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Re: Biggest concerns when going for your night study?

Posted: Mon Apr 29, 2013 9:51 pm
by zoocrewphoto
Since reading the other posts, I thought of some things about my study and room that helped.

The bed was one of those sleep comfort beds. I actually forgot to play with the settings, but whatever it was was nice.

The bathroom was a shared bathroom between two rooms. I was assured that the other person was also female. That did not bother me at all, but the doors were creaky. I vaguely remember hearing the door when she went, and I was super careful to be as quiet as possible when I went.

The room had a tv in it, and while waiting to be wired, they had me watch the video which explained sleep apnea and the sleep study process.

The sleep tech was very good at her job, both in the technical aspects and also in helping me to be comfortable.

Re: Biggest concerns when going for your night study?

Posted: Mon Apr 29, 2013 9:58 pm
by SleepingBetty
zoocrewphoto wrote:The bed was one of those sleep comfort beds. I actually forgot to play with the settings, but whatever it was was nice.
I really, really don't like my Select Comfort bed, but I'm stuck with it for now. However, I was sort of wishing for one that first night! Maybe these sleep labs will eventually get their acts together and truly make it an experience that is as good as possible for the patient. Your center, especially your tech, is to be commended for doing such a great job!

Re: Biggest concerns when going for your night study?

Posted: Tue Apr 30, 2013 11:07 pm
by sleepstar
jwerley wrote:I have a sleep study coming up on the 2nd of May and I am most concerned about the techs seeing and addressing the many desats and apneas (like last night I had 99 obstrucive events with half of them being over 30 seconds, the highest being 87 seconds. (the linking of them is the most disturbing to me). Since getting my S9 Autoset 6/1/12 and being able to follow my own numbers I have had one other sleep study (6 mos. ago when Dr. ordered straight Cpap at setting of 9) and was having the same problem... nothing was said about this. I am always tired. Since the setting of 9 woke me up gasping for air I have tried autoset at various settings as well as straight cpap at various levels. It changes nothing.
when I had my consultation with the doc a month ago he did not seem concerned....saying that my AHI was not that high. it was running between 6 and 26. From everything I read on this board these numbers are awful. I told him how tired and foggy I felt in the mornings when I woke up and he did say that I could be a failed Cpap patient whatever that means. I have been compliant for the 8 years I have had cpap. They are so busy I have had to wait over a month for this study and it has been hard.

I have tried to address this before on the forum, but gave up because nobody could help me. My thinking is that maybe I need a bi-pap machine to keeping me breathing......I cannot go on like this, that is for sure!! I just want my problems to be solved with this study!!!!

Janice
Sorry to hear you're stressed about your study
I hope all goes well tomorrow night - keep us informed!

Re: Biggest concerns when going for your night study?

Posted: Tue Apr 30, 2013 11:08 pm
by sleepstar
zoocrewphoto wrote:Since reading the other posts, I thought of some things about my study and room that helped.

The bed was one of those sleep comfort beds. I actually forgot to play with the settings, but whatever it was was nice.

The bathroom was a shared bathroom between two rooms. I was assured that the other person was also female. That did not bother me at all, but the doors were creaky. I vaguely remember hearing the door when she went, and I was super careful to be as quiet as possible when I went.

The room had a tv in it, and while waiting to be wired, they had me watch the video which explained sleep apnea and the sleep study process.

The sleep tech was very good at her job, both in the technical aspects and also in helping me to be comfortable.
That's interesting - I've never heard of a place that shows videos about sleep apnea and the sleep study Seems like a pretty good idea.
I know a lot of people feel quite scared when they see all that equipment. I've seen hundreds of sleep studies though, and I can only recall one person who actually didn't sleep. Everyone else did :p (although maybe not well!)

Re: Biggest concerns when going for your night study?

Posted: Tue Apr 30, 2013 11:09 pm
by sleepstar
chunkyfrog wrote:I dressed in the bathroom--no cameras.
I would appreciate the ability to ask the temperature to be raised or lowered AT MY REQUEST.
As much as the damn room costs, I'm not about to freeze my hiney off--or have a sauna--no thank you.
I wish we could do this ! I'm in a hospital, so we have no control over the temperature Just can give lots and lots of blankets!
When I work night shift, I have a blanket myself its bloody cold

Re: Biggest concerns when going for your night study?

Posted: Wed May 01, 2013 1:31 am
by zoocrewphoto
sleepstar wrote:
zoocrewphoto wrote:Since reading the other posts, I thought of some things about my study and room that helped.

The bed was one of those sleep comfort beds. I actually forgot to play with the settings, but whatever it was was nice.

The bathroom was a shared bathroom between two rooms. I was assured that the other person was also female. That did not bother me at all, but the doors were creaky. I vaguely remember hearing the door when she went, and I was super careful to be as quiet as possible when I went.

The room had a tv in it, and while waiting to be wired, they had me watch the video which explained sleep apnea and the sleep study process.

The sleep tech was very good at her job, both in the technical aspects and also in helping me to be comfortable.
That's interesting - I've never heard of a place that shows videos about sleep apnea and the sleep study Seems like a pretty good idea.
I know a lot of people feel quite scared when they see all that equipment. I've seen hundreds of sleep studies though, and I can only recall one person who actually didn't sleep. Everyone else did :p (although maybe not well!)
It was about 20 minutes. It showed some clips of a man sleeping with untreated sleep apnea while they explained it a little bit. That is when I realized all those gaspong and choking fits were part of my sleep apnea. Then they showed this guy being wired up, and sleeping with the equipment. It was a basic over view of what sleep apnea is, and what to expect during the sleep study. I think it was nice to help make the process less scary. The tech was also really good at putting me at ease. I really went in dreading it, and I came out thinking it was a pretty good experience.

Re: Biggest concerns when going for your night study?

Posted: Thu May 02, 2013 10:26 pm
by SleepingBetty
Sounds like the same video I was shown the next morning! Was the tech wearing OU scrubs?

Re: Biggest concerns when going for your night study?

Posted: Fri May 03, 2013 9:04 am
by sleepstar
SleepingBetty wrote:Sounds like the same video I was shown the next morning! Was the tech wearing OU scrubs?
I'm thinking a video would be a great idea for some places. Unfortunately we don't have televisions in the rooms where we are public hospital... plus good sleep hygiene lol

Re: Biggest concerns when going for your night study?

Posted: Mon May 06, 2013 3:25 am
by archangle
I think it should be a crime to send someone for a sleep study without a sleeping pill in case you can't sleep. Yes, you'd rather get the data without the pill, but you may get NO data without it. I'm sure a lot of patients go to the lab, don't sleep, get charged for the test anyway, and then say "F this sleep apnea stuff." Then they die from the apnea.

I had a hard time sleeping for several reasons.

1) I always sleep in a recliner. The flat bed made things worse. I should have looked for a clinic with recliners. I understand there are some labs with that in some places.
2) I can't usually fall asleep before 2 AM or so, even at home in my own bed. The sleep lab wanted me there at 8PM or so, and sleep wasn't likely to happen. I've struggled for years to fall asleep earlier with little success. You need more reasonable hours for the patient's sleep schedule.
3) Sleeping flat on the back is another thing I just don't do well. (Except in the recliner.) Some of this is due to my bad back.
4) Lots of people have had problems with noisy rooms. This can be something like a noisy hospital. Very often the sleep lab is located in a place where garbage trucks pick up the dumpsters at 2 AM or so, banging dumpsters, with loud engines and back up beepers. You're charging people lots of money for an overnight test. It's YOUR responsibility to get a quiet place where they can sleep.
5) Quite a few people have reported rooms are too cool or too hot. They're in commercial office space with zone heating/air conditioning, and some rooms are too hot or too cold. Each room needs its own temp control.

Re: Biggest concerns when going for your night study?

Posted: Mon May 06, 2013 6:10 am
by Denial Dave
when we were shopping for a mattress, I couldn't tell a difference on any of the dial a matress setting... We chose a memory foam bed.

So when they gave me a dial a number bed, I was clueless on how to see it up... I played with various settings and gave up.

They turned out the lights and within 15 minutes I was asleep..... about 90 minutes later, they woke me to strap an alien onto my face. I sat on the side of the bed for a while with the pressure settings at 4 trying to overcome claustrophia and the hurricane feeling.

The techs claimed that I slept afterwards, but I clearly recall waking everytime they changed the pressure settings. (My final settings were chosen to be Bi-pap 21 IPAP/15 EPAP)

At one point, I was yelling about mask leaks from the Quattro FX near my eye and they all came rushing in to disconnect me thinking that I needed to use the bathroom



After the study was over, I went home and went to bed and slept for 3-4 hours

it was almost a month later before I got my machine.

Re: Biggest concerns when going for your night study?

Posted: Mon May 06, 2013 6:15 am
by quietmorning
For me, it was whether the tech was going to have it on his or her agenda that I needed to have hushed tones and lights for a while before I went to sleep in order to sleep. At the first sleep study, the tech spoke in hushed tones and kept the lights as low as possible for him to do what he needed to do. The second tech spoke in a loud voice and flipped the lights on to full each time she entered the room. She had no regard to stimuli at all.

Edit: And the first tech warned me if he needed to turn up the lights any higher so that I could put my hand in front of my eyes.

Re: Biggest concerns when going for your night study?

Posted: Thu Sep 19, 2013 3:18 pm
by ReadyforRest
You would think that people designing a sleep lab would want to provide a setting that would promote actual sleep, wouldn't you? Especially since they need you to sleep in order to get enough data to make a diagnosis, prescribe the right machine, prescribe the right settings (or at least initial settings). How are they going to do that if they are offering facilities that are inadequate?

My experience was awful, both at the initial sleep study and at the follow-up titration. They were done at the same place. There was no video to watch beforehand, although a year later I have visited their website and there is a general video about the process of going in, meeting the sleep tech, getting a few wires attached to your head (lol... the rest are not mentioned), and having a wonderful restful sleep, being given a granola bar and a juice drink in the morning, and going merrily on your way, all refreshed! That was not what happened to me. (well yes I did get the juice box and granola bar)

First, the bed was hard as a rock. Yet they suggested that I should try different sleeping positions. Let me tell you, I HAD to sleep on my back, because sleeping on my side would have been excruciating to the hip bones. Second, this particular lab uses beds that are weird. There is a wide headboard in which the double bed sits sideways. So the long side fits into the headboard, with the pillow end exposed at one end. Not only do you feel exposed by being watched all night by those cameras overhead, but you physically feel exposed because your head is not where it should be, at the headboard, but at one end, with nothing there.

Linky: http://www.sleeplab.ca/facility/bedroom-newest.jpg

Third, on top of that, they tell you that the facility is like a hotel room. I seriously beg to differ. I don't share a bathroom in a hotel with three other bedrooms. It was out in the hall. And the hallway is lit at all times, so if the tech opens the door to your room, which she did frequently, the light streams in, waking you if you weren't already awake.

Fouth, they said there was even a tv, very comfortable. Uh, there was a medical style waiting room with a bathroom at one end, and a hallway with three bedrooms off of it. The tv was in the waiting room. If you wanted to watch it, you had to go out there in your pj's, all wired up, and sit in a hard hospital style chair and look up at the tv near the ceiling, and keep the volume low in case of disturbing anyone. This between 8:30 and 10:30 pm. It's so awkward and public that you just don't bother. You'd rather sit in your dorm room with a book and wait for them to tell you it's time for lights out.

Fifth, they say lights out at 10:30 pm forgodsakes! They want you to fall asleep before any reasonable adult would normally fall asleep. And all this while they are looking at you, while you are wired up the ying-yang.

Sixth, IF you have managed to take this ridiculous situation under your belt, and actually DO feel tired at this point in the night, once the lights are out, they start talking to you via a speaker in the wall for oh about a half hour, asking you questions, having you move this leg or that foot so they can check the electrodes to see if they're working right. By the time they're done, you are pretty much wide awake again.

Seven, so now you are supposedly settled in to your hard-as-a-rock bed, after not being able to watch the news, or get lulled to sleep by any of your normal activities, you close your eyes knowing they are looking at you, try to forget that you have itchy, gooey spots all over you and that you have a multitude of wires spidering off of you, with a thing clamped on your finger hurting like hell ... and you try to sleep. At the first sleep study, you are tired, overtired ... so even with all this stuff hooked to you, you take a while ... a looong while to get to sleep, but before you realize it, you DO drop off. Against all odds. Well I did. Guess I was hugely sleep deprived. Then an hour and a half later, the tech rushes in and wakes me from sleep. Needs to put a mask on me ... and hook me up to cpap. We have criteria for this .. when a patient has severe apnea, we need to put them on a mask right away and not wait. HUH??? I do? She straps the mask on me, a nasal mask. Cranks it down, sets the pressure on, and says go back to sleep. YEAH RIGHT! That wasn't going to happen. That damn mask hurt like the blazes. All I could hear was Darth Vader sounds and the bottom of the mask painfully pressing against my upper lip. I lay there trying to get back to sleep for hours, thinking over and over "I have severe sleep apnea !!! ". Finally, sometime around 4 or 4:30 am, I must have drifted off, because I woke up at 6 am all groggy and discombobulated. I was informed that they got enough info and told I could go home.

Eight, at the follow-up titration, same thing happened, very little sleep. A different room, same damn hard bed and weird headboard set-up. And this is in a private clinic, not a hospital. Same routine as before, but with my own mask on. But I knew they were watching me. And all those frickin wires, and electrodes. And that hard bed. Well I tried valiantly to get to sleep. I could not. Hours passed. Every so often the tech would come in and see if there was anything she could do. Yeah she could find me a better mattress!! I THINK I managed to get to sleep around 3 or 4 am. So they maybe got a couple of hours to titrate me. Whoopee.

On both mornings after, I managed to drive home in a zombie-like state, and sleep the morning away to catch up. There should be a governing board for designing patient-friendly sleep clinics. It would be in their best interest.

Re: Biggest concerns when going for your night study?

Posted: Thu Sep 19, 2013 3:28 pm
by oak
readyforrest, this is again a very old thread. please start a new thread when you are posting on a topic that isn't current. it gets confusing when people post on old threads.
that said, I am sorry you had such a rough time for your sleep study and titration. many of us can relate. regards, oak

Re: Biggest concerns when going for your night study?

Posted: Fri Sep 20, 2013 8:08 am
by ReadyforRest
Actually, Oak, I was going to start a new thread, but thought that if there was a thread already started, and if it was fairly recent (this one was started in April of this year), it would be better to have comments from everyone about their sleep study experience documented in one thread, so it was easier to find. Then if someone wanted to "bump" it periodically, others could add to it.

Re: Biggest concerns when going for your night study?

Posted: Fri Dec 20, 2013 1:35 pm
by sleepstar
I appreciate the responses. This is really helpful. There are quite a few things here that wouldn't have crossed my mind that are very good to know. Thank you.