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Re: what is the highest pressure people have? and then what????
Posted: Mon Sep 07, 2009 7:28 pm
by DoriC
Well, now you've got us all going in different directions, so here's some other thoughts, don't know if you've mentioned Flex settings, HH settings? And what about your bed pillow(that I'm an expert on!) And have you lost or gained some considerable weight in the last 9mos? Sometimes these things have an impact. Glad you apologized to Muffy.
Re: what is the highest pressure people have? and then what????
Posted: Mon Sep 07, 2009 9:31 pm
by williamco
Glad you apologized to Muffy.
Sure, I hope she saw it. if not I will send her private message. I thought she was one of the other forum and I was so frustrated from that forum- it is totally different attitude over here. I feel bad I took it out on her
I use A flex setting 3 -
pillow: I know I will fail in this one, it is a mix of 2 pillows not good quality really. do you recommend medical pillow?
Weight: yes I am on a diet and lost 15 pounds in last 2 months- my weight is 205 now - if anything it should help , am I right?
Re: what is the highest pressure people have? and then what????
Posted: Mon Sep 07, 2009 10:00 pm
by DoriC
I ask about flex because my husband could never adjust to the Aflex or Cflex inhale/exhale rhythm, they didn't match his breathing pattern. When he turned it off completely, he did much better. You might set Aflex at 2 or maybe 1, or try Cflex, these are just individual comfort settings and worth experimenting with. That's an ongoing topic here. He also does better with HH in Passover mode but he also has no allergy/congestion problems. As for the bedpillows, that was our last hurdle but we've found the Regeneris or Chiroflow(do a search) interfere less with hubby's FF mask, as he needs to sleep on his side. As you can see, this info is only offered from what I have learned the hard way on this forum as the caregiver for my husband's therapy and not from personal experience. BTW, I'm curious as to what problems you encountered on your first try with cpap in Dec. That might help the pros if they had that information. Good night. Dori
Re: what is the highest pressure people have? and then what????
Posted: Tue Sep 08, 2009 5:05 am
by williamco
As suggested to try CPAP instead of Auto. now shouldn't I go higher ??? I don't think 16 will even do it !!!!!

Re: what is the highest pressure people have? and then what????
Posted: Tue Sep 08, 2009 10:31 am
by Wulfman
williamco wrote:As suggested to try CPAP instead of Auto. now shouldn't I go higher ??? I don't think 16 will even do it !!!!!

I'd say give it a few more nights and see what the reports look like. Was that report showing back or side sleeping?
One night doesn't make a trend. Kind of a short sleep time, but how do you feel today?
Den
Re: what is the highest pressure people have? and then what????
Posted: Tue Sep 08, 2009 10:43 am
by williamco
Den: I can't really tell how do I feel because it is short time sleeping like you said, so I don't know is it because not enough time sleeping or because not enough apnea treatment. but this AHI number is not really good sign.
back and side sleeping, I haven't really started to force side sleeping yet. I am trying to reach my treatment spot first as a reference to the future and even to compare it with side sleeping later on
Re: what is the highest pressure people have? and then what????
Posted: Tue Sep 08, 2009 10:54 am
by Wulfman
williamco wrote:Den: I can't really tell how do I feel because it is short time sleeping like you said, so I don't know is it because not enough time sleeping or because not enough apnea treatment. but this AHI number is not really good sign.
back and side sleeping, I haven't really started to force side sleeping yet. I am trying to reach my treatment spot first as a reference to the future and even to compare it with side sleeping later on
Well, if you're not going to make any other changes, bump your pressure up........and get to bed earlier (get more sleep).
I really don't know what you mean about your "treatment spot"......well, I sort of do, but if you can lower your pressure by side-sleeping, I would think that would be a priority rather than to see how high your supine sleeping pressure is going to get to be.
Oh, well......it's your therapy.
Den
Re: what is the highest pressure people have? and then what????
Posted: Tue Sep 08, 2009 6:04 pm
by DoriC
williamco, As usual, Den is making a good observation and pointing you in the right direction. When you sleep on your back you have more apneas and need higher pressure. During my husband's titration study, almost all his events happened in the supine position, so the first thing he did was train himself to sleep on his side which didn't take long once he saw the benefits and now he sleeps at pressure of 12cms for 8-9hrs and would probably even do OK at 11cms but the experts here didn't recommend it. His AHIs are between 0.7-1.9. He was titrated at 13cms with just barely 5hrs sleep time and arousal intervals, so who knows. At the beginning when we were experimenting with self-titration and he was still sleeping on his back, he hit as high as 15cms most nights and probably would have gone higher if I had raised the max. Add to that very short restless sleep time, leaks and still feeling fatigued. I know what I would do. Dori
Re: what is the highest pressure people have? and then what????
Posted: Thu Sep 10, 2009 9:29 am
by williamco
Dori and Wulfman :
per your recommendation, I slept on my side last night and I even controled the leak more with having a tape on my mouth
the result is AHI is 4.1 (dropped from 5.5)
so it made a difference but the machine still spent major part of the night 25% at 17 (pressure 15-17)
You were asking me to post some pictures of the reports, I did that on a new post so it would be easy to review (many examples for each step of my journey)
the post "Highly malignant apnea, would you help me please?"
Thanks a lot for your time
William
Re: what is the highest pressure people have? and then what????
Posted: Thu Sep 10, 2009 10:02 am
by duckduck
What are AHI's? I was told to use a CPAP for awhile but if that didn't work I'd have to have my tonsils and adenoids removed. Since using CPAP though I am feeling a lot better. I bet I have had this condition for around 25+ years(I'm 40 now), went to several doctors over the years and after many tests CT scans, MRI's, Upper GI's. I was diagnosed by a new doctor who listened to me for 2.5 hours and then told me to get a sleep study which I did in January of this year. I had an arousal index of 73.9 per hour of sleep, RDI of 81.5 and AHI? of 81.5 per hour, in two hours of sleep I had 119 obstructive apneas, 35 hyponeas, 0 RERA events?, 5 mixed apneas and 2 central apneas. The lowest oxygen saturation was 71%.