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Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Fri Mar 01, 2013 11:25 am
by Todzo
traveling Utz wrote:I looked back through the data this morning, to include last night.. It appears to be common to have the same amount of centrals.. What do I bring with me? or how do I explain this when I go for my sleep study? My sleep study is on 3/11..
For a sleep study I think the goal is simply to be the most like the “normal you” as is possible in that very artificial environment. The job at a sleep study is to experimentally (by actually gathered data that night) show how you are doing with sleep.
traveling Utz wrote:I also made an appointment with the Neurologist that is attached to the sleep center. My Dr's office wasn't to pleased I made the appt without them. They did give me the referral I needed.. I also got a prescription for Ambien CR. I explained I need something, until I can get this figured out..
This is the place to bring your notes, concerns, data and all the rest for discussion. Please remember what I previously posted[1].
traveling Utz wrote:Last night, I took the ambien and went to bed at 9:30.. Was asleep around 10.. I woke up one time for the bathroom, put the mask back on.. and.. wait for it.. YES.. I fell back asleep!! That has been my problem forever!!

Woke up with the alarm and didn't need to drag it out for a half hour to finally get up..
Part of what is happening is that your breathing reflexes are getting used to breathing with the pressure that you have from your PAP. Things should improve with time.

I have found the following useful to help deal with centrals:

Reduce stress

Raise the head of the bed a few inches

Aerobic and when trained some 85% of maximum heart rate interval training.

EERS[1] as previously mentioned

Have a great weekend!

Todzo

[1] :
The ventilatory instability and carbon dioxide maintenance issues associated with Positive Airway Pressure (PAP) therapy are often ignored either through ignorance or lack of perceived options. Therefor I suggest that you read the following and take them with you to discuss with your doctor. The papers:

Gilmartin G, McGeehan B, Vigneault K, Daly RW, Manento M, Weiss JW, Thomas RJ.
Treatment of positive airway pressure treatment-associated respiratory instability with enhanced expiratory rebreathing space (EERS).
Source: J Clin Sleep Med. 2010 Dec 15;6(6):529-38. Division of Pulmonary, Critical Care and Sleep Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Link: http://www.ncbi.nlm.nih.gov/pubmed/21206741

Dynamic CO2 therapy in periodic breathing: a modeling study to determine optimal timing and dosage regimes
Yoseph Mebrate, Keith Willson, Charlotte H. Manisty, Resham Baruah, Jamil Mayet, Alun D. Hughes, Kim H. Parker and Darrel P. Francis
J Appl Physiol 107:696-706, 2009. First published 23 July 2009; doi: 10.1152/japplphysiol.90308.2008
Link: http://www.ncbi.nlm.nih.gov/pubmed/19628721

Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Fri Mar 01, 2013 11:41 am
by StuUnderPressure
Just a thought and worth about what you paid for it.
I think he already knows it is worth a hell of a lot more than he paid for it ! ! !

Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Fri Mar 01, 2013 11:50 am
by DavidCarolina
Hang in. 90 percent of everyone in here battled or is battling. Its a lifestyle. Youre up to the challenge.

Youre still in the learning curve. Can you rig the chin strap to make it work?

Leaking is a constant problem. You have a good mask. Youre sure its the right size?

Go on craigs list if you need to change equipment. No point paying retail when others are
switching stuff same as you.

Just enter cpap into search.

Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Sat Mar 02, 2013 6:48 am
by traveling Utz
Ok..

2 nights with Ambien, 2 full nights with the mask on.. The centrals are continuing, but will have to just keep and eye on it..

The pillows are working better now that I have a chin strap. I am due for a replacement of my mask, was considering the Aloha Pillows, but think I will hold off till I get things settled..

Here is 2 nights ago..

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and now last night...

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I really appreciate everyones information, and believe me I am listening..

Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Sat Mar 02, 2013 4:46 pm
by DoriC
Have nothing to base it on concerning centrals except my husband's data but have you tried lowering your EPR? Your reports look pretty good.

Re: Frustrated.. But not giving up.. Sleep Study again

Posted: Mon Mar 04, 2013 5:33 am
by traveling Utz
I will try to lower the EPR and see if that makes a difference

Looked at the reports from last night.. and had a ton of centrals..

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