jnk wrote:All data has limited usefulness. Good scientists know that. (Even a few "Nobel laureates." ) That doesn't make the data useless to a good scientist aware of the data's limits. Being aware of the limits (the method of collection, how it compares to other data, what others have and have not been able to accomplish using it) makes the data more valuable, not less so. That is science 101.
So if I assume the data is something that it is not, that is MY fault, as I see it, not the fault of the providers of the data, who are mostly transparent when it comes to how the data is collected and why.
And I appreciate others' pointing out to me the limits of the data my machine provides and how it is best used to optimize my therapy, as far as choosing a pressure, or range of pressures, for normalizing my breathing to the extent possible using airway pressure provided by a particular machine at a particular time in my life.
ps-Bill talks a little too rough for my tastes at times, too, but I find, in my experience, that he often makes very good points that are useful to me.
>>Bill talks a little too rough for my tastes at times, too, but I find, in my experience, that he often makes very good points that are useful to me.<<
Actually, Bill talks out of his a$$ - in this case essentially accusing me of being both lazy and stupid. Notably, his posts - in this topic at least - demonstrate a dearth of substantive information. Whether he possesses substantive (helpful) information remains to be seen. It has not been evident in this topic.
ozij wrote:"
jonquiljo wrote:
Well, whether you agree with what I say or not, the bottom line is that each one of these XPAP machines or "flow generators" is quite likely feeding us information based on a totally differing set of criteria. Apneas, hypopneas, etc. - all have different definitions depending on the manufacturer.
They have differen
operational definitions, because none of them can measure beathing the way it can be measured in the lab.
I'm not looking for "reference absolutes", but rather looking for some agreement among manufacturers as to what events they are trying to prevent. If not, then there is total chaos being reported to the end user and physician - and that is absolute nonsense, even for the medical world!
They are trying to prevent breathing disruptions, and have different way of concluding a breathing disruption ouccured.
Looking for "trends" in phenomena means that the events being examined have some resemblance to each other. If you use a Resmed machine and see totally different information than what you see when using a Respironics machine then you are chasing "sleep fiction."
The trends I use as an APAP user are between the nights of
a single machine, as I am sure it true for Bill, and jnk, and the majority of people who use
a machine's reported data to get
that machine to give them the most effective therapy. Having experienced 4 different autos, I can tell you they work differenty. Of the 4 there were two I whose way of delivering air was intolerable to me. The two others give me informative trends about my breathing events, and I used each machine's trends to improve the therapy each machine gave me.
Frankly, all you have to do is invent a XPAP machine that uses different criteria for sleep events and you can perhaps lower someone's AHI based on the definitions alone. I see no real meaning in that or trends. Now the medical community seems to have decided that an AHI over 5 defines sleep apnea. But that means you have to agree what an AI and an HI mean - or that definitions is meaningless.
You seem to confuse the event definitions used by the medical community, and the operational definitions used by APAP makers. I pity you for being incapable of seeing meaning in the data you gather from your machine, since it means a. you wasted money on data capable machine b. you feel cheated c. you do not have the tools youi need help you improve your therapy should the need arise -- a very unhappy and frustrating state of affairs for a person to be in.
All kidding aside, its not like anyone can't feasibly come to some agreement with how these machines score events.
Agreement? It is either published or it is not. If it is published, you either trust it or you do not. Agreement does not come into it at all.
As long as we are kept in the dark we will run around thinking we know what is going on while we sleep, but we really don't know a thing.
There are no so blind as those who will not see. You and DHC have just been told by Bill Bolton that searching this forum will give you many links to how the machines collect their data and how they score it. You can also use google scholar, and google patents. Instead of searching and reading and learning you both perfer to remain in the dark caused by your psuedo scientific doubt casting. Casting doubts is a great way of giving youself a sense of superiority. Unlike learning new things -- which makes you face how little you understand and know.
They don't sell these machines saying they are incredibly subjective and need to be taken for trend data only - they sell them as reporting reality -
There are studies showing how the machines' reporting correlates with the analysis made of the same data, by experienced sleep techs in sleep labs. Look for them.
If you think a company can simply say "my machine get's lower AHI" to beat the market, think again: Their competitors will take the machines to a sleep lab, and show how valid the statements are. As a matter of fact, I'm sure they've all done that with each other's machines already.
Sorry but I am shocked by the simple yet elegant comparison reported by the original poster.
I am shocked at the way both you the, scientist (? did yoiu ever get that PhD you studied for?) and the original poster ignore the fact that the dependent variable (AHI) is one achieved by 2 different machines,
at different pressure levels. The "simple and elegant comparison" you admire confounds 2 independent variables. A no no every budding scientist learns to avoid when he or she is in his or her educational diapers.
Speaking of Nobel Laureates -- may I recommend
"Opening Pandora's Box: A Sociological Analysis of Scientists' Discourse "?
The book can be dowloaded in pdf's in this site:
http://www.surrey.ac.uk/sociology/peopl ... as_box.htm (the HTML links dont' work).
Although in this book we aim to obtain general conclusions about scientific discourse, most of
the data we shall be drawing upon come from the interviews that we carried out with scientists
working on bioenergetics, and from their research papers and other literary products.
>> You and DHC have just been told by Bill Bolton that searching this forum will give you many links to how the machines collect their data and how they score it. You can also use google scholar, and google patents. Instead of searching and reading and learning you both perfer to remain in the dark caused by your psuedo scientific doubt casting. Casting doubts is a great way of giving youself a sense of superiority. Unlike learning new things -- which makes you face how little you understand and know.<<
And yet another allegation of laziness. Ignorance I will accept - and was the reason for posting this topic originally - to relieve the condition. In fact, I have managed to relieve at least some of it - though not enough. The allegation of laziness is clearly incorrect and is made in ignorance by the author (ozij, in this case). HOWEVER - now there is a new allegation - this one assigning the motive of "giving yourself [myself] a sense of superiority."
Addressing this new allegation - I am not the least bit interested in representing myself as "superior" - to anyone, but especially to a forum with participants whom I have never met and have only recently begun to interact with. The allegation is non sequitor - except in the psychological context of projection by the author. As already stated, my question was a sincere one and there was no ulterior motive (such as wishing to be seen as "superior" - where in the heck does THAT come from ).
>>I am shocked at the way both you the, scientist (? did yoiu ever get that PhD you studied for?) and the original poster
ignore the fact that the dependent variable (AHI) is one achieved by 2 different machines,
at different pressure levels. The "simple and elegant comparison" you admire confounds 2 independent variables.<<
Maybe you missed my comment upthread (here --
viewtopic.php?f=1&t=56345&st=0&sk=t&sd=a#p528340) in which I acknowledged the suggestion to remove the pressure differential from the equation by using both machines in straight CPAP mode at a given pressure. It is at least a misrepresentation that I ignored the input provided - but then again, as I am coming to discover, misrepresentation and/or ad hominem disparagement seem to be the stock-in-trade of at least of few of the forum denizens while engaging in a game of sport to NOT answer the questions posed.
Interestingly, in this topic billbolton addressed the question (it is not yet clear to me how ResMed calculates their published AHI. Do you know ?) with this answer:
The same way everyone else does AI+HI = AHI (ref --
viewtopic.php?f=1&t=56345&st=0&sk=t&sd= ... 15#p528746).
Yet, in the post immediately preceeding that (found here --
viewtopic.php?f=1&t=56345&st=0&sk=t&sd= ... 15#p528731), ozij wrote:
"Resmed does not change pressure in response to hypopneas. But is scores them. The S8 reports hypopneas prolifically, the S9 seems to report less." and concurred with the conclusion that reported AHI by ResMed is different than reported AHI by DeVilbiss.
Those two answers appear contradictory (and note the word "seems" ozij used in her answer with emphasis - added). The resolution to the contradiction likely lies in the specifics of detecting and scoring AI and HI. Unfortunately, those who MIGHT be able to provide some answers or insights would rather engage in a game of 'sport' to NOT provide it. Anyone want to venture a guess as to why?
Back on topic (and in the context of ignoring inputs) - I'd like to return to the question raised (and ignored) upthread (
viewtopic.php?f=1&t=56345&st=0&sk=t&sd= ... 15#p528727) and has to do with USAGE of AHI. Does AHI hold any value to the insurance companies? Does anyone know?
Since the question of trends versus absolutes (in this case, better termed 'standards') arose - my bet is that everyone can appreciate the value in having data so that a person can see, and hopefully improve, their therapeutic benefit using that data over time. In that context, it would be mostly (though not entirely) true that using a machine producing consistent metrics is needed and the absolute values produced for the metric is far less important.
That does NOT abrogate the value of having a standard of reference that ALL manufacturers would apply in their algorithm. And PLEASE do not insinuate (yet again) that I am missing the issues of detection, scoring, analysis and response. I *do* have some level of both understanding and appreciation of the differences - just as I understand there is a difference between results from home use (with only air flow for analysis) versus a lab study. In point of fact, I chose to NOT bring those into the discussion earlier, as I did not want to appear condescending (though that does not seem to bother some others). I merely wanted (and still want) to find answers to what seems a simple question.
Is it not correct there exists an organization with the mission to establish clinical standards for sleep medicine? Does that, or any, professional organization publish any standards for the metrics such as AHI?
Is there really ANY valid argument that a standard for AHI used by all vendors would NOT be valuable?