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Re: Problems with Inhale Pressure, Continued

Posted: Fri Feb 12, 2010 11:17 am
by Madalot
jnk wrote:Well, I think it is a great machine for the people it works well for. BUT, a number of us have had some problems with the machine syncing to our breathing when we have used that machine, for one reason or another, and we do not have a neuromuscular problem. That machine uses a number of ways of sensing when to change pressures, and it can get confused, especially if a mask is prone to leaks or movement up and down on a person's face as the pressures change from IPAP to EPAP to IPAP again.

It is my experience that the ResMed sensitivity adjustments are a useful feature and that the way it senses when to change pressures has been more reliable for me in my use of bilevel.

Again, I am not attacking that brand. I eventually got good therapy with it when I used it. And I love the software for it and many other things about the machine. But I would recommend to anyone having trouble with it sensing the trigger and cycle moments that they should see how a ResMed does for him or her.

Sorry to keep making that point. I'll shut up now.
I am seeing my doctor late this afternoon, but we went to my DME this morning to try to find a different mask. It didn't make any difference what mask I used, that second machine would NOT work properly. If the owner put on a different mask from the 431, the machine worked fine. We are both thinking, now, that the problem IS my breathing pattern. While my bipap works most of the time, there ARE times it is not switching. While we couldn't prove it using a new mask in his office (I felt it once in 10 minutes, but he wasn't looking at the display to prove it). But, he does believe me that it's happening.

He is in agreement that I probably need a different machine and I will discuss that with my doctor today.

Because of being here, I was able to tell my DME which machine has sensitivity settings so he could look into it today to be ready for when my doctor sends a change order for different equipment.

I'll definitely keep you all posted.

Re: Problems with Inhale Pressure, Continued

Posted: Fri Feb 12, 2010 11:31 am
by jnk
I keep mentioning ResMed, because that is what I have experience with, but don't forget ozij's recommendation--I think it would be great if you could see what the AVAPS feels like to you. It is a big chunk of money, but if it worked well for you long term, it might do amazing things for you down the road.

Here is her post again, for reference, although I'm sure you've already copied it:
ozij wrote:Yes - and before you go to the doctor, bone up on the Respironics AVAPS (Assured Volume Assisted Pressure Support). That is a machine specifically intended for people with neuromuscular disorders that restrict their breathing.

http://sleepdevices.respironics.com/PDF ... pGuide.pdf

http://www.internetage.ws/cpapdata/manu ... nd_pap.pdf

And http://avaps.respironics.com/Features.asp

This is not the machine with a similar name -- ASV -- so don't let the names confuse you (or your doctor).

Welcome to the forum, and good luck

O.

Re: Problems with Inhale Pressure, Continued

Posted: Fri Feb 12, 2010 11:34 am
by Madalot
Got it! Thank you.

I think at this stage, we're all a little overwhelmed and confused about exactly what is going on with me. I will definitely discuss all these options with my doctor and see what she says.

Stay tuned for further updates!