zoocrewphoto wrote:Todzo wrote:Apparently it [CPAP] simply does not work for most.
You are confusing the issues.
You are giving a statement about people who were issued a machine and quit using it. That is completely different from whether the machine (properly set and used consistently) gives good therapy.
Let’s remember what this discussion is all about. An attorney and congressman are saying that the 50% disability rating for Sleep Apnea is unreasonable. So then how much CPAP can be used and how effective it actually is becomes critical to those who need support.
My consideration as I write here is those who are commended to CPAP therapy. I believe that is the vast majority of those whose PSGs find moderate to severe sleep apnea. I also know that the doctors are getting wiser about who is likely to fail CPAP. I probably should have included those who were not commended to CPAP since they are now known likely to fail as well.
I am looking to find out how many can actually get working care here. If they cannot then the sleep apnea will simply slowly take them down.
I am starting to work toward real long term numbers of how many and how well people can actually be treated. Real numbers, long term.
zoocrewphoto wrote: CPAP does work when the settings are right and the person uses it.
I would call this a presumption.
How long are the settings likely to remain “the right settings”? Are some settings questionable in terms of being “the right settings”? How can you know this? What proof do you have?
zoocrewphoto wrote: People fail for many reasons. Some are in denial and looking for any excuse to quit using it. Some have bricks and don't know that their settings are not providing enough therapy. Some were handed one mask and told to go home and use it, never realizing that they can try other masks. There are lots of reasons for people to quit. Many have to do with doctors and DMEs who don't help. That does not mean that the actual method of therapy (cpap) doesn't work.
What it actually does mean is that it did not work.
zoocrewphoto wrote: For those who push pas the struggles, it usually works great.
Again, your presumption.
I believe that most of the struggles people have to use CPAP relate directly to incompatible breathing reflexes. I believe that these make the therapy unusable and perhaps harmful. Prove me wrong if you can.
zoocrewphoto wrote: Don't you realize that when you post that cpap doesn't work for most people, it just encourages all those in denial to simply quit? You are sending them into that category that fails, because you told them to expect failure.
I have not told anyone that their therapy would fail.
In addition you have no proof that those in denial would simply quit. They would, however, have a better idea of what they are actually dealing with.
Please stop hiding the truth from those who need it. You do them wrong.
zoocrewphoto wrote: Yet most people who come here and get help do find success.
This sounds like wishful thinking. Proof please.
From what I have observed some get help. Some do not. For some the help works for a small time. Who knows what happens to them all long term?
zoocrewphoto wrote: Why don't you encourage people to succeed rather than tell them they will fail?
I have not told anyone they would fail.
I have encouraged many to succeed here and other places.
I simply want people to know the truth so they have that to use real data to make real good decisions.
There are a lot of class action suits against pharmaceutical companies because they did not tell people the truth. Will we see those against the manufacturers of CPAPs in the future? Will they include the doctors? Will they include the doctor’s staff?
zoocrewphoto wrote: Why do you stay here if you think people are doomed to fail?
Because, obviously, I do not believe they are doomed to fail as you accuse me.
I also know that most are “doomed to fail” if things are left as they are. So please stop trying to make yourself comfortable by keeping things in the dark. Let us bring them out into the light.
May we both have good thoughtful weeks!
Todzo