Re: Help: New ASV user. Here's my story.
Posted: Fri Feb 24, 2012 11:19 am
This reminds me of waking up after surgery back in 2000, before my CSA came along. My friend was there and I kept asking him to tell the nurse that I was breathing but I felt like I was suffocating. She comes by and says 'your pulse oximetry says your blood has plenty of oxygen'; boy was that uncomfortable. That feeling took quite a while to go away and it went away faster when they let me sit up. I have had other surgeries prior but never before that reaction.JohnBFisher wrote:Be certain you discuss this with your doctor. Explain that you will need ventilation during the procedure. Be VERY clear about this. Explain that you do NOT breathe while asleep - not just from obstructions - you simply make no effort to breathe. Tell you doctor / anesthesiologist that you make no effort to breathe while asleep. If they sound as if they do not understand, explain that it is a mild form of "Ondine's Curse". For the longest time a lot of doctors were never taught about sleep apnea, let alone central sleep apnea. But most have heard of "Ondine's Curse".Woolybugger wrote:I have to have a colonoscopy and an endoscopy on Thursday.
I just realized that I have to have sedation.
Is it OK to have sedation with central apnea?
Thanks. wB
While trying to get my central sleep apnea treated, I even ran across one doctor that told me that I could not have central sleep apnea because it is so rare. *GADS*. I asked him if my sleep studies showed central sleep apneas. He answered "Yes, but you can't have it because it is so rare." Always remember that no one else is as concerned about the healthcare you receive as you do. You sometimes have to push for the right answers.
The good news is that most anesthesiologists are VERY good at what they do. They will help you maintain your breathing.