Page 9 of 15
Re: Where did all the help GO??
Posted: Sun May 12, 2013 4:35 pm
by JohnBFisher
racprops wrote:All very true, BUT: ... The read out SHOWS the pressure is LOW when i have no problems so the machine is adjusting to me..or something... So it is not me that is adjusting it is it?? ... ...
Rich, it actually means your body is adjusting to the therapy. The machine does not (really) adjust to you. It keeps track of the last 3 to 5 minutes (I don't remember which machine tracks what amount of time). But the point is that it has NO memory from session to session about your breathing. But your body DOES remember from session to session what's "normal" and what is not. It takes time for your body to recognize this new "normal". Once it does, it settles into the routine and stops fighting with the ASV therapy. The result is that you will tend to see lower pressures at the mask. By breaking the cycle that triggers the central apnea through early intervention you will attain a much lower AHI value than if you did not have an ASV unit.
But the key point, which I seem to have a hard time getting through to new ASV users is that YOU and YOUR BODY need to become acclimated to the ASV therapy. That takes time and patience. It specifically takes longer than it does to adjust to CPAP and/or BiPAP therapies. But it does happen. In our society of instant gratification, this can be a hard thing to accept.
Hope you continue to have good sleep. But remember, you will have some ups and downs. I do to this day. Some nights are horrible. But the good mostly outweigh the bad nights.
Re: Where did all the help GO??
Posted: Sun May 12, 2013 4:35 pm
by Pugsy
You are adjusting to the machine.
The machine knows how it wants you to breathe...and tries to make you do it.
You aren't changing its mind about what its job is...it already knows what its job is.
Your body is coming around to the machine's way of thinking...not you changing its mind.
Re: Where did all the help GO??
Posted: Sun May 12, 2013 6:32 pm
by racprops
So as I "go with the flow" as it is then it has to work less and it looks like it is laying down on the job?
Rich
Re: Where did all the help GO??
Posted: Mon May 13, 2013 7:17 am
by JohnBFisher
racprops wrote:... So as I "go with the flow" as it is then it has to work less and it looks like it is laying down on the job? ...
Arrgh! Do you intentionally attempt to be obtuse??!!
If the ASV unit is able to interrupt the cycle that causes the significant central sleep apneas .. then you will have lower pressures (it has no reason to lift them) and you will have deeper better sleep. Think of it in terms of someone who stutters. If you can break the cycle that triggers the stuttering, then they don't have to work as hard at getting out what they want to say. But your ASV unit is NOT "laying down on the job". It is working hard to try to keep your breathing regular. And as your body adjusted to the therapy, it accomplished that goal.
Re: Where did all the help GO??
Posted: Mon May 13, 2013 8:18 am
by racprops
I was saying that was a good thing, that is the goal, for me to sleep well and the machine to take it easy as I am taking it easy.
Rich
Re: Where did all the help GO??
Posted: Mon May 13, 2013 5:27 pm
by JohnBFisher
racprops wrote:... I was saying that was a good thing, that is the goal, for me to sleep well and the machine to take it easy as I am taking it easy. ...
Okay, cool!
First my sincere apologies if I misunderstood. I try really hard, but sometimes I'm the obtuse one. Yes, from that perspective, you want the machine not working as hard at getting you to sleep better. But it's still pretty busy. If you zoom in on the breathing, you will see plenty of times when the machine increases the pressure or uses a pressure pulse to help you breathe. But if that's all it has to do, then GREAT!!
Hopefully with a few more nights like that one you'll feel like a new person.
Re: Where did all the help GO??
Posted: Tue May 14, 2013 9:36 am
by racprops
NateS wrote:Rich,
You had been on ASV for little more than two weeks and you were ready to give up and call it all a scam!
Reminder: We look forward to your posting the full reports and recommendations of your sleep studies.
Best wishes, Nate
OK Here we go:
Please note they were unable to get good results..last two paragraphs...
My anxiety was being waken as I feel asleep each time by the machine cutting in and blasting me with air..this happen as I started to drop off and was unable to control it...as I was falling asleep...
Note the AHI was 76.8!!!!
I feel this was very incomplete and should have more following up, the Doctor said come back in 30days...he took his best GUESS.
Here is the first study, it is in two parts, the fist 1/2 without any CPAP and the second with CPAP:
Note the AHI 104.1/hr.
AND about my CPAP Caused Complex apneas.
Here they call for a second night with BiLevel and ASV testing.
I removed his address...
Rich
Re: Where did all the help GO??
Posted: Tue May 14, 2013 9:51 am
by NateS
Rich,
Your post says you moved or deleted the first two images within Photobucket.
Try again.
Nate
Re: Where did all the help GO??
Posted: Tue May 14, 2013 9:52 am
by racprops
They should be back, I removed his name...
Re: Where did all the help GO??
Posted: Tue May 14, 2013 9:53 am
by racprops
I can scan the larger report I got of the second ASV Study...
Rich
Re: Where did all the help GO??
Posted: Tue May 14, 2013 10:12 am
by NateS
Rich,
When you wish to white-out personal info in Photobucket, you need to do it before you paste the IMG link into cpaptalk. Otherwise you will encounter that problem.
Will look forward to John Fisher's impressions of your reports.
Regards, Nate
Re: Where did all the help GO??
Posted: Tue May 14, 2013 10:14 am
by racprops
Here is the fuller report, this is all I got...
Note page three, lower box.
Note that I had good readouts at: 15/6 and then at 15/9 (best) and 15/10.
And with 15/9 showing the best by the study why choose 15/10 which is double the hypopneas??
Rich
Re: Where did all the help GO??
Posted: Tue May 14, 2013 10:15 am
by racprops
NateS wrote:Rich,
When you wish to white-out personal info in Photobucket, you need to do it before you paste the IMG link into cpaptalk. Otherwise you will encounter that problem.
Will look forward to John Fisher's impressions of your reports.
Regards, Nate
I saw that and redid them in Photo Paint...they were only up a couple of minutes...
Rich
Re: Where did all the help GO??
Posted: Tue May 14, 2013 10:41 am
by racprops
Just found this:
"Why would a CPAP machine cause this to happen?
A: This is a great question. What you are referring to is called complex sleep apnea. We believe there may be two mechanisms that cause this in some patients. One is a stretching of the lung by the positive pressure. This can elicit a reflex that depresses respiration. The other is a drop in carbon dioxide brought about by the CPAP machine. The brain does not like low carbon dioxide levels and will stop sending signals from the brain to the lungs to breathe until the carbon dioxide builds up again."
Re: Where did all the help GO??
Posted: Tue May 14, 2013 1:30 pm
by racprops
ME TOO.
Rich
NateS wrote:Rich,
When you wish to white-out personal info in Photobucket, you need to do it before you paste the IMG link into cpaptalk. Otherwise you will encounter that problem.
Will look forward to John Fisher's impressions of your reports.
Regards, Nate