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Slinky wrote:I spent half the night and all of today so far TRYING to write a tactful, diplomatic request and description of my experience at Mayo's sleep center to the department's administrator but all I do is get more infuriated and frustrated the more I work on it! I want to send them a letter and written request before I file my HIPAA complaint w/the Dept. of Health and Human Serices. (The bi-level titration was conducted 23 October so there's been plenty of time for those who think Mayo needed more time - I made my request, got the refusal and worked my way thru to the Patient Advocate on the 30th of October).

Maybe the sleep doc saw stuff he wanted a second opinion on before putting his words on the study.

Thanks, DreamDiver, but its NOT the doctor's words I am interested in. The full scored data summary report w/condensed graphs is more the raw data such as the xray film (raw data) vs the radiologist's dictation.

Hey Slinky,
I just caught up on this thread now - I'm so glad you an Birdshell are OK.

Try wirting the letter as angry as it comes out - and then put it aside for a few days. After you've got the anger written down, you'll be better able to prune the letter into something more polite.

Good luck it getting that data!
O.

Thanks, Ozij. That's what I've been doing.

Actually, I'm just going to follow the "form" letter for HIPAA from the Department of Health & Human Services to request that full scored data summary report from Mayo's sleep center for now to speed up the process of getting it or filing the complaint w/DHHS.

That will give me time to get all my "b*tching" out of my system and a diplomatic letter of my "disappointments" w/their sleep center written in place of this angry tirade I'm coming up w/right now. Actually, I've cooled that "b*tching" letter down some already. Just not near enough yet.

I am just SO DISAPPOINTED in this Mayo department. It is just so FOREIGN to all of our previous experiences at Mayo in other departments!!!

I did find that NicoletOne is mostly, basically a neurological diagnostic system but there is a module called NicoletOne Sleep which must be what Mayo is currently using.