CPAPtalk.com

Goofproof wrote:

DavidCarolina wrote:I plead ignorance, but i do have an oxygen concentrator, and i have used it occasionally with pap.

Im just wondering why the level would be set so low? Especially, as has been pointed out, your already losing some if it
through leak.

My completely inexpert opinion is that a level of 2 isnt going to have much effect beyond placebo reasoning.

My thoughts exactly, that's why I ignored my Dr and reset mine to 4L.
Thank goodness, my teacher's taught me how things really work. Jim

it is dangerous to make a blanket statement about increasing oxygen. in certain conditions too much oxygen can be dangerous. i guess you guys don't fit the conditions where it would be dangerous, or don't appear to. i pray some newbie doesn't read this, raise the level and really harm themselves. if you really don't trust your doctor you should switch doctors or at a minimum do some on line research. if your teacher is a pulmonologist i guess you're good in your individual case. try typing this: is it dangderous to raise supplemental o2 above 2l. copd is the real concern and we generally don't know we are dealing with copd until it is diagnosed. it usually takes a long time to develop and it isn't until serious symptoms appear and the disease is advancing that people get tested and diagnosed. you can have it and not know it. i also read about problems raising o2 causing problems without the proper humidity.

I suppose it all depends on one's overall medical condition and how too much or too little oxygen may impact other factors. I trust our Drs completely, they know our complete history. It's just when we have to consult with a new specialist who may not immediately get the whole picture and starts prescribing new meds and treatments, that things get messed up. So I usually double check with either our Primary Internist or Cardiologist.

Uncle Bill, Now I understand why I was asked by our Drs how I had the HH set up. When I said that we only use Passover because Mike doesn't do well with too much humidity,that seemed to firmly settle the question of how much 02 to prescribe. Mike doesn't have COPD,labored breathing or ENT problems, he seems to be overly sensitive to the normal variations in BP that go on during the night which sets off a series of oxygen-related events that causes semi-consciousness. I don't know the exact mechanics of this but the Drs feel a small dose of oxygen during the night may prevent those events. I would never make any changes myself to the oxygen RX even if I had more knowledge. Now cpap settings I love to fool around with!!

DoriC wrote:Now cpap settings I love to fool around with!!

i feel the same way. with cpap we have sophisticated machines and good software to monitor ourselves. i however wouldn't feel the same way if someone bought a brick on craigslist and started experimenting with pressures without software. i just think o2 is a whole different world that should be left to the doctor.

greatunclebill wrote:

Goofproof wrote:

DavidCarolina wrote:I plead ignorance, but i do have an oxygen concentrator, and i have used it occasionally with pap.

Im just wondering why the level would be set so low? Especially, as has been pointed out, your already losing some if it
through leak.

My completely inexpert opinion is that a level of 2 isnt going to have much effect beyond placebo reasoning.

My thoughts exactly, that's why I ignored my Dr and reset mine to 4L.
Thank goodness, my teacher's taught me how things really work. Jim

it is dangerous to make a blanket statement about increasing oxygen. in certain conditions too much oxygen can be dangerous. i guess you guys don't fit the conditions where it would be dangerous, or don't appear to. i pray some newbie doesn't read this, raise the level and really harm themselves. if you really don't trust your doctor you should switch doctors or at a minimum do some on line research. if your teacher is a pulmonologist i guess you're good in your individual case. try typing this: is it dangderous to raise supplemental o2 above 2l. copd is the real concern and we generally don't know we are dealing with copd until it is diagnosed. it usually takes a long time to develop and it isn't until serious symptoms appear and the disease is advancing that people get tested and diagnosed. you can have it and not know it. i also read about problems raising o2 causing problems without the proper humidity.

What most doctors, and many here don't understand is putting 4L of O2 into xpap flow is probably less of a increase, than using 2L by nasal tubing in the day. Surely your doctor would tell you if you have COPD, before or when he decided to go with added O2. Jim

DoriC wrote: Todzo, you mentioned stress and I notice that when Mike fixates on something to worry about, like not hearing from a favorite nephew for awhile,which happened recently, and I compare those nights with the data ,I begin to see an erractic pattern that develops which then causes me concern. He doesn't verbalize his angst or stress very much but there seems to be a connection. I'll certainly watch for that, thanks.

Hi Dori,
That makes sense to me too. When I'm worried by something, and unable to sleep, my machine reports many central apneas. They are there because that's how my erratic, toss and turn breathing is interpreted by the system. They have nothing to to do with "Sleep Disordered Breathing" and everything to do with "Stress Disordered Breathing"....
Those stupid machines, they can't even tell if you're asleep or not...

greatunclebill wrote:

Goofproof wrote:

DavidCarolina wrote:I plead ignorance, but i do have an oxygen concentrator, and i have used it occasionally with pap.

Im just wondering why the level would be set so low? Especially, as has been pointed out, your already losing some if it
through leak.

My completely inexpert opinion is that a level of 2 isnt going to have much effect beyond placebo reasoning.

My thoughts exactly, that's why I ignored my Dr and reset mine to 4L.
Thank goodness, my teacher's taught me how things really work. Jim

it is dangerous to make a blanket statement about increasing oxygen. in certain conditions too much oxygen can be dangerous. i guess you guys don't fit the conditions where it would be dangerous, or don't appear to. i pray some newbie doesn't read this, raise the level and really harm themselves. if you really don't trust your doctor you should switch doctors or at a minimum do some on line research. if your teacher is a pulmonologist i guess you're good in your individual case. try typing this: is it dangderous to raise supplemental o2 above 2l. copd is the real concern and we generally don't know we are dealing with copd until it is diagnosed. it usually takes a long time to develop and it isn't until serious symptoms appear and the disease is advancing that people get tested and diagnosed. you can have it and not know it. i also read about problems raising o2 causing problems without the proper humidity.

I'm curious about this...
What is the danger, etc...

ozij wrote:

DoriC wrote: Todzo, you mentioned stress and I notice that when Mike fixates on something to worry about, like not hearing from a favorite nephew for awhile,which happened recently, and I compare those nights with the data ,I begin to see an erractic pattern that develops which then causes me concern. He doesn't verbalize his angst or stress very much but there seems to be a connection. I'll certainly watch for that, thanks.

Hi Dori,
That makes sense to me too. When I'm worried by something, and unable to sleep, my machine reports many central apneas. They are there because that's how my erratic, toss and turn breathing is interpreted by the system. They have nothing to to do with "Sleep Disordered Breathing" and everything to do with "Stress Disordered Breathing"....
Those stupid machines, they can't even tell if you're asleep or not...

Thanks ozij for reminding me about these "stupid" machines, I thought it was me! Another question is these erratic nights seem to begin around 5AM, the beginning looks more stable. Is that REM? These last few nights have put his AHI at 6+. When I ask him how he slept he says "good but restless"? I'm also beginning to think that he's going to sleep too early at about 10-10:30 and by 5-6AM he's probably had enough sleep. He's just used to staying in bed until 8AM when DD comes and may just be dozing/arousing those last few hrs. Of course it's hard to pinpoint that with him. Any thoughts?