CPAPtalk.com

JO'M wrote:

idamtnboy wrote:

cosmo wrote:Move to Canada and get their free health care.

Sad when a US citizen may need to look outside the US for proper medical care because of financial constraints.

Ahhh no, you can't just randomly decide to emigrate to Canada. Especially, if you are seeking "free" healthcare. We have immigration policies, just like the US does.

And our healthcare is not free. I pay for my provincial healthplan, through my taxes and my supplemental insurance through my employer. Our healthcare is universal. There is a difference.

Actually, we weren't really thinking about the financial aspects. It's just that he's been such a whiner ever since he got here, we were hoping that if he went to Canada, Blackspinner would grab him by the scruff and beat the crap out him.

Then perhaps it'd sink in and he'd realize "Y'know? Maybe this isn't so bad after all!"

Guest wrote:

JO'M wrote:

idamtnboy wrote:

cosmo wrote:Move to Canada and get their free health care.

Sad when a US citizen may need to look outside the US for proper medical care because of financial constraints.

Ahhh no, you can't just randomly decide to emigrate to Canada. Especially, if you are seeking "free" healthcare. We have immigration policies, just like the US does.

And our healthcare is not free. I pay for my provincial healthplan, through my taxes and my supplemental insurance through my employer. Our healthcare is universal. There is a difference.

Actually, we weren't really thinking about the financial aspects. It's just that he's been such a whiner ever since he got here, we were hoping that if he went to Canada, Blackspinner would grab him by the scruff and beat the crap out him.

Then perhaps it'd sink in and he'd realize "Y'know? Maybe this isn't so bad after all!"

I don't think it works that way guest

All jokes aside, I know from personal experience that when I feel I have tried everything possible to make something work and it it just isn't happening, there is a great feeling of despair.

By the way, I do great applaud many of the posts on this thread for being extremely supportive of Mozart. Hopefully, he can find something to focus on that will get him moving in a positive direction.

49er

49er wrote:By the way, I do great applaud many of the posts on this thread for being extremely supportive of Mozart.

Well, after the way that boy unnecessarily bad-mouthed Dori and Zoo, I hope he appreciates the support that much more.

Guest wrote:

49er wrote:By the way, I do great applaud many of the posts on this thread for being extremely supportive of Mozart.

Well, after the way that boy unnecessarily bad-mouthed Dori and Zoo, I hope he appreciates the support that much more.

Due to my brain fog, I don't remember that. But obviously, that is not a good thing to do.

49er

Thank you to those who offered positive and sincere suggestions. It is appreciated
I'm interested in hearing what Pugsy has to say, too.

Mozart22 wrote:Thank you to those who offered positive and sincere suggestions. It is appreciated
I'm interested in hearing what Pugsy has to say, too.

Don't forget the apologies to Dori and Zoo.

Mozart22 wrote: What bothers me the most is how I'm supposed to make a decent living and pay my bills. That's what troubles me.
Life costs money and money usually required a job. I have two degrees and I'm no idiot, but when I struggle a lot to work
20 hours per week, I know for a fact I could not survive working the usual 40 hours per week. Very little energy.
I've read that some people take Nuvigil or Provigil, but it can come with some unpleasant side effects and supposedly it's not
safe to take it everyday for years and years. I really need to find a way to be able to work before I sleep myself to
bankruptcy or eviction for being unable to pay bills. I am very willing to work and pay my own way, I just constantly
drowsy and half awake.

I dont know if it will help or not. I take concerta for fatigue. ADHD medication has worked well for my fatigue. I dont know if that will help or not. it sure helped me. The provigil and Nuvigil is very expensive and never worked for me.

yoyoyomonica wrote:I dont know if it will help or not. I take concerta for fatigue. ADHD medication has worked well for my fatigue. I dont know if that will help or not. it sure helped me. The provigil and Nuvigil is very expensive and never worked for me.

Does your sleep doc prescribe the Concerta?

I luv you man, but not enough to read through your threads. So let me ask a question.

Have you talked about your leak line and the possibility that you are mouthbreathing with that nasal interface?

Yeah, and walk two miles every day. Also get control of the diet. Low carb, fresh veggies, meat and eggs, no empty carbs, minimal sugar and salt, blah, blah, blah

Sleep hygiene - learn what it is and do it.

49er wrote:

Guest wrote:

49er wrote:By the way, I do great applaud many of the posts on this thread for being extremely supportive of Mozart.

Well, after the way that boy unnecessarily bad-mouthed Dori and Zoo, I hope he appreciates the support that much more.

Due to my brain fog, I don't remember that. But obviously, that is not a good thing to do.

49er

Mozart22 wrote: Good riddance to you. Now I can sleep better. I'm here for advice from people who actually use xPAP.
You knowing about it because your husband uses it is like me being an expert in physics if I date a scientist.

This may jog your memory. No matter, I just thought I'd give it one more shot, he obviously needs a lot of help in spite of himself and that's what we try to do here if possible. I guess my skin is thicker than I thought.

Fatigue does make one angry

I would advise Mr. Mozart to seek real medical advise as none of us on this board are probably qualified to give dispense advise in any capacity. We're all a bunch of hacks, bag and cat ladies, wannabe astronauts, etc.

Cosmo writes: "I would advise Mr. Mozart to seek real medical advise as none of us on this board are probably qualified to give dispense advise in any capacity. We're all a bunch of hacks, bag and cat ladies, wannabe astronauts, etc."

The problem is that I received better and more compassionate advise here from "hacks, bag and cat laddies, wannabe astronauts, etc " than I did from two board certified sleep specialists ( one a Dr. Katherine Ryan down around Princeton - a 2 hr ride for me who i picked because she won some award as sleep physician of the year or something" who only cared about what the insurance company would pay for - had no interest in print outs from the sleepyhead programs showing my results, claimed to be unable to read the sd-card ( although Pugsy did) and claimed to know nothing about the masks ( which I dragged along) but billed me $250 for a 5 minute office talk that was as informative as talking with my German Shepherd - which was rejected by my insurance company as " a pre-existing" illness - which is total crap

But of course, it's ALL Obama's fault

It was a joke as he was mocking members as he was asking for help. I'm the wannabe astronaut

DoriC wrote:

49er wrote:

Guest wrote:

49er wrote:By the way, I do great applaud many of the posts on this thread for being extremely supportive of Mozart.

Well, after the way that boy unnecessarily bad-mouthed Dori and Zoo, I hope he appreciates the support that much more.

Due to my brain fog, I don't remember that. But obviously, that is not a good thing to do.

49er

Mozart22 wrote: Good riddance to you. Now I can sleep better. I'm here for advice from people who actually use xPAP.
You knowing about it because your husband uses it is like me being an expert in physics if I date a scientist.

This may jog your memory. No matter, I just thought I'd give it one more shot, he obviously needs a lot of help in spite of himself and that's what we try to do here if possible. I guess my skin is thicker than I thought.

Thanks Dori.

Wow, that is not a nice to say and agree with guest that he owes you an apology.

You're a very generous person to be willing to still offer help to him.

49er

Mozart22 wrote:With one month down, I'm gonna give this another 2 months for a total of 3 months. If after 3 months of nightly use
I still feel tired as ever, I'm done with this CPAP stuff. I'm uninsured and paid a lot of money out of pocket for the device, mask, special
pillow, etc. I sincerely hope the next 2 months are much better, but for now it's just one big disappointment.
I can certainly understand why they say a majority of CPAP patients stop using their machine within the first year.

What bothers me the most is how I'm supposed to make a decent living and pay my bills. That's what troubles me.
Life costs money and money usually required a job. I have two degrees and I'm no idiot, but when I struggle a lot to work
20 hours per week, I know for a fact I could not survive working the usual 40 hours per week. Very little energy.
I've read that some people take Nuvigil or Provigil, but it can come with some unpleasant side effects and supposedly it's not
safe to take it everyday for years and years. I really need to find a way to be able to work before I sleep myself to
bankruptcy or eviction for being unable to pay bills. I am very willing to work and pay my own way, I just constantly
drowsy and half awake.

I hear you, I have some of the same concerns. It is really hard to summon motivation to tweak something that isn't helping. I'm almost done a 4-month taper off benzos, and am a few weeks into xPAP, and don't feel any better, and it's very depressing and disheartening. Especially when you need to support yourself.

But it also seems like you are pretty early in this journey. Someone with a trach on another thread said "Overcoming sleep apnea was THE most difficult experience in my whole life. I’ve dedicated the last 5 years treating this disorder and have spent well over $60k treating it. I can finally say with a high degree of certainty that I no longer have a sleep breathing disorder.” That's a worst-case scenario, but this is not something you can fix in a month. Some thoughts:

Your experience suggests that you likely have a multifactorial problem, not just SDB. That sucks, but it doesnt mean you should stop using PAP. If PAP dramatically lowers your AHI & nocturia, then it is helping one part of the problem, and you should continue doing it while you work on other potential issues, not give up on it in 2 months more. You might have insomnia, you could have a comorbid condition (thyroid), you could have mono, who knows. Either way, PAP doesn't cost you any more money to keep using, and it's almost certainly part of the multiple solutions you need for your multiple problems. And for some people it takes months to help.

I recommend doing a lot of reading to find other things you can try. Personally, I really like Dr. Park's book Sleep Interrupted and Dr. Krakow's book Sound Sleep Sound Mind.

I personally have found provigil 1-3 times a week (it's cheap if you get it generic from overseas) to be a big factor that enabled me to work over the past 5-10 years. The side effects are nothing compared to getting fired.