Re: apap machine usage--worst than my WORST night w/o a machine?
Posted: Thu Aug 04, 2011 1:00 pm
Is deleting the "ramping" something we can do at ourselves or would I need to bring it to the DME to do so?
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Right next to the power button, it should say "Escape, Elite, Escape Auto, or AutoSet." Let us know which one.Fitness Seeker wrote:How do i know which S9 model i have? The unit itself doesn't say.
Ramping is a patient comfort feature, as is humidity, and EPR (exhalation pressure relief). So you should be able to adjust those as you wish for your comfort. Some DME's, however, lock patients out of EVERYTHING, including the ability to adjust patient comfort features. Why do they do this??? Because they think that "patients" are too stupid to touch anything except the on/off button. Some DME's lock you out of being able to see your data as well.Is deleting the "ramping" something we can do at ourselves or would I need to bring it to the DME to do so?
Sounds like you may have the mask misfitted if you are stuffing the pillows into your nose. On the rare occasions when I do have to fiddle with this mask, the fiddling is best described as pulling the pillows AWAY from my nose and letting them gently fall back against my nostrils.Fitness Seeker wrote: At one point the nasal pillows slipped out and i was 'half awake' and stuffed them back into my nostrils.
In my distant memory, there was a significant amount of time before I adjusted to this treatment. Parts of the problem were too low of a ramp, too low of a pressure, fighting with the mask(s), interference by limb movements, and a brain conditioned to whacked out sleep patterns. The fact that I did eventually adjust and relearn how to sleep makes me just want to scream to read that those you count on to guide you would think that you could even begin to know at this point that you won't be able to tolerate cpap. The only issue you report is not being able to fall asleep. What they should have done is #1 Ask about any mask issues, #2 Consider if you are using the ramp and it's too low for you and keeping you in a state of alert, #3 Affirm through your data that your treatment is therapeutic and that your pressures are at optimum effectiveness for you. Maybe your pressure range starts too low, which could also affect your ability to fall asleep, and #4 Consider trying you at a fixed pressure to see if it helps. They have not even begun to try to help you make this work. Shame on them! And once they have done due diligence, maybe a sleep aid on a temporary basis would be merited. I wouldn't suggest that at first because you don't want to mask a problem.Fitness Seeker wrote: They told me since I seem to "not tolerate CPAP" that i shd consider other alternatives, ie dental appliances.
Central apneas, bipap, etc. don't matter if you don't fall asleep.Fitness Seeker wrote: Immediately i jumped into bed and lay there, decided to plug up w/ the machine. AT this point it was obvious i was in severe sleep debt and that i SHOULD be able to fall asleep. Nope. I was plugged on the machine for ONE HOUR and couldn't fall asleep, even w/ the sleepiness that prevented me from doing the rest of my errands and attending a class I planned to take.
I emailed the Sleep Clinic (I"m suppposed to go back for Follow up in 3 wks) to ask them if the apap machine ideal for me, b/c at an AWAKE Meeting the presenter told me (from the data on the sleep studies) that i was developing central apneas (4) from using the cpap. (i only had hypopnea events, 15.1 on the sleep study). But once cpap kicked in i had central apneas. So the presenter told me to inquire about other machines, ie bilevel, servo ventiliator, etc. When i brought this up on the email the sleep clinic told me "those machines' are for more "severe forms of apnea". Is this true? Sigh. They told me since I seem to "not tolerate CPAP" that i shd consider other alternatives, ie dental appliances.
In my humble opinion, the person who told you to "use it for a couple of hours at nite" gave you very bad advice. Every single time you consciously go to sleep without the mask on your nose, you allow your unconscious mind to continue to believe that the mask is NOT the new reality of your life.Fitness Seeker wrote:Update--it'll be 3 wks this Sun on apap. I'm still not having much improvement. In fact, I took the advice of using it for a couple hours at nite and have been yanking off the mask alot.
I certainly can identify with your statement that you just can't fall asleep when you go to bed since that was one of my own critical problems during the first two months of therapy---before the insomnia started to morph into sleep continuance insomnia as well as bedtime insomnia.This isn't good. I keep trying to trace the SOURCE of my problem:
a. mask?
b. pressure?
c. other?
I can't really pinpoint it as the mask seems ok (FX Swift nasal pillows).
I just can't FALL asleep. (emphasis added)
Been there, done this. Only I do have the advantage of being a tenured college professor, so being fired is not a worry. However, yawning uncontrollably in a class that you're teaching and being somewhat concerned that you're going to fall asleep at the board (while teaching) is a novel, uncommon, and very uncomfortable feeling. And it did get that bad for me last fall.Fitness Seeker wrote:I started back work today and I'm really concerned that it's taking a toll on me. AT this rate, I"d be fired sooner or later. Can't tell your employer you've just got to lie down to nap! I was off today , took my vehicle in for inspection, intended to attend a 3-hour class. however, i felt sooo sleepy i wish someone could drive me home and it was only 10 min local to get home.
Because you keep choosing to yank the mask off and reward your unconscious mind and the childish part of your conscious mind by sleeping without the mask. So they continue to conspire to keep you awake every time you try fall asleep with the mask on your nose: They know they'll win if they keep you awake long enough; they know you eventually will consciously choose to take the mask off and consciously choose to go to sleep without the mask on.Immediately i jumped into bed and lay there, decided to plug up w/ the machine. AT this point it was obvious i was in severe sleep debt and that i SHOULD be able to fall asleep. Nope. I was plugged on the machine for ONE HOUR and couldn't fall asleep, even w/ the sleepiness that prevented me from doing the rest of my errands and attending a class I planned to take. So, after 1 hour, i yanked the mask off and lay there, eventually i did fall asleep (w/o the mask). Why does this happen?
Given your current severe difficulties, you need to demand to be seen much sooner than that follow up scheduled for 3 weeks from now. Call them and insist on talking to a doctor, nurse practitioner, or physician's assistant. Tell the receptionist/screener that you're experiencing so much sleep deprivation that you're starting to think about just quitting and that you need help immediately in trying to solve the most serious problem of not being able to get to sleep with the machine. Tell them that you are worried about being fired from your job. The message will get through and you'll get a call back from someone who really can talk to you about potential ways to fight the current insomnia medically---either through cognitive behavior therapy or prescription sleeping pills or both.I emailed the Sleep Clinic (I"m suppposed to go back for Follow up in 3 wks) ...
Several comments:... to ask them if the apap machine ideal for me, b/c at an AWAKE Meeting the presenter told me (from the data on the sleep studies) that i was developing central apneas (4) from using the cpap. (i only had hypopnea events, 15.1 on the sleep study). But once cpap kicked in i had central apneas. So the presenter told me to inquire about other machines, ie bilevel, servo ventiliator, etc. When i brought this up on the email the sleep clinic told me "those machines' are for more "severe forms of apnea". Is this true? Sigh. They told me since I seem to "not tolerate CPAP" that i shd consider other alternatives, ie dental appliances.