ltts,
The mathematician in me will concede one point: Not all DMEs are slimy, evil monsters out to cheat us. I've got one of the very rare good ones. So good ones do exist. But most DMEs act as though we are indeed idiots and provide us with mighty little real service.
However, these points I must contest:
ltts wrote:
All recent PAP devices are data capable. They ALL monitor usage
We
know our own usage. The usage data is NOT collected to make sure that our therapy is actually
effective in terms of keeping the number of apneas and hypopneas sufficiently low. Nor does usage data help us determine whether leaks are a reasonable explanation of why we're not feeling better in spite of being 100% compliant. You have to understand, from our point of view, you've just given us Big Lie Number 1: Too many of us have asked DMEs if the machine they want to sell/rent us record full efficacy data and we're told, "yes it does, it records usage data."
But I wonder if you go to McD's and demand a big Mac for the price of a cheeseburger. Or go to the Ford dealer and insist they give you a loaded car with a navi system for the price of a basic escort? You wouldn't even dream of it, right? So why, pray tell, do you think a DME provider should give you a high end device when your insurance will only pay for a basic model?
My own insurance company demands that I pay a 50% copay, and when I was first put on CPAP in September 2010, the allowable TOTAL amount for the blower unit for a CPAP was in the neighborhood of $900, plus another $250 for the humidifier. This is enough to completely cover the price that on-line CPAP providers routinely charge for the S9 AutoSet and it more than covers the cost of a PR System One Auto or a F&P Icon Auto.
And every DME I contacted said the contract would be for a 10 month rental on the blower unit (insurance company demand) and an outright purchase for the humidifier. And every single one of them said my copays would be $45/month and the insurance company would pay $45/month. And every single one of them except for the one that earned my business would not talk to me about anything except an S9 Escape or PR System One Plus, which I was not interested in. I wasn't interested in paying $450 out of pocket as my 50% copay for a machine that would record no efficacy data and that I could buy on-line for about $600 or $650 on line.
The DME that earned my business, however, specializes in CPAP equipment and offers each of their new customers/patients a choice of the S9 AutoSet or the PR System One Auto. They don't even bother with selling their customers cheaper, more basic machines. Hence the markup they put on their machines is roughly the same as the on-line places. And why do they only sell the APAPs? Well, the company was founded by a group of RTs who USE PAP machines and had gotten disgusted with the constant efforts by their former managers to insist on denying customers the higher end machines when the company would still make a profit on the higher end machines. They also believe that customers/patients should be able to track
all their data---particular in the early, difficult days of adjusting to CPAP. And they know that any APAP can be set up to run in straight CPAP mode. And by setting their customers up with APAPs, they don't need to worry about "loaner" machines whenever a sleep doc decides to order a week or two of autotitration because a patient is not feeling any better with the machine than before or when a patient's symptoms returns. It's simply easier on both them as a DME and the patient for the patient to bring the their machine in and have the settings changed to APAP.
And so, because I was forewarned and in no hurry to start my therapy with a machine I did not want, I was able to do some serious comparison shopping around before settling on a DME. And with lots of hard work, I managed to find a DME that doesn't gouge their customers (or their customers insurance companies) and does provide top of the line equipment to
all their customers. And also provides some top notch customer service too. Because in the end, this particular DME realizes that a customer who "makes" it and becomes compliant and
stays compliant will, in the long run, generate far more profit for the company than they "lose" up front by providing the S9 AutoSet and PR System One Auto instead of the cheaper, more basic S9 Escape and PR System One Plus machines.
But from what I've read and from folks whom I've talked to in person, most people are not as lucky as I am at finding a quality DME that genuinely cares whether they make it to successful PAPing or not.