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Re: Must the machine be below your head?
Posted: Thu May 30, 2013 10:00 pm
by Pugsy
klutzo wrote:When I read the other previous link about set up you gave me, it said I had to remove the card before making changes, or settings would revert to default. That was not in the link that showed me how to do it, so it was not done. I guess I'll find out soon enough which is correct, because it is definitely bed time!
Oh that removing the SD card thing.
Mainly for people who are changing the pressures and the pressures were set using software.
When that happens the SD card over rides any manual pressure changes as soon as it gets put back in the machine.
Not all DMEs us the software to set pressures and these changes we were talking about wouldn't be set using software anyway.
Re: Must the machine be below your head?
Posted: Fri May 31, 2013 1:48 am
by klutzo
Hi Boyce,
Your picture is great and says it all! That's what I'm like in the morning, since I never get more than five hours of broken sleep.
Without a humidifier set on one, I get a very sore, dry nose and severe sinus congestion and post nasal drip to the point where I cannot talk. It is just too drying. I tried to go without one, since it stopped the rainout in winter, and ended up so messed up I had to have a CAT scan of my sinuses. I only need a little humidity, but I do need that.
In winter here, I get rainout running down my face, waking me up several times a night. I don't know if a heated hose will stop this, but people here recommended a warm, velour hose sleeve for that problem, which I could not use, because it leaves the hose in the dark, asking for mold, and I could not take it off each morning, since it takes half an hour of hard work just to get it on the hose. I did not ask for the heated hose, but it is a different plug in system on the end of the hose and the machine, so if I don't want it, I'll have to take the machine back and get a new piece for the top that takes regular hoses. I think that is what the "60 series" means, since the pictures I saw of it all have that special heated hose connection. I hope this explains it.
It is 3:45 am and my biggest problem has turned out to be that while the machine sounded far quieter than the old machine when I tested it without wearing it, once I got in bed and used it, it is far louder than any of the moaning and groaning of my old one. It makes a loud noise on inhale, coming from the humidifier area, and two slightly less louder ones on exhale. I have seen other posts here complaining about this, all of them blaming the tiny size of the filtered air intake on this series and suggesting putting the machine in a shelf to muffle the sound, so maybe I will lower it into that shelf after all. But, I'll have to take it out of the shelf each morning to clean and fill the humidifier and when cleaning filters. I don't think constantly moving it is a good idea, esp. with water still in it and me being such a klutz.
klutzo
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P.S.To Pugsy, in case you are reading this, the settings did revert to default after I followed your instructions. I guess I do have to take the card out before setting such changes. It turned out to be for the best. I must take off my headgear each time I get up, and I have to manually turn it off so it doesn't wake my husband up with that noise of blasting air. I am going to try a new position for air dry and if it doesn't work I'll just remove the card until I can talk to the DME.
Re: Must the machine be below your head?
Posted: Fri May 31, 2013 5:36 am
by Boyce
Without a humidifier set on one, I get a very sore, dry nose and severe sinus congestion and post nasal drip to the point where I cannot talk. It is just too drying. I tried to go without one, since it stopped the rainout in winter, and ended up so messed up I had to have a CAT scan of my sinuses. I only need a little humidity, but I do need that.
So you have already tried it and it did not work. I don't like the heat and humidity from a CPAP humidifier and have trouble understanding that you would need it in Florida. But God did make us all different so do what works for you!
the machine sounded far quieter than the old machine when I tested it without wearing it, once I got in bed and used it, it is far louder than any of the moaning and groaning of my old one.
I was going to say there are two reasons to put the machine lower than head level. 1) So that hose rainout will run back into the tank instead of your face. 2) It makes the machine quieter.
For 2), I have a short piece of furniture beside my bed to lower my machine.
Best of luck,
Re: Must the machine be below your head?
Posted: Fri May 31, 2013 8:37 am
by Pugsy
klutzo wrote: the settings did revert to default after I followed your instructions. I guess I do have to take the card out before setting such changes. It turned out to be for the best.
Then they have programmed all the settings using the software to over ride any manual changes to any settings.
Should you ever get tired of removing the SD card you can stop that SD card from resetting any changes you make.
Either get a new blank SD card and use it or erase the one you have. The machine stores all the information that the DME might need on its internal memory..and will put it right back on a blank SD card except the software changes stuff. That won't get put back on the blank SD card. So nothing that is critical to what the DME might want to see (hours of use or whatever) is not lost.
Up to you what you want to do and/or how annoying it is to remove the SD card.
Re: Must the machine be below your head?
Posted: Fri May 31, 2013 10:28 am
by klutzo
Thanks to Boyce and to Pugsy for your responses.....
The machine only is really loud when I first turn it back on, just like my old one. I thought that meant the motor was having trouble starting and it was about to conk out. Maybe there is nothing wrong with the old one except the card reader not working. So, I have it as a back up now, which is reassuring if I need repairs for any reason. As the night went on, I realized the machine is much quieter than the old one once it has been on a few minutes. Hopefully, most of you don't have to get up 6 times a night like I do. Last night I only got up 4 times, so maybe the new machine is better. Time will tell.
I talked to the DME this morning. They said I can take the card out every morning to dry the machine, no problem. They also said I can leave the humidifer space wide open, so the humidifier is on the drying rack in light and air all day, and just wipe out the humidifier space with a damp cloth and let it air dry before using, if it gets too dirty. They expressed surprise that I got mold from air drying the headgear and from leaving the humidifier in the old machine, even when empty. She said she's had over 4,000 patients and never heard that before. I guess our poor old house must be especially leaky, or maybe it's because we leave our air conditioning set on 78 during the day and 76 at night. In winter we have to keep the heat at 76 and run the woodstove too, or I am crying from pain, I get so cold and my muscles harden like rocks. They said I can make an appt. and come in and be taught how to use all the gizmos on the new machine if I find I need to, but I think I got so much help from you all that I won't need that. The video I found though Pugsy's link really helped. I can always change my mind and go in there.
Boyce, temp wise, Florida is not too hot for me, though I hate the humidity. If you are normal other than OSA, I can see why you would wonder about a heated hose for me. I have Stage IV Lyme Disease, which is slowly terminal. One of the first things Lyme does is remove your brain's ability to read the temperature sensors in your skin, and therefore you have no more control over internal temp, which is quite dangerous. I am a lot more afraid of hurricanes than the average Floridian, because loss of power is not just uncomfortable for me, it can be life-threatening. We have a generator and a tiny one room air conditioner that fits into one of the boards we use to cover our windows as a result. Lyme patients often say we have a "one degree comfort zone", and mine is 78 degrees. As I get colder especially, I start to have dangerous symptoms, my core temp drops to 93, which is close to hypothermia, and at about 50 degrees I start having arterial spasms that bring me to my knees. Going the other way, over 86 degrees, my pulse goes so low I have to crawl from place to place on the floor. But, all in all, most of us find even slight cold unbearable due to thyroid reactor blockage. In otherwords, we take thyroid meds, but most of it does not get delivered to the tissues, so we suffer all the symptoms of long term untreated hypothryodism. As a result, my normal temp is only about 96, so I feel cold when you would be too hot. I wear sweaters if the temp goes below 77, unless I am being very active. All this may be TMI, but Lyme is now the number one infectious disease in the world, so people should know and be very careful when outside in tall grass or woods.
Thanks to all who answered my post. You guys are fab! I told the DME this morning that I would not be a CPAP user without you.
klutzo