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Re: My failing career

Posted: Thu Dec 31, 2009 9:34 pm
by ozij
Happy New Year, giantred, and everyone following this thread.

Both machines are good, but there's no way of knowing which will be good for you. I don't do well with the Resprionics relief on expiration (called CFLEX or AFLEX). The Resmed relief on expiraton is called EPR, works differently, and is very good for me.

Re: My failing career

Posted: Thu Dec 31, 2009 9:46 pm
by jules
auto tank and ramp don't work together in an auto mode

you can use ramp in a cpap mode but not auto - this is not same as m series machine - this is for legacy - tank
If the operating mode is set to CPAP or CFLE, the range for the Ramp
Length is 5 to 45 minutes. If the operating mode is set to APAP or AFLE
(REMstar Auto with C-FLEX only), the range for Ramp Length is 0, 2, 3, or 4
hours.

Re: My failing career

Posted: Thu Dec 31, 2009 10:00 pm
by Wulfman
jules wrote:auto tank and ramp don't work together in an auto mode

you can use ramp in a cpap mode but not auto - this is not same as m series machine - this is for legacy - tank
If the operating mode is set to CPAP or CFLE, the range for the Ramp
Length is 5 to 45 minutes. If the operating mode is set to APAP or AFLE
(REMstar Auto with C-FLEX only), the range for Ramp Length is 0, 2, 3, or 4
hours.
Which is also called "Split Night" and in APAP or AFLE mode needs to be set to "0" (ZERO = Off). (as per the instructions I listed)
In other words, IN THAT MACHINE you do NOT want to set the Ramp time to anything other than "Zero" in APAP or AFLE modes.

Thanks for posting that, Jules.


Den

Re: My machine settings

Posted: Tue Jan 12, 2010 3:00 pm
by giantred
Here is the information on my CPAP machine.

The top of the machine says Remstar auto c-flex. However I checked it several times there are no settings. There is a ramp button and a heat button and the on/off button, that's all there is. I checked it several times, I didn't see anything else.

Re: My failing career

Posted: Tue Jan 12, 2010 3:03 pm
by giantred
If you click my machine you will see it. There are not settings on it. Am I not getting the correct information?

Re: My machine settings

Posted: Tue Jan 12, 2010 3:05 pm
by Wulfman
giantred wrote:Here is the information on my CPAP machine.

The top of the machine says Remstar auto c-flex. However I checked it several times there are no settings. There is a ramp button and a heat button and the on/off button, that's all there is. I checked it several times, I didn't see anything else.
Are there two little gray buttons < > below the LCD screen?

If there are, then you have to hold them down while you plug in the cord in the back of the machine. You need to continue holding them down for approximately 5 seconds and then you'll hear a couple of beeps. You should then be in the Setup mode.


Den

Re: My failing career

Posted: Tue Jan 12, 2010 3:06 pm
by giantred
Wulfman,
I will check again I just reread your posting to see what is in gray & red letters. I didn't notice anything, just the descripiton of C flex-remstar.

Re: My failing career

Posted: Tue Jan 12, 2010 3:22 pm
by Wulfman
Yep. Looks like this.


Image


Den

Re: My failing career

Posted: Tue Jan 12, 2010 4:29 pm
by BleepingBeauty
Judy R wrote:I can certainly agree with "tough love", I was raised with it, I've used it with my kids, and now I use it with the Grandkids. But, don't you guys feel that sometimes we all just need to vent our fustrations out? Don't you feel that it's best to be a bit more smypathic at times. Granted I'm new here, and I don't know many of you. But, I've seen so much of this so called tough love on this board that makes me cringe! I'm afraid to even ask any questions or even vent my fustrations with my therapy, for the fear of someone chopping my head off! Maybe I wear my heart on my sleeve, but that's just me. I too have had many, many issues with family and friends not understanding why I need to be on this machine and use this therapy. At times it's caused me to cry for days on end. It's tough! And instead of being so judgemental, a bit more understanding would be helpful. That's just my opinion. I came to this board to learn, to get advice, and to seek help when I need it. But, so far I've been to afraid to even post much, especially after seeing all of this, I just feel like leaving this board!!! There's no real help, sympathy, caring or concern here, and that's a very sad thing indeed. Especially for those of us in real need!
I've read this entire thread, and it seems to me that you're over-reacting, Judy. There's been a little "tough love" thrown giantred's way here, but there's been far more understanding and help offered. (69 replies to this thread so far, and only a few qualify as "tough love," IMO.)

For some people, tough love is what they need in order to get with the program; others want a sympathetic ear and suggestions for improving the therapy experience (which is always available here). There have been very few instances I've seen in the nine months I've been here where tough love rules the day; and that's been when a poster comes here asking for help, receives lots of advice and information, yet still refuses to do anything about their predicament.

If someone wants simply to whine (and refuses to take advantage of the solutions being offered by the members of the forum) to make their experience better, then it's natural for the people who are trying to help to lose patience. (I'm not of the opinion that that's the situation with giantred, btw. Just trying to broaden the perspective a bit.)

P.S. Noticed as I posted this that Judy has removed her post. I'm going to let mine stand, including her quoted portion.

Re: My failing career

Posted: Tue Jan 12, 2010 6:04 pm
by Guest
Please don't start this again.

Re: My failing career

Posted: Tue Jan 12, 2010 6:15 pm
by giantred
Thanks Wulfman, I will check the settings asap

Re: My failing career

Posted: Tue Jan 12, 2010 7:49 pm
by Jaylee
[quote="giantred" I seriously might be homeless real soon and I have too much pride to ask family to have me move in with them. I'm not going to wear this life support thing in front of them, I'd rather be under the streets collecting change.[/quote]

This strikes a chord with me.

I loved living in my own home. Having things the way I wanted them. Being a grown up Until my husband started using me as a punching bag and I went temporarily blinde in one eye. Temporarily, thank God! That is very expensive . Yep, I had to move back in with my parents. Is it ideal? No way, they don't like it any more than I do. I am counting the months until I pay off the medical bills and can get my own place. I will run naked through the streets at being independent again. Well, maybe not, but you all know what I mean

So life doesn't always work out the way we planned it. Did I plan to have an abusive husband? Did I plan to lose half of my sight for a few months at 30 years old? Did I plan to live with my parents when I had been out for so many years? Heck no, but it is my life. I can't change anything that has already happened, I can just figure out the next path. I have whined about it, been told to stop, and then I move on. I think you should too

But having my family see my machine is the least of my concerns. Really. Who the heck cares? Will you be sleeping in a living section of the house? If you will have your own room than no one is going to see it. Unless your family has to like, wake you up in the mornings or something, but you can get an alarm to do that

Smile, it kills time between disasters

Re: My failing career

Posted: Tue Jan 12, 2010 8:15 pm
by BleepingBeauty
Jaylee wrote:
giantred wrote: I seriously might be homeless real soon and I have too much pride to ask family to have me move in with them. I'm not going to wear this life support thing in front of them, I'd rather be under the streets collecting change.
This strikes a chord with me.

<snip>
Great post, Jaylee. Your attitude is great, and that's half the battle (in life and and re: xpap therapy). I hope giantred takes your post to heart.
Smile, it kills time between disasters
Oh, I am SO stealing that!

Re: My failing career

Posted: Tue Jan 12, 2010 8:37 pm
by Jaylee
BleepingBeauty wrote:
Jaylee wrote:
giantred wrote: I seriously might be homeless real soon and I have too much pride to ask family to have me move in with them. I'm not going to wear this life support thing in front of them, I'd rather be under the streets collecting change.
This strikes a chord with me.

<snip>
Great post, Jaylee. Your attitude is great, and that's half the battle (in life and and re: xpap therapy). I hope giantred takes your post to heart.
Smile, it kills time between disasters
Oh, I am SO stealing that!
It is a quote from Barabara Johnson. I read several of her books right after I left my husband. She is a little preachy for my tastes, but she is a fine example of having a good attitude when life seems to take a crap on you I think reading her books really helped me

Re: My failing career

Posted: Tue Jan 12, 2010 9:00 pm
by ozij
BleepingBeauty wrote: (I'm not of the opinion that that's the situation with giantred, btw. Just trying to broaden the perspective a bit.)

P.S. Noticed as I posted this that Judy has removed her post. I'm going to let mine stand, including her quoted portion.
giantred wrote:Thanks Wulfman, I will check the settings asap
Glad to see you back and working at it, giantred.
Den's one of the best of us -- great to have him on your team.
O.