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Posted: Fri Aug 12, 2005 8:27 pm
by Sleepless on LI
Amy (starting to yawn alot right now )
Hopefully an indication that you will sleep like a log and wake up rested and feeling well. Talk with you tomorrow. Sweet dreams that you won't remember (supposed to be a sign you were in the right stages of sleep and didn't wake up too soon...).

Posted: Fri Aug 12, 2005 8:28 pm
by yawn
Oh PLEASE post those pictures!!!!! I would pay good money to see them You are too much Bill!!!
Amy

Posted: Fri Aug 12, 2005 8:29 pm
by Sleepless on LI
WAFlowers writes:
You should see me in a mini skirt, fishnet stockings, high heels, falsey and wig. I've got a picture around here somewhere. Pretty good looking legs; I look like some of my female cousins.

Or maybe it is better if I don't post that picture!
And this last statement proving that the therapy is helping you to think clearly and make the right decisions (phew, for all of us...)!

Lori

Posted: Fri Aug 12, 2005 10:47 pm
by dsm
I just got online again after yesterday (lot going on in my neck of the woods).

Re CPAP, I have switched my AUTO to plain CPAP mode (CFLEX off) I think CFLEX is great and a must for many beginners as it relieves the chest pains may experience if on higher cms pressures.

Also have dropped h/h to 2

Also have stopped using RAMP but for my own reason. - I have been getting a lot of nasal congestion and was using sprays but it appears they cause a reaction if used too much. I tried saline spray but no change, I tried my old trick of snorting salty water (up each nostril & into throat) but that made no diff. So I then decided that I would let the xPAP ram the air into my nose and if I found it tough to breathe out, I would just do so slowly - well that seems to work! It hasn't stopped me getting to sleep & most of the time if I wake, I find my nose seems ok.

I have a breeze pillows & a swift pillows waiting to be used but 1st I will get an F&P Oracle 452 to produce the mouth sealer one of our resident genius people invented.

The nasal masks may work & they may not but I will try them at some time.

My sleep clinic advisor said to me that if I can do CPAP without RAMP, then my pressure may be too low (it is at 14 after dropping down from recom 15).

Cheers

DSM (alias Dr D)


Posted: Sat Aug 13, 2005 1:26 am
by rested gal
My sleep clinic advisor said to me that if I can do CPAP without RAMP, then my pressure may be too low
Well, your pressure may or may not be too low - I have no idea about that.... but.... I can't imagine that being able to "do CPAP without RAMP" would be any indication at all of what pressure a person needs to keep the throat open. The "advisor's" statement doesn't make sense to me. Can you get the advisor to elaborate more on his/her theory?

Posted: Sat Aug 13, 2005 6:02 am
by Sleepless on LI
DSM:

I have to agree with RG. I don't use the ramp with my CPAP, either. I found it to be a waste of time. My AHIs are always now under 1.0, the highest lately being 0.5, so I don't think my setting is too low. I think not needing the ramp can be indicative of good lung power and no respiratory problems perhaps. I am no doctor, either, but unless we're missing something here, I can't see the correlation. I have been keeping my machine set to APAP the past couple of nights, with the same high/low setting for the pressure, just because I like seeing the graph on the software that you don't get if it's set on straight CPAP. And I did use the ramp in the very beginning, but then decided I wanted to keep the setting the same and it wasn't really that important anymore.

DSM, what mask are you using now?

Oh, about the Oracle mouth piece, I made one last night and it didn't work for me. Those soft seals, as F&P likes to call them, don't work in my shaped mouth. It brought back all the old memories of why I stopped using that interface. I used to wake up, amongst other things, with lips that were SO swollen, it looked like a botched Botox job. And it would take hours for them to go down, not to mention the soreness that accompanied it. No matter how loose I would make that adjustment with the ring, it would pinch the bottom of my bottom lip so bad, it would blow up like a balloon. Also, the "soft" seal used to cut up my gums and inside of my lips. So the DYI Oracle modification, for me anyway, was huge failure.

Last night I decided not to tape my mouth or do anything. As I said, it was my highest AHI in days, but it was only 0.5. And my leak rate only went up by one. I KNOW I woke up with mouth breathing a few times, and my large/max. leaks figures came back. But it still has to be doing its job if my AHI is that low and the leaks are being recorded almost the same. I needed a break from waking up due to leaking Tegaderm patches. It's worse than mouth breathing, IMHO.

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