accessories). I'd only work with a DME you trust and is helpful. You should have options. Best wishes.
Re: Questions about study and need for cpap
Posted: Mon Jun 02, 2014 8:48 pm
by HealthyandHopeful
tortoisegirl wrote:Try your insurance website's search for in network DME providers (typically the search is by zip code or city). Or if you are having issues, call your insurance and ask for a list of places closest to you. I'd definitely do what you have to do to get what you want for a machine (and accessories). I'd only work with a DME you trust and is helpful. You should have options. Best wishes.
That is great advice, and I did that today. I talked to my insurance and they gave me a list of four DMEs in my area. Three did not work with CPAP and one required me to leave a message and they did not call me back. All had me go through hoops pressing numbers trying to get to the right person only to be told they don't do CPAP, I was on hold 17 minutes for one of them. On their website is a long list of providers. I spent quite a bit of time this morning just going through those four (I talked to my insurance and they gave me those places and numbers). I'll get my prescription tomorrow and see if the place I worked with has the machine ordered and if so I will get it there. Wish I knew what the prescription will say but I'll know soon.
Thanks for taking the time to respond! If anyone knows of DMEs in Houston who work with United Healthcare, I'd love to hear from you!
Re: Questions about study and need for cpap
Posted: Tue Jun 03, 2014 11:23 am
by sc0ttt
I just looked at my prescription - apparently my doctor's office uses a form that only lists the very best, data capable machines. So he just checks off the machine that's right, specifies the pressure and other settings, and everything else is "patient's choice". He also talked to me about changing the clinician settings myself because he knows the info is out there.

Re: Questions about study and need for cpap
Posted: Tue Jun 03, 2014 9:38 pm
by HealthyandHopeful
sc0ttt wrote:I just looked at my prescription - apparently my doctor's office uses a form that only lists the very best, data capable machines. So he just checks off the machine that's right, specifies the pressure and other settings, and everything else is "patient's choice". He also talked to me about changing the clinician settings myself because he knows the info is out there.

Wow that is nothing like my prescription. Mine was just like a prescription for medicine. He wrote CPAP (high efficacy data) with humidifier, 7-12 cm H20. That was pretty much it. It's not in front of me so that is from memory. I called the sleep place I've been using and she said to go back (I was still there) and get him to write Apap autoset and he did. I emailed it to them. They had already sent in something to insurance for preapproval (just today when I talked to her). She said that can take 72 hours. I am leaving town on Friday. She did say that I can rent the machine I am using (the brick). She said for what I have used so far they would charge me $12. But if I keep it another two weeks (the earliest I could go in) it will be $6 per day. (I have already had it two weeks tomorrow). I was going to take it back but I am noticing that I am feeling better, sleeping better and have more energy, so I am going to pay to rent it for those days. She also said that insurance may come back and require more info, they may require me to rent a machine first and then see the doctor to make sure I am compliant, she was warning me of a lot of things that might happen with insurance. She said they have the Resmed 460 (or something like that, that's what I remember) but I said I would like the S9 autoset and she said they would have to order that one if insurance approves. So, if this all works out I would get that when I come back in town.
As far as having more energy, today I really noticed for the first time! I know I have been sleeping better but haven't seen real results. Unless today was a fluke, I am feeling much better! I was gone most of the day running errands. I left around 11 am and went to the doctor's office, cleaners, anyway, without more details, I went to 9 different places total, one being some shopping at Sam's that took an hour and a half. I came home and noticed that I wasn't worn out. I usually would come and just plop. I did rest but it was not like before. I ended up doing a project -- going through some old cassette tapes and sorting. I was on my feet and bending over, etc. Also, this is Monday. Sunday is such a busy day, with church twice and other things, that Monday is usually pretty much a wash for me. I am cautiously optimistic. I am afraid to think this is how it will be, but I am also excited at the possibility! Thankful to God for the change so far!
Re: Questions about study and need for cpap
Posted: Tue Jun 03, 2014 9:54 pm
by Pugsy
HealthyandHopeful wrote: I said I would like the S9 autoset and she said they would have to order that one if insurance approves.
This always gripes my butt when I hear this. "got to check to see if insurance will pay for the Autoset/APAP " or any other model above the brick.
The insurance companies pay by HCPCS billing code and the code for the brick, the full data cpap (model 460 she mentioned) or the S9 AutoSet APAP machine...are ALL the same HCPCS billing code E0601. If insurance will pay for a brick they will pay for the Autoset. Duh...
You need to check with your insurance to find out exactly how they do things in terms of rent to own for so many months and any compliance requirements or do they just buy it outright. Some do and some don't...the rent to own capped rental can be anywhere from 30 days to 13 months. It varies widely with insurance companies. If medicare..it's 13 months. Don't rely totally on what the DME tells you. They don't always get the details correct.
Trust but verify if you must trust....always verify.