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Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 6:06 pm
by caffeinatedcfo
yeah can we moderate the off-topic posts?
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 6:14 pm
by Pugsy
SleepWellCPAP wrote: What if she then put a link to her work? Would it be worth a few dollars? My goodness yes. Think of all the time and headache she would save people.
I would not feel right doing that.
Not having it out there with my gazillion posts. I just couldn't sleep well doing that because I don't like the idea.
Maybe I might an announcement "hey, guys...I did what you asked and wrote a book and someone wants to publish it"...and that announcement would be in a single post. Let other refer people to the book if they wanted...I couldn't do it.
It just doesn't feel right to me.
Karen at Padacheek doesn't come to every leak thread problem or mask fit/comfort problem and say something to get her business in front of people. She doesn't need to.
Maybe I need to do what Rested Gal did...compose a series of links to some of my helpful explanations and hints...though the general hints are stuff that everyone here knows and already contributes. I don't own those hints. Guess how I got them?
I did a lot of reading of the old posts back when I started cpap therapy.
Most questions that I see...aren't new...just new people asking the same thing over and over again. They don't know about the wealth of knowledge already posted here or the search engine that might take some time to sort through various posts but people don't seem to want to take the time and yes...I know the forum search engine sucks. I cuss it often myself when I can't find something that I know I have said and I don't want to have to compose my thoughts again for the upteenth time.
Mostly it's common sense stuff anyway...I just take it a step further sometimes for special problems. Give a little one on one and often with a lot more explanation that is really needed because I really prefer that people educate themselves...like I did.
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 6:18 pm
by Pugsy
caffeinatedcfo wrote:yeah can we moderate the off-topic posts?
Moderate like how?
If you stick around here you will find that often we go off topic in a thread. It happens.
Looks like we have here.
We don't have any special moderators here...we self moderate.
I don't follow political threads or religious threads and it doesn't take me long to realize where a thread is going and I just don't bother to open it and read any further comments. It isn't hard to do.
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 6:29 pm
by SleepWellCPAP
Hello Pugsy,
Thanks much for your post!
You are very modest. I'm sure there will be people here, including me, who would sincerely want to read anything you would want to publish.
Maybe I'm not getting your point completely. I had a patient today who broke down in tears because his wife would no longer put up with his snoring. She moves into the next bedroom. I told him to go back to his nasal pillows because everything else we tried did not work. All other interfaces were a disaster. I even showed him on every single one of his detailed graphs, just how well he did with the nasal pillows as opposed to the Liberty, Quattro Fx and regular Quattro.
Getting people the help they need can really effect their lives. I wish I could send you his download.
Gotta run... have to get back to making dinner.
Jim
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 6:51 pm
by mollete
SleepWellCPAP wrote:Carpetbagger? Please Mollete, I was born in Louisana and by the way I'm in the hole on this project over $500. My objective has always been to offer the book for free as soon as expenses were covered. That comment really brushed my hair the wrong way.
I was going to go with sleazebag but that didn't seem to be all that original. Carpetbagger just seemed a better fit.
All the other people seem to contribute as good (or better) material as you and they aren't worried about covering their expenses. So if you're going to make it free, why not start now?
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 7:11 pm
by Pugsy
SleepWellCPAP wrote: I'm sure there will be people here, including me, who would sincerely want to read anything you would want to publish.
I guess scrolling through 16K plus posts would scare off just about anyone wouldn't it.
Though when I first started therapy that's exactly what I did for probably 2 months with hours and hours of reading every day.
But then I was lucky...I have always been an avid reader and brain fog was not one of my primary OSA symptoms.
Plus I have a medical background so a lot of what I read was already part of my knowledge base. The stuff that wasn't didn't take long to sink in.
Re: CPAP Basics - 3
Posted: Wed Apr 10, 2013 10:21 pm
by Kiralynx
SleepWellCPAP wrote: In a disaster situation I usually suggest using a battery back up. You have a point for sure, with that set up they say not to use the heater.
Jim,
The problem with preparing for a disaster is several fold.
1. Insurance does not cover a battery or batteries for an emergency, and it can be difficult (especially if, like me) the individual is not an experienced electrician, to get a working set-up at a price the individual can afford.
2. Even if you have a battery, if you have a high-power machine like my ASV, you either need multiple batteries, or you need a means to recharge the one you have without running your car out of gas in case you must ultimately evacuate. Solar is a nice idea, but solar set-ups are not cheap.
I've been there -- Hurricane Isaac hit New Orleans on 29 Aug 2012.
viewtopic.php?f=1&t=81876&st=0&sk=t&sd= ... cane+Isaac
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 3:43 am
by mollete
SleepingUgly wrote:I am not particularly troubled by knowledge that certain posters have a service or product to sell (including the owners of this forum), as long as they don't make false claims. I'm sure that Dr. Parks has gotten business from posting on this forum, as has Dr. Krakow, Pad-a-Cheek, the Ultimate Chinstrap guy, the Pap Cap/Pur Sleep guy, Pap Tap, etc. I have no issue with that and I actually appreciate knowing that I'm not missing out on hearing of available products and services that are relevant to me.
Yeah, but the difference between those people and The Carpetbagger is that the services those guys are offering are not given away for free here in the forum. I think it violates The Laws of God that hundreds of people offer the same advice for free that TCB charges an average of 7.50 for (10 bucks list, 5 bucks for cpaptalk members)(Hey! It just occurred to me that 7.50 is 30 pieces of silver (quarters)! If that's not a sign, I don't know what is!).
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 6:29 am
by caffeinatedcfo
Wow way to hijack this thread and ruin the benefits for everyone. Please make your own thread to "one-up" each other or take it to PMs instead. Thank you!
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 6:31 am
by Denial Dave
+1 to this
caffeinatedcfo wrote:Wow way to hijack this thread and ruin the benefits for everyone. Please make your own thread to "one-up" each other or take it to PMs instead. Thank you!
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 6:36 am
by mollete
caffeinatedcfo wrote:Wow way to hijack this thread and ruin the benefits for everyone. Please make your own thread to "one-up" each other or take it to PMs instead. Thank you!
Sorry sweetie!
The same right that allows CB to peddle his wares grants others the right to comment on it.
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 6:37 am
by mollete
Denial Dave wrote:+1 to this
caffeinatedcfo wrote:Wow way to hijack this thread and ruin the benefits for everyone. Please make your own thread to "one-up" each other or take it to PMs instead. Thank you!
-2 to that.
We're all tied up again.
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 6:56 am
by SleepWellCPAP
Hello All and good morning!
Caffeinated is correct, the topic has drifted off course.
After working with many many people, in my opinion, the humidication level in your circuit is third most imporant element.
If you are having difficulty with your PAP device, first consider your initial mask fit and cleanliness, these two go hand-in-hand. Then evaluate how your tubing is controlled, is it accomodating you when you are change sleeping positions? Then third, make sure the humity level is set in your circuit so that you are neither dried out or stuffed up like you have a cold. Humidity being important as your upper airway provides moisture for your lungs.
This has turned into quite a post. I can't wait for CPAP Basics - 4, and we still have three more to go!
Have a great day!
Jim
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 12:39 pm
by Todzo
SleepWellCPAP wrote:Hello All and good morning!
Caffeinated is correct, the topic has drifted off course.
After working with many many people, in my opinion, the humidication level in your circuit is third most imporant element.
If you are having difficulty with your PAP device, first consider your initial mask fit and cleanliness, these two go hand-in-hand. Then evaluate how your tubing is controlled, is it accomodating you when you are change sleeping positions? Then third, make sure the humity level is set in your circuit so that you are neither dried out or stuffed up like you have a cold. Humidity being important as your upper airway provides moisture for your lungs.
This has turned into quite a post. I can't wait for CPAP Basics - 4, and we still have three more to go!
Have a great day!
Jim
Hi Jim!
Be thankful for the bumps but may the rude become de-caffeinated.
I used to think about humidification. Then I learned to deal with my tendency to over breath. Then my humidifier tank stayed pretty much full (less air used, less water used). Then it did not matter very much at all where I set the control - cept - kinda muggy at 5.
Have a great week!
Todzo
Re: CPAP Basics - 3
Posted: Thu Apr 11, 2013 4:23 pm
by NachtWürger
SleepWellCPAP wrote: That comment really brushed my hair the wrong way.
Well yes, that is clear from you avatar.
Outside in the Fla sun with a drooping, wet hairstyle, jacket, tie, button-down shirt is a good bit dorky.
May I suggest with a different hairstyle and more relaxed avatar, no one would ever have objected to your signature?
Appearances do matter when you are trying to sell something.