Re: This post was vaporized
Posted: Wed Apr 21, 2010 12:58 pm
The take on the 'post vaporizer' from a frustrated newbie:
I think he was diagnosed and prescribed, but doesn't want to use it. He is searching for a way out, and thought this would be a place full of others who could help him justify his going off CPAP. I don't think he's hawking a miracle cure, but rather searching for one. I think he came here expecting support for that position, and didn't realize we've all had and are going through the same struggle, and therefore have little patience for it.
I don't think he expected to be told quite so bluntly that he was wrong. I'm not saying anyone here was wrong in saying it so bluntly, as I support the tone taken with him. CPAP is the best treatment for OSA, the only one I've yet found out about that is non-invasive and actually works to help you. I don't like the thought of having this thing on my face every night for the rest of my life either, and am very frustrated that it isn't yet working well for me. I have been on CPAP for over two months now, and have kept it on my face the whole night only once. (Though I was close a second night this week! ) I understand the frustration that goes along with starting this treatment. However, I also understand that this is a journey for me. The road may be rough in the beginning, but you only stay on the rough part by standing still. I want to see my daughter grow up. I want to be there for her as she makes her way through her life. I want to be there taking pictures and embarrassing her as she graduates from high school. I want to see her toss her cap in the air when she graduates from college. I want to walk her down the aisle when she gets married. I want to play with my future grandchildren. There's no argument. I'm doing it. I am 100%, 'put that thing on my face every night I've had it' compliant, and that's the way it will stay. I have too much to live for to quit just because it's hard.
What KMCKOB needs to do, if he's legitimate (I reserve the right to be wrong), is find that thing that he wants to do, then do whatever it takes to get there. Quitting treatment is giving in to your illness, letting it take all of that away from you. Will you win? I don't know. I don't know if I'll get to do all that I said above if I go through treatment. I KNOW I won't if I give up.
Now, who do I talk to about my Oscar?
I think he was diagnosed and prescribed, but doesn't want to use it. He is searching for a way out, and thought this would be a place full of others who could help him justify his going off CPAP. I don't think he's hawking a miracle cure, but rather searching for one. I think he came here expecting support for that position, and didn't realize we've all had and are going through the same struggle, and therefore have little patience for it.
I don't think he expected to be told quite so bluntly that he was wrong. I'm not saying anyone here was wrong in saying it so bluntly, as I support the tone taken with him. CPAP is the best treatment for OSA, the only one I've yet found out about that is non-invasive and actually works to help you. I don't like the thought of having this thing on my face every night for the rest of my life either, and am very frustrated that it isn't yet working well for me. I have been on CPAP for over two months now, and have kept it on my face the whole night only once. (Though I was close a second night this week! ) I understand the frustration that goes along with starting this treatment. However, I also understand that this is a journey for me. The road may be rough in the beginning, but you only stay on the rough part by standing still. I want to see my daughter grow up. I want to be there for her as she makes her way through her life. I want to be there taking pictures and embarrassing her as she graduates from high school. I want to see her toss her cap in the air when she graduates from college. I want to walk her down the aisle when she gets married. I want to play with my future grandchildren. There's no argument. I'm doing it. I am 100%, 'put that thing on my face every night I've had it' compliant, and that's the way it will stay. I have too much to live for to quit just because it's hard.
What KMCKOB needs to do, if he's legitimate (I reserve the right to be wrong), is find that thing that he wants to do, then do whatever it takes to get there. Quitting treatment is giving in to your illness, letting it take all of that away from you. Will you win? I don't know. I don't know if I'll get to do all that I said above if I go through treatment. I KNOW I won't if I give up.
Now, who do I talk to about my Oscar?
