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Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sat Jan 14, 2012 5:52 pm
by sickwithapnea17
I heard that not enough bipap therapy makes asthma impossible to control?

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sat Jan 14, 2012 5:59 pm
by Kairosgrammy
I don't see a pulmonologist right now since my asthma is under good control. I haven't had a real asthma attack in years. I just take my advair and keep my emergency inhaler available and I'm fine. Get a tad wheezy now and again but nothing that the Emer. Inh. can't handle. Now, if it was back after daughter was born (I was in the ICU twice before she turned a year with severe asthma and was threatened with the ICU on multiple occasions. There was not a morning that I did not wake up in full attack mode except when I was on predisone which was under a doc's supervision), my doc would have me being seen by a pulmonologist. He's never had problems saying, "That's more than I can handle. You need to see so and so" He makes great referrals too. i must say, I have taught my doc well Or when he thinks its about time he checks me out. I can honestly say, he's the most conscientious doc I've ever gone to at least in my adult life.
howkim wrote:
Kairosgrammy wrote:You need to be in regular consultation with a pulmonologist, not your family doctor.
I second that motion. I see my PCP for my asthma only because he is also a pulmonologist.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 7:46 am
by cflame1
sickwithapnea17 wrote:I heard that not enough bipap therapy makes asthma impossible to control?

No it is not impossible to control with Bipap

It is impossible to control when you are messing around with your own medication... without the actual treatment direction of a real pulmonologist.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 9:01 am
by Kairosgrammy
No it is not impossible to control with Bipap

It is impossible to control when you are messing around with your own medication... without the actual treatment direction of a real pulmonologist.[/quote]

It's even semi controllable with cpap. I know that although my asthma is under control, every so often during spring and fall (favorite seasons weather wise but my lungs/allergies don't agree ) I do have troubles, mostly just get the tight feeling and make a lot of ucky stuff. Of course, night time for me is when I am going to be most symtomatic. Usually, when I put my cpap on, I feel that the tightness eases a good bit. Of course, that is probably more of a psychological thing. Never really thought to ask doc.
As for our friend, I believe we've all tried to tell her the first thing she needs is to be under the regular treatment of a pulmonologist and not self-medicating. Don't think she's listening, I'm afraid that her actions could quite possibly be fatal not to mention causing permanent damage to most of her major organs and brain. Bodies don't do well without oxygen. That's why there are so many health consequences to sleep apnea.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 12:44 pm
by cflame1
agreed... the main reason why I posted in the first place was so that nobody that comes along later has the same misconceptions as swa.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 1:19 pm
by sickwithapnea17
I am still having wheezing and an obstruction and even steroids, prednisone only helps a little
I seem to have some systemic inflammation, maybe it could be allergic or Churg-strauss or something

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 1:28 pm
by chunkyfrog
Please see your doctor; and don't give up until he/she has a solution for you.
Asthma is nothing to treat online.
If you don't have insurance or can't afford a doctor, go to a free clinic.
Take something to read. Your life is too important to let pride get in the way.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 2:16 pm
by Kairosgrammy
You are not listening or reading with comprehension. Go to the doctor. Regularly. Until things are better. You may be right or you may be wrong but we are not the people to give you advice. We are more than happy to give you support but advice even from someone like me who has the same condition, are not the ones to seek advice, counseling or treatment options from. Go to a pulmonologist. Get under regular treatment. You are doing potentially fatal things to your body. Bodies do not live without oxygen. You may feel we are yelling at you. We aren't. We just want you to go the right direction. We aren't that right direction.
sickwithapnea17 wrote:I am still having wheezing and an obstruction and even steroids, prednisone only helps a little
I seem to have some systemic inflammation, maybe it could be allergic or Charg-strauss or something

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 3:16 pm
by DoriC
I 'm wondering if all you wonderful people who are trying so hard to help should be starting to get suspicious about this poster. Either he's pulling your chain to see who bites into his outrageous statements without ever acknowledging some of the excellent advice you're giving him or he's just extremely lonely and you're keeping him company. Whichever, he's either off the wall or in a very sad situation that this forum can never fix. Sorry to sound so harsh because I know you're all speaking from the heart and it bothers me to see you all going around in circles. I hope you can read this post before it gets deleted as my others have.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 3:54 pm
by Madalot
DoriC wrote:I 'm wondering if all you wonderful people who are trying so hard to help should be starting to get suspicious about this poster. Either he's pulling your chain to see who bites into his outrageous statements without ever acknowledging some of the excellent advice you're giving him or he's just extremely lonely and you're keeping him company. Whichever, he's either off the wall or in a very sad situation that this forum can never fix. Sorry to sound so harsh because I know you're all speaking from the heart and it bothers me to see you all going around in circles. I hope you can read this post before it gets deleted as my others have.
Even if it gets deleted, it still displays in the history when in "reply" mode so your wonderfully caring post will not be lost.

Thanks for being so caring. You are such a wonderful lady!

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 4:38 pm
by Madalot
SWA...Messing with Dori will definitely tick off people here. Her post was pretty damn nice considering how stupidly you are behaving.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 6:40 pm
by magicpsn
I have to agree with the other posters here...see your doctor!!! Your asthma is "not under control"! I too have asthma and know what you are dealing with. I wen't threw a period of time when my asthma was not under control...and I was using what my doctor prescribed! Just because your doctor prescribes you something, there may be something else that will work better if what they first try doesn't not work! You need to be your own advocate and and keep going back to your doctor! You should not have to use your "fast acting" inhaler much if your asthma is under control with other "long acting" medications. For me it was Advair that made a big difference as other long acting meds did nothing (even though the docs said they should help)...I actually think that some meds may have made it worse! You need to find the correct medications that work for you!!! Keep talking to your doctors and tell them that it is "not under control", until it is "under control"!

Rich

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Sun Jan 15, 2012 8:26 pm
by Kairosgrammy
I think you are getting me mixed up with the orignal poster who says over and over she's having problems. Mine is under control except for the occasional use of an emergency inhaler during high allergy seasons (I generally get a new inhaler because the old one tastes bad, not because I run out if that gives an idea of how often I use it). I am under a doctors care and it works and I sure won't mess with success. Like you, I went through a spell where I wasn't. I can't tell you how many meds they tried me on. I went home after the first visit to ICU feeling like a medicine chest. Nothing really worked except for predinisone at controling my asthma. They would wean til I was on an every other day regimen and then my asthma would get horrible again. I was in ICU twice with it and threatened with icu multiple times. I don't think I woke up very many mornings when I wasn't having a full fledged attack. Thankfully, those days are past and I truck along with barely a hitch. Now if I could lose my allergies! The original poster's asthma is way, way out of control. If she doesn't do something soon she's going to be in very big trouble!!! I've been in big trouble and it wasn't because I wasn't being persistant. Really couldn't help but be persistent. I kept ending up in the ER with blue lips.
magicpsn wrote:I have to agree with the other posters here...see your doctor!!! Your asthma is "not under control"! I too have asthma and know what you are dealing with. I wen't threw a period of time when my asthma was not under control...and I was using what my doctor prescribed! Just because your doctor prescribes you something, there may be something else that will work better if what they first try doesn't not work! You need to be your own advocate and and keep going back to your doctor! You should not have to use your "fast acting" inhaler much if your asthma is under control with other "long acting" medications. For me it was Advair that made a big difference as other long acting meds did nothing (even though the docs said they should help)...I actually think that some meds may have made it worse! You need to find the correct medications that work for you!!! Keep talking to your doctors and tell them that it is "not under control", until it is "under control"!

Rich

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Mon Jan 16, 2012 2:09 am
by ChristellaMayor
I had Asthma before 2 years and I had a same problem as you told. My consultant prescribed me to take flunisolide inhaler and ipratropium. After 3 month I totally recovered from asthma.

Re: Wheezing, Asthma, Only Prednisone helps sleep

Posted: Mon Jan 16, 2012 11:49 am
by Jordy
I 'm wondering if all you wonderful people who are trying so hard to help should be starting to get suspicious about this poster. Either he's pulling your chain to see who bites into his outrageous statements without ever acknowledging some of the excellent advice you're giving him or he's just extremely lonely and you're keeping him company. Whichever, he's either off the wall or in a very sad situation that this forum can never fix. Sorry to sound so harsh because I know you're all speaking from the heart and it bothers me to see you all going around in circles. I hope you can read this post before it gets deleted as my others have.
I agree with Dori on this one. Looks like all the deleted posts have been recovered. And if you look back at SWA's posts in other topics as well you will see he jumps from one alarming tangent to another. I am at the conclusion he is just messing around with the posters on the forum. It's too bad that people who want to mess with others come here to bother those who just want to help.