CPAPtalk.com

secret agent girl wrote:

NotMuffy wrote:I'll go back and reassemble all of these discussion points in what may hopefully be a more understandable format.

This would be really great. I'm having a sleep study on the 8th.

Upon reviewing the posts, I think it would be a much better idea to point your tech in this direction to review the discussion. That way none of the technical settings would get lost in translation.

Meanwhile, it sounds like your overall plan is working out quite well.

Good luck!

Boy, them Steeler fans are really taking this hard!

PS - That "No Call" at the end was the right thing. Not even close.

There was excellent information in this thread. I am disappointed that much of it has disappeared.

NotMuffy wrote:Say, I have a great idea!

I think it would be a great idea to get a better understanding of everyone's "Psychological Make-Up" in order to cut down on all this "angst".

Let's start out with a RoarShock Test:



BTW, does anybody have the Answer Key to this thing?

To me, they all look like a Woman's Reproductive System.

Oh-oh.

NotMuffy's brain on drugs???

Rebecca R wrote:There was excellent information in this thread. I am disappointed that much of it has disappeared.

Uh oh.

I'm sad to say that Secret Agent Girl has deleted every single post of hers, all the way back to 2009 when she joined. Even the subject lines have been replaced with a "."

What in the heck happened? What did I miss?

Well, I warned you guys about bringing up the weight thing.

NotMuffy wrote:

secret agent girl wrote:

NotMuffy wrote:I'll go back and reassemble all of these discussion points in what may hopefully be a more understandable format.

This would be really great. I'm having a sleep study on the 8th.

Upon reviewing the posts, I think it would be a much better idea to point your tech in this direction to review the discussion. That way none of the technical settings would get lost in translation.

Might you want to re-reconsider a summary of the discussion points?

I would say, in a nutshell, that unless that laboratory develops a thorough understanding of FL, as well as a "protocol" to deal with them, the titration will probably be incomplete.

That software package has a basic audit trail, and every indication is that the settings chosen to monitor CPAP flow were such that all FLs were smoothed out (and hence obscured):



High filter needs to be somewhere between 35Hz and off.

About the only thing an 0.1 does is make the automatic scoring function work.

I would love to have the acquisition tech join the discussion.

A good argument re: FLs in CPAP would be:

"Is the FL from the patient or the wave profile of the machine?"

Lookin' sharp there, LSAT.

I'm sorry to see Secret Agent Girl go. I liked her style and, frankly, we needed more people like her on this forum. Something must have really upset her for her to have spent hours deleting all of her posts. Another learning experience lost.

SleepingUgly wrote:Might you want to re-reconsider a summary of the discussion points?

NotMuffy wrote:I would say, in a nutshell, that unless that laboratory develops a thorough understanding of FL, as well as a "protocol" to deal with them, the titration will probably be incomplete.

That software package has a basic audit trail, and every indication is that the settings chosen to monitor CPAP flow were such that all FLs were smoothed out (and hence obscured):



High filter needs to be somewhere between 35Hz and off.

About the only thing an 0.1 does is make the automatic scoring function work.

I would love to have the acquisition tech join the discussion.

A good argument re: FLs in CPAP would be:

"Is the FL from the patient or the wave profile of the machine?"

You're a good man, Muffy.

OutaSync wrote: . . . Something must have really upset her for her to have spent hours deleting all of her posts. . .

Maybe.

Another possibility is that she, or her husband, feared that there was something posted that could make her identifiable as she went forward in her treatment with her medical team, based on the help she got here.

I think that both NotMuffy and the ones he helps take some personal risk in having these discussions where we all can listen in and learn from them. I am glad they are willing to do it, for my benefit and others. But it can be spooky sometimes for the ones who are helped to see so much of their medical condition and personal thought-processes recorded online, especially when they think about how to move forward with the information they get.

Then again, part of secret-agent training is learning to cover your tracks on the way out . . .

I certainly wish her the best and thank NotMuffy for all he does here.

jnk wrote: But it can be spooky sometimes for the ones who are helped to see so much of their medical condition and personal thought-processes recorded online, especially when they think about how to move forward with the information they get.

I hadn't thought of that, but of course, you are right. I haven't had the courage to ever go back and re-read all the stuff I wrote when I was in my sleep deprived, desperate stage. I'm sure it would embarrass me, and I do remember what a struggle it was to try to keep up. Some day I intend to go back and read it, so I'm glad I didn't delete it.

And I'll always be grateful to those who helped me.

Bev

jnk wrote:

OutaSync wrote: . . . Something must have really upset her for her to have spent hours deleting all of her posts. . .

Maybe.

Another possibility is that she, or her husband, feared that there was something posted that could make her identifiable as she went forward in her treatment with her medical team, based on the help she got here.

I think that both NotMuffy and the ones he helps take some personal risk in having these discussions where we all can listen in and learn from them. I am glad they are willing to do it, for my benefit and others. But it can be spooky sometimes for the ones who are helped to see so much of their medical condition and personal thought-processes recorded online, especially when they think about how to move forward with the information they get.

Then again, part of secret-agent training is learning to cover your tracks on the way out . . .

I certainly wish her the best and thank NotMuffy for all he does here.

Good points JNK. I also wish Secret Agent Girl luck and am grateful to NotMuffy. This was a good thread and although I am disappointed, I understand the need for anonymity. We've seen what happened to Bleeping Beauty on this forum when medical people thought they had been criticized.

Sounds like a reasonable explanation, yet somehow, I don't think it's correct. But what do I know.