FlowLimitation is killing my treatment

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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DreamStalker
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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 10:52 am

Pugsy wrote:
DreamStalker wrote: I think the body can adapt to a point. I used to think I needed humidity which does not really makes sense since I used no humidity to sleep before taking up CPAP therapy. I have since weaned myself off all humidity and now just use straight up CPAP mode with no heated or passive humidity (prepared for the big collapse ).
I hear you and I understand your reasoning but I remember what happened to me back in June 2009 when Den told me to reduce the humidifier setting and I tried it...set it to 1. It took me 3 days for my nasal mucosa to forgive me. I had the most awful symptoms and was totally miserable. Symptoms repeated themselves on a couple of other occasions when I forgot to add water to the tank and pretty much used it dry all night. It wasn't a fluke.

You know how guys cringe and instinctively close their legs to protect their private parts when they see someone get hit in their private parts? That's my reaction when I read about people not using a humidifier. I cringe but I know that it works for them and that's fine but I know that it won't work for me. I would go without my machine before I would go without my humidifier.

I lived in Las Vegas for 5 years. Pre CPAP years. My nasal mucosa were always giving me fits out there...they never did adjust to the dry air.
Well I should have added that I did not go cold turkey ... I did it gradually first reducing the heat eventually to no heat then eliminating the passive altogether. It took about 2 and half months to "adapt" to sans-humidity CPAP.

I remember back in the early 80's as part of my degree requirement, I had to take a summer field course in the New Mexico desert -- and having been accustomed to living near the Gulf Coast all my life, it was hell waking up with a bloody nose every morning that summer.
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Re: FlowLimitation is killing my treatment

Post by Goofproof » Mon Jun 03, 2013 10:54 am

DreamStalker wrote:
Pugsy wrote:
avi123 wrote: I am going to raise both max and min pressures, gradually, by 1 cm per night and see the effects. I still am not sure about the EPR setting. When I saw the sudden changes in my data that started a couple of weeks ago I first suspected that something wrong with my S9 APAP. So I replaced the flow generator with the S9 Elite which I keep as my backup. Well, it showed a similar deterioration in treatment by having the data full of Hypopneas, no Obstructives, and only a few Centrals during the night. During the above change I kept the pressures at around 13 cm which was my Sleep Clinic Titration prescription for CPAP., from 6 months
If you tried the Elite at 13 cm with EPR off and you still had those flow limitations.....man that makes for a sticky problem.
For some reason the Flow limitations have really reared their ugly head and thumbing their nose at your attempts to kill them.

I was hoping that a little more minimum would help hold the airway open more effectively and hence prevent the FLs from ever appearing but if you had them at 13 cm on the Elite with EPR off...they are really being stubborn.
Especially since for so long you have done so well with your current set up. How much of this do you feel during the day with nasal congestion or allergy like symptoms? Is this only at night? If it is only at night I wonder if playing with the humidity settings might help? More or less????. I accidentally lowered my humidifier setting to 3 the other night (normally use 5 on my PR S1 750 machine) and boy did I ever pay for it the next morning with dried stuffed up nose and a pretty ugly report to boot.
I am one of those people who would probably do well if I could just snort the water up my nose.
Now Den (Wulfman) is just the opposite and he is worse if he uses much added humidity at all. Maybe your body's needs regarding humidity have changed??? Just a thought.
I think the body can adapt to a point. I used to think I needed humidity which does not really makes sense since I used no humidity to sleep before taking up CPAP therapy. I have since weaned myself off all humidity and now just use straight up CPAP mode with no heated or passive humidity (prepared for the big collapse ). But I also agree that too much humidity, or not enough, can affect the sinus tissues to induce congestion.
I also have stopped the humidity for a year and a half, I am also weaning myself off of OTC de-congestants. Jim
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Re: FlowLimitation is killing my treatment

Post by rosacer » Mon Jun 03, 2013 11:32 am

I know once I went into your foe's list fut in case I'm no more I tell you that I was using cortisone spray on high dose each day for years until I started using Neilmed sinus rinse instead. Simple solution and it opened my sinuses, reduced my AHI and no more cortisone for me.

Simple, healthier, less expensive and effective. Only in case you can see this and are interested to try.

All the best.

Rosie

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Re: FlowLimitation is killing my treatment

Post by avi123 » Mon Jun 03, 2013 12:08 pm

[quote="Pugsy"]I know you don't like me but what about trying to prevent the FLs better in the first place with a little higher minimum pressure instead of trying to fix them later with a higher maximum? As you have found out the higher pressures can make leaks more difficult to manage.

[quote]

"I know you don't like me" is not correct as long as you don't use my age together with your 4 letter words to attack me, as you been doing in the past. If I was really mad at you I could ask my two grandchildren, who live in STL, to snatch those two antelopes near you, and take them away for good.

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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 12:24 pm

avi123 wrote:
This is not correct "I know you don't like me" , as long as you don't use my age together with your 4 letter words to attack me, as you been doing in the past. If I was really mad at you I could ask my two grandchildren, who live in STL, to snatch those two antelopes near you, and take them away for good.
[/quote]


You old goat! Snatching antelopes is a dronable offense. Do you really want to put your grandchildren in peril?
Last edited by DreamStalker on Mon Jun 03, 2013 1:51 pm, edited 1 time in total.
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Re: FlowLimitation is killing my treatment

Post by nanwilson » Mon Jun 03, 2013 12:37 pm

avi123 wrote:
Pugsy wrote:I know you don't like me but what about trying to prevent the FLs better in the first place with a little higher minimum pressure instead of trying to fix them later with a higher maximum? As you have found out the higher pressures can make leaks more difficult to manage.

This is not correct "I know you don't like me" , as long as you don't use my age together with your 4 letter words to attack me, as you been doing in the past. If I was really mad at you I could ask my two grandchildren, who live in STL, to snatch those two antelopes near you, and take them away for good.

Do you really believe something that childish is a threat I can't believe a grown man would say something like that .... oh wait..its only Avi
Started cpap in 2010.. still at it with great results.

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Re: FlowLimitation is killing my treatment

Post by Pugsy » Mon Jun 03, 2013 12:37 pm

avi123 wrote:
This is not correct "I know you don't like me" , as long as you don't use my age together with your 4 letter words to attack me, as you been doing in the past. If I was really mad at you I could ask my two grandchildren, who live in STL, to snatch those two antelopes near you, and take them away for good.
I have been trying to play nice.
You don't call me a liar anymore then I won't unleash my 4 letter vocabulary at you anymore nor will I call you a grumpy old man. Fair enough.

My baby deer in my avatar...long since grown up though I do think that one of them came back a few of months ago.
Those were twins that I have the pictures of from 3 years ago this coming summer. One doe and one stag. The male was always the bold one of the pair.
A few of months ago I looked out in the yard and there was a little buck (about 2 years old from his antlers) standing out by my truck which was probably 20 feet from the porch. I stepped down off the porch and walked real slowly up to the truck and he was at the front of the truck and I was at the back...we stood there for several minutes just looking at each other. The length of the pickup truck between us. Finally after about 10 minutes he got tired of watching me and stomped his front foot a few times and "huffed" and slowly walked off. That's what the little buck used to do back that summer I watched them grow up in my pasture.
I like to think it was the same little guy I got those awesome pictures of. He watched me lots of times and would paw the ground and "huff" at me then walk away.

So far I haven't seen any babies this year. Deer population seems to be down.

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Re: FlowLimitation is killing my treatment

Post by avi123 » Mon Jun 03, 2013 12:52 pm

[quote="DreamStalker"][quote="avi123"][quote="Pugsy"]

You old goat! Snatching antelopes is a dronable offense.

Do you really want to put your grandchildren in peril?


Question,

Do you mean "dronable offense" like this:


http://lawfulgovernment.com/you-are-now-dronable.html

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Re: FlowLimitation is killing my treatment

Post by StuUnderPressure » Mon Jun 03, 2013 1:24 pm

DreamStalker wrote:I think the body can adapt to a point. I used to think I needed humidity which does not really makes sense since I used no humidity to sleep before taking up CPAP therapy. I have since weaned myself off all humidity and now just use straight up CPAP mode with no heated or passive humidity (prepared for the big collapse ). But I also agree that too much humidity, or not enough, can affect the sinus tissues to induce congestion.
I certainly am not trying to convince you to start using a humidifier.

Without using CPAP therapy, your nose only will add sufficient humidity to the air you breathe.

But, when you add the constant air flow of CPAP therapy, your nose alone cannot provide sufficient humidity. A humidifier is needed for that. And a heated humidifier is even better.

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Re: FlowLimitation is killing my treatment

Post by avi123 » Mon Jun 03, 2013 1:29 pm

Could it be that certain masks cause Flow Limitations? If yes, then it might be worth it to try Dr Barry Krakow's mask which he uses:


https://www.cpap.com/productpage/purita ... embly.html

even though "0% of Nasal Mask product buyers choose this product".

Per:

viewtopic/t26622/viewtopic.php?f=1&t=26 ... w=viewpoll

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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 1:33 pm

avi123 wrote:
DreamStalker wrote:
avi123 wrote:
Pugsy wrote:
You old goat! Snatching antelopes is a dronable offense.

Do you really want to put your grandchildren in peril?


Question,

Do you mean "dronable offense" like this:


http://lawfulgovernment.com/you-are-now-dronable.html
Everything and anything is dronable. Haven't you read the NDAA 2013?

All of us, any of us can be droned for any thing that those who control the drones see fit to drone.

The vast majority of people have no clue that they live in a police state .... unless of course they have themselves been droned or gitmo'ed or renditioned or surveiled without a warrant or body slammed to the ground for looking the wrong way at a cop or taking video of a cop body slamming someone who looked at them the wrong way. It's past 1984 and one day the vast majority of people are going to wake up and wonder what happened while they were asleep consuming in the American Dream.
President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 1:35 pm

StuUnderPressure wrote:
DreamStalker wrote:I think the body can adapt to a point. I used to think I needed humidity which does not really makes sense since I used no humidity to sleep before taking up CPAP therapy. I have since weaned myself off all humidity and now just use straight up CPAP mode with no heated or passive humidity (prepared for the big collapse ). But I also agree that too much humidity, or not enough, can affect the sinus tissues to induce congestion.
I certainly am not trying to convince you to start using a humidifier.

Without using CPAP therapy, your nose only will add sufficient humidity to the air you breathe.

But, when you add the constant air flow of CPAP therapy, your nose alone cannot provide sufficient humidity. A humidifier is needed for that. And a heated humidifier is even better.
Not true cuz you don't understand how positive air pressure works. The amount of air flow in and out of the nose is the pretty much the same with or without CPAP. Basic physics which I don't have the time to teach you right now.
President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 1:41 pm

avi123 wrote:Could it be that certain masks cause Flow Limitations? If yes, then it might be worth it to try Dr Barry Krakow's mask which he uses:


https://www.cpap.com/productpage/purita ... embly.html

even though "0% of Nasal Mask product buyers choose this product".

Per:

viewtopic/t26622/viewtopic.php?f=1&t=26 ... w=viewpoll
Yes. For me, any nasal cushion or FF mask will add pressure to the blood vessels of my face, constricting blood flow and inducing congestion and thus flow limitations. I get congested just laying down on one of those massage tables with your face in that cushioned head rest.

The Breeze is an excellent mask except for that stupid metal headgear.
Last edited by DreamStalker on Mon Jun 03, 2013 1:49 pm, edited 1 time in total.
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Re: FlowLimitation is killing my treatment

Post by StuUnderPressure » Mon Jun 03, 2013 1:48 pm

DreamStalker wrote:Not true cuz you don't understand how positive air pressure works. The amount of air flow in and out of the nose is the pretty much the same with or without CPAP. Basic physics which I don't have the time to teach you right now.
There are scientific studies by reputable people that prove you are wrong.

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Re: FlowLimitation is killing my treatment

Post by DreamStalker » Mon Jun 03, 2013 1:58 pm

StuUnderPressure wrote:
DreamStalker wrote:Not true cuz you don't understand how positive air pressure works. The amount of air flow in and out of the nose is the pretty much the same with or without CPAP. Basic physics which I don't have the time to teach you right now.
There are scientific studies by reputable people that prove you are wrong.
Well I myself carry a reputation on this forum.

And I DO know my basic physics.

And I can assure you that it is physically impossible for you or anyone else to increase the flow in and out of your nose without blowing yourself up and exploding your insides all over the place and making a big mess of your sleep quarters.

President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.