CPAPtalk.com

Probably no worse than riding a motorcycle without a helmet.

I use a c-pap machine...and it came with a chin strap that is secured with velcro straps that catch in my hair, so that when I get up I'm getting my hair pulled out by the velcro! Not good. I really like the lady who suggested a hairband. There are also some types that are sold in ski shops which are wider and sturdier. r I use one when I take off my makeup to keep my hair back. Never ever thought to use it as a jaw support, but now I am.

Getting bored and looking to stir up a little discussion, Rooster?

This isn't exactly "new" new--people were posting about it on apneasupport at least as far back as March.

I have to wonder about an inventor who advertises that he has to look at his watch three times to calculate that 12 hours have elapsed.

"Hmm... from 9 PM to 9 AM, that's... let's see.... 1.. 2.. 3.. 4.. 5.. 6.. oops... lost count... 1.. 2.. 3.."

Maybe he wasn't quite a refreshed as he thought.

briank wrote:...........
I have to wonder about an inventor who advertises that he has to look at his watch three times to calculate that 12 hours have elapsed.

"Hmm... from 9 PM to 9 AM, that's... let's see.... 1.. 2.. 3.. 4.. 5.. 6.. oops... lost count... 1.. 2.. 3.."

Maybe he wasn't quite a refreshed as he thought.

So someone actually watched the video!

Saw a couple weeks ago, resmed spend some big bucks to buy a french company. They make custom fit, computer cut orthdontice device for dental offices.

Seems strange they would divert money from cpap to dental device? They must see something.

I was hoping for a computer design cut custom fit mask.

rooster wrote:If neither of you want him to use the CPAP, that's fine with me. I just hope all the health conditions that he develops don't turn out to be Medicare or Medicaid costs that I have to help pay for.

Rooster: You do not pay for his Medicare anymore than he does yours. Don't you have something better to do than providing non-clinical commentary to someone who is in pain? You are basically an ass. Now go lay down, hook yourself up, put your computer under your bed, and shut the hell up. Cool--2 hours of peace.

OldLincoln wrote:Probably no worse than riding a motorcycle without a helmet.

Reminds me of a true story.

In Florida, there was a motorcycle rider who disliked the "requirement" of using a helmet. He led a drive to get the helmet law repealed.

Several years later that same man was killed in a motorcycle accident (he was not wearing his helmet) where a helmet probably would have saved his life.

If it is being sold as a cure for sleep apnea, the FDA should be regulating it. The problem is that the FDA has been neutered and it is likely that these people will get by with selling this snake oil to gullible people, possibly causing them further physical damage from sleep apnea. Even if the FDA does get involved, the only thing they will do is make them change their medical claims.

Judy R wrote:Texas Guy, it seems to me that your the one starting things, also, if you are a registered member of this board {which I doubt} you need to put your information on your profile. Frankly, I think this so called "cure" in a hoax! There is no cure! This Dr. and his so called staff are a joke, and I wouldn't trust that device as far as I could throw it, nor would I trust their so called data. I just think this guy is out to make a quick buck.

I was not commenting on the product. I was commenting on Rooster's reply and he was an ass. I don't even know how to register and have no plans to unless you have some experience you might share that would make want to. I like your bug logo and see your name/handle/whatever--is that registration? I am John in Dallas. Does that help, Judy? I am on the board looking for folks whose experiences might help me find a solution to my problem. I saw someone talking down to another user on the site I called it out. I was not hoping to start anything--I was calling out someone ("Rooster") who was being rude and mean to a user trying to find an answer. If Rooster or you or anyone else has tried the product and has a review-good or bad-that would be helpful. My opinion-or yours- doesn't matter unless we've tried it. So, I have ordered the jaw supporter. It has a money back guarantee. I plan to use it and report back. If it works that will be great. If it doesn't I will send it back. If they do not give me my money back I will report it to my credit card. If that doesn’t work I will have spent <$100.00 trying out the product. Either way it's not a bad investment. I know several folks who paid a large co-pay for a mask they cannot tolerate and do not use. And no one is accusing the mask manufacturer of being a crook. Just because someone wants to try something different from what you use doesn't meant they are stupid or irresponsible. So, until you hear back from me, or try one yourself, chill and remember that your opinion at this point is called contempt before investigation--not a very intellectual position to hold.

Texas Guy (John in Dallas) wrote:

Judy R wrote:Texas Guy, it seems to me that your the one starting things, also, if you are a registered member of this board {which I doubt} you need to put your information on your profile. Frankly, I think this so called "cure" in a hoax! There is no cure! This Dr. and his so called staff are a joke, and I wouldn't trust that device as far as I could throw it, nor would I trust their so called data. I just think this guy is out to make a quick buck.

Just because someone wants to try something different from what you use doesn't meant they are stupid or irresponsible. So, until you hear back from me, or try one yourself, chill and remember that your opinion at this point is called contempt before investigation--not a very intellectual position to hold.

A self-appointed referee to categorize people and tell them how to behave on the forum. Very nice.

Texas Guy (John in Dallas) wrote: .... I don't even know how to register and have no plans to unless you have some experience you might share that would make want to. .... I am on the board looking for folks whose experiences might help me find a solution to my problem. ....

Well if you can forget the silliness, let's talk "shop". What problem are you trying to address?

There are hundreds of member here with years of study and experience with sleep-disordered breathing (SDB) and they like to help. Many of them have experimented with and use what are known as chinstraps. Do remember that it uncommon for MDs to post here and you will be dealing with mostly patients and a few sleep professionals.

(It might not be obvious to you on your first visit here, but the claims of the website in the OP that their "jaw supporter" will treat sleep apnea are anathema to most members here. We know that chinstraps do not treat sleep apnea. Also, the FDA must approve any product that claims to treat sleep apnea and they have never approved a chinstrap for this reason. So the members get incensed when they see such claims and consider them scams.)

The whole premise of the device is frankly really stupid. Their premise is that you can stop an apneic episode from occuring by keeping the mouth shut. That presumes that the mouth being open is the CAUSE of apnea. Um. NO.

Apnea can be caused by a narrow airway, by an overbite, by enlarged turbinates, by enlarged tonsils or adenoids, by the tongue falling back too far into the throat and cutting off air, by too much fat on the neck in an obese person (likewise too much fat in the abdomen crowding the lungs), by excessive tissue at the back of the throat and by a million other things that I can't think of. None of them have to do with your mouth being open or shut. The mouth opens because the body is desperately trying to get MORE AIR. Cut that off and you are getting even LESS. Duh.

So, it might be a helpful device if you are ON CPAP and want to use a nasal only interface. But that is one damn expensive chin strap.

Yeah, btw, we know cpap is a hassle. Suck it up. You will do it if you want to live and live well and be healthy. Whining about it is not going to make it easier. We are here to support each other. If you want help finding a good sleep clinic, questions about a sleep study or how to find a better fitting mask or quieter machine, this is the right place. There are lots of people here who will give you tips and tricks and advice.