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Posted: Fri Aug 01, 2008 11:20 pm
by SleepyNoMore
Heck, I can't even remember to pee when nature calls until i'm about to pop,

Posted: Mon Aug 11, 2008 12:06 am
by deepurpleprincess
Sorry I didn't get back sooner been busy. I think it is a bit of both. It was determined in the sleep lab that my oxygen went down to 58%, so I am sure with that going on for years it probably contributed to some of it. I do think also it is the medication I have take for depression, anxiety and panic disorder, ocd for years. Unfortunately I can't stop taking it. The panic and anxiety is so bad that I can't function without the medication. I am also concerned because I am feeling sleepy a little again, no brain fog though so I don't know whats going on. My mom says I worry to much and that my treatment is fine because I don't snore anymore. She says I just don't exercise enough. My insurance won 't pay for a data capable machine or a sleep study and I have upped the pressure from 11 to 15 on my own and don't feel comfartable raising it anymore on my own. I am at a lose on what to do now.

Posted: Mon Aug 11, 2008 5:15 am
by echo
deepurpleprincess wrote:My mom says I worry to much and that my treatment is fine because I don't snore anymore. She says I just don't exercise enough.
Not to diss your mom, but you are right to listen to your own body. My family came up with all sorts of reasons why I wasn't sleeping well - including the fact that I was just lazy and not disciplined enough to wake up with the alarm clock in the mornings! So say "thank you" to her and keep searching. You should NOT stop until you have solved the problem. You know yourself best, not even your mother knows your body better than you. I know it's hard, because they mean well - but in the end it's YOUR body and YOUR health.

deepurpleprincess wrote:My insurance won 't pay for a data capable machine or a sleep study and I have upped the pressure from 11 to 15 on my own and don't feel comfartable raising it anymore on my own. I am at a lose on what to do now.
It's possible that at the higher pressure you are getting more central apnea's, and they're making you feel worse. I found out that I'm better off having a few normal apnea's and hypopnea's than the same number of central's, but of course that's only anecdotal so that may mean nothing for you. I recently also found out that a 0.5 point change made a big difference for me - 10.0 wasn't high enough to stop events, and 11 was too high because I was getting apnea's. None of that even matters if you're leaking during the night.

Until you get a data capable machine, you will be flying blind, as others have said. You need to know two things: are you leaking, and what is your AHI (including apnea's, hypopnea's, and central's) ?
deepurpleprincess wrote:My insurance won 't pay for a data capable machine or a sleep study and I have upped the pressure from 11 to 15 on my own and don't feel comfartable raising it anymore on my own.
I"m a bit confused - if your insurance won't pay for a sleep study - did you actually get one done? Why won't they pay for the sleep study? What insurance do you have? How did you get your current machine? Do you have enough money to buy online (you still need a script but a GP can provide that) ?

The P&B 420SP is a data capable CPAP machine for only $548, including software and HH and everything! Link to 420SP on cpap.com

Then there's the P&B 420E APAP for $639 for the entire bundle including software Link to 420E on cpap.com

Good luck, we know this is not an easy process!


All you younsters

Posted: Mon Aug 11, 2008 5:43 am
by Guest
Being a senior, it really worries me when you "kids" in your 30's and 40's are having memory problems. How do you think we feel? I heard about one of my senior friends who called the newspaper the other day and adamantly asked "Where's my Sunday paper?" On the other end, the man said "Ma'am, today is Saturday, we deliver Sunday papers on Sunday." After a pause, the lady said "That explains why no one was in church this morning."

Posted: Mon Aug 11, 2008 7:17 am
by bap40
Just a funky little tip I learned on the radio a couple of weeks ago that has stuck in my mind about helping brain function. That is to brush your teeth with your other hand. Doing other simple things with your reverse hand has the same effect. Certainly can't hurt either.

Posted: Mon Aug 11, 2008 9:22 am
by new-to-BiPAP
Well...'they' said I didn't mouth breathe on my titration...but most of the time I was on my stomach which seems the nasal pillow in better I think...and I was only asleep for an hour on my back. They have me on a 1 month trial of a different machine that is supposed to record leaks...I was thinking of calling and seeing if they can check it even if it's only been 2 weeks since I've started it. I've wondered that...thanks for the reminder!
deerslayer wrote:
Julie wrote:Maybe you need to discuss it with your family doctor and see what he thinks, and whether he might refer you to a specialist of some kind.
YES unless you have someone that can read the data on your smart card(if you have one)or you have the software and reader. you are fllying blind-leak data,etc. & have no idea if the therapy is affective. ....from listening to your body you talk as though it is not working for you



Posted: Mon Aug 11, 2008 10:25 am
by OldLincoln
bap40 wrote:Just a funky little tip I learned on the radio a couple of weeks ago that has stuck in my mind about helping brain function. That is to brush your teeth with your other hand. Doing other simple things with your reverse hand has the same effect. Certainly can't hurt either.
Do that and you're liable to wipe your butt with a toothbush! For some it's the automatic things that still work.

Posted: Mon Aug 11, 2008 9:32 pm
by deepurpleprincess
echo wrote:
deepurpleprincess wrote:My mom says I worry to much and that my treatment is fine because I don't snore anymore. She says I just don't exercise enough.
Not to diss your mom, but you are right to listen to your own body. My family came up with all sorts of reasons why I wasn't sleeping well - including the fact that I was just lazy and not disciplined enough to wake up with the alarm clock in the mornings! So say "thank you" to her and keep searching. You should NOT stop until you have solved the problem. You know yourself best, not even your mother knows your body better than you. I know it's hard, because they mean well - but in the end it's YOUR body and YOUR health.

deepurpleprincess wrote:My insurance won 't pay for a data capable machine or a sleep study and I have upped the pressure from 11 to 15 on my own and don't feel comfartable raising it anymore on my own. I am at a lose on what to do now.
It's possible that at the higher pressure you are getting more central apnea's, and they're making you feel worse. I found out that I'm better off having a few normal apnea's and hypopnea's than the same number of central's, but of course that's only anecdotal so that may mean nothing for you. I recently also found out that a 0.5 point change made a big difference for me - 10.0 wasn't high enough to stop events, and 11 was too high because I was getting apnea's. None of that even matters if you're leaking during the night.

Until you get a data capable machine, you will be flying blind, as others have said. You need to know two things: are you leaking, and what is your AHI (including apnea's, hypopnea's, and central's) ?
deepurpleprincess wrote:My insurance won 't pay for a data capable machine or a sleep study and I have upped the pressure from 11 to 15 on my own and don't feel comfartable raising it anymore on my own.
I"m a bit confused - if your insurance won't pay for a sleep study - did you actually get one done? Why won't they pay for the sleep study? What insurance do you have? How did you get your current machine? Do you have enough money to buy online (you still need a script but a GP can provide that) ?

The P&B 420SP is a data capable CPAP machine for only $548, including software and HH and everything! Link to 420SP on cpap.com

Then there's the P&B 420E APAP for $639 for the entire bundle including software Link to 420E on cpap.com

Good luck, we know this is not an easy process!

Posted: Mon Aug 11, 2008 9:48 pm
by Snoredog
Get some of those Ginkgo biloba pills, supposed to increase memory, they have them at Costco but I can't remember how much they cost.

http://en.wikipedia.org/wiki/Ginkgo_biloba

Posted: Mon Aug 11, 2008 10:16 pm
by lookin4sleep
[quote="Snoredog"]Get some of those Ginkgo biloba pills, supposed to increase memory, they have them at Costco but I can't remember how much they cost.



Snoredog, I think this proves someone's point, but I can't remember whose (':?')

Re: my memory has gotten worse since using cpap!

Posted: Fri Aug 15, 2008 2:36 am
by deepurpleprincess
what are Gingko pills?

Re: my memory has gotten worse since using cpap!

Posted: Fri Aug 15, 2008 5:13 am
by Guest
May I suggest looking into the Pillar Method? I was in and out in 10 minutes....check on a doctor with a good record. Pricey but worth every penny not to sleep with a machine. I'm sure the medical profession will hate me but why do they allow a machine and not this procedure? It will take a couple months for the total healing but I talked with a lot of people who had it done with great success. 3 little rods in the soft palate.....10 minutes.....

Re: my memory has gotten worse since using cpap!

Posted: Fri Aug 15, 2008 8:34 am
by birdshell
Guest wrote:May I suggest looking into the Pillar Method? I was in and out in 10 minutes....check on a doctor with a good record. Pricey but worth every penny not to sleep with a machine. I'm sure the medical profession will hate me but why do they allow a machine and not this procedure? It will take a couple months for the total healing but I talked with a lot of people who had it done with great success. 3 little rods in the soft palate.....10 minutes.....

I may be wrong, but isn't it possible that the pillar method is not indicated for EVERYONE'S anatomy and diagnosis?


Re: my memory has gotten worse since using cpap!

Posted: Fri Aug 15, 2008 1:55 pm
by sharon1965
how odd
until this minute i had not posted on this thread
yet my avatar shows up as the author...weird

Re: my memory has gotten worse since using cpap!

Posted: Fri Aug 15, 2008 7:58 pm
by frapilu
I don't know if it's just this thread but earlier today, I remember noticing that this thread had rooster's avtar but it had been created by deepurpleprincess. Now there's no avtar although deepurpleprincess does have an avtar. perhaps you should mention it on the bug thread at top?

France