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Posted: Thu May 01, 2008 9:58 am
by Wulfman
joshc wrote:I tried that for 1 day, I set it to 9/9 but then the readings on the card did not include the specifics it showed me the first page with the solid lines but the next page was missing with the specific data like leaks etc. Is that normal?
If this is Encore Pro.......as long as you select "Full Details" when you open your interaction download, you should get all the details......UNLESS you have an M Series machine and it's in the process of taking its two-nights-off vacation......then you'll only get compliance data. The data from "Auto mode" has a few more pages and details (like Non-Responsive, Flow Limitations and Daily Events Per Hour)......but the other event-related stuff should still be there.


Den


Posted: Thu May 01, 2008 10:38 am
by joshc
I do have an m-series and whats this two nights vacation you speak of!?

Im going to get more reliable data and post it. I am not completely sure that the time period I posted for the daily events was all done on the same pressure setting. I think it was but I just want to be sure. I think I have it at 7-12 I think ill probably give it another few days and then post those daily events just to make sure im giving you guys a reliable reading.

I really appreciate all the feedback so far. I have a much better paying job now so I can take this further than I could in the past. So the first route I should take aside from the pressure setting changes for the CPAP is to probably try to find a different doctor if possible. Should I do another sleep study? Also probably look into removing tounsils.


Posted: Thu May 01, 2008 11:20 am
by Wulfman
joshc wrote:I do have an m-series and whats this two nights vacation you speak of!?

Im going to get more reliable data and post it. I am not completely sure that the time period I posted for the daily events was all done on the same pressure setting. I think it was but I just want to be sure. I think I have it at 7-12 I think ill probably give it another few days and then post those daily events just to make sure im giving you guys a reliable reading.

I really appreciate all the feedback so far. I have a much better paying job now so I can take this further than I could in the past. So the first route I should take aside from the pressure setting changes for the CPAP is to probably try to find a different doctor if possible. Should I do another sleep study? Also probably look into removing tounsils.
I don't have an M Series machine, but......from all the reports from users.....
The M Series is infamous for not giving the full details periodically and it apparently happens two nights in a row......then starts giving full details again. I'm not sure of the frequency of how often this happens, but maybe some of the others can fill you in on this.

As far as another sleep study.......the machine will give you pretty good feedback on your events while you sleep. I'd be inclined to wait awhile to see how everything looks and how you feel before taking that step. I know I wouldn't want to go through that again.

As far as the tonsils go, same answer. It would probably be a good idea, but you might want to see what the reports look like and how you're feeling.

Den


Posted: Thu May 01, 2008 11:30 am
by joshc
Well I have had this new auto cpap for a few months now and I been testing various ranges I just never approach that low of an AHI. Does nasal decongestants help/hurt the whole cpap therapy?

I will keep at it and keep posting results. All the doctors in my area are all SleepMed but I guess as long as its another doctor it might be benefitial to try talking with them.

I should talk to another doctor regarding a solution for the central and mixed apneas right?


Posted: Thu May 01, 2008 11:31 am
by ozij
As far as another sleep study.......the machine will give you pretty good feedback on your events while you sleep. I'd be inclined to wait awhile to see how everything looks and how you feel before taking that step. I know I wouldn't want to go through that again.

As far as the tonsils go, same answer. It would probably be a good idea, but you might want to see what the reports look like and how you're feeling.

Den
Those would be my priorities too.

O.

Posted: Thu May 01, 2008 12:04 pm
by Wulfman
joshc wrote:Well I have had this new auto cpap for a few months now and I been testing various ranges I just never approach that low of an AHI. Does nasal decongestants help/hurt the whole cpap therapy?

I will keep at it and keep posting results. All the doctors in my area are all SleepMed but I guess as long as its another doctor it might be benefitial to try talking with them.

I should talk to another doctor regarding a solution for the central and mixed apneas right?
There's been quite a bit of discussion on decongestants and nasal "stuff".
The general consensus is to stay away from Afrin.......and probably some others. (I've never used any) If you can do a nasal irrigation to clear out your nasal passages before bed, that will help a lot.

As far as the centrals/mixed.......I'd give it a little more time on that one, too.

Den


Posted: Thu May 01, 2008 1:19 pm
by joshc
Ok when you say a little more time you are aware that I been using the auto for a couple months now right? I can try to seperate the data I have for each time I changed pressures its a bit of a mess due to some days me forgetting to put the card back in and also pressure changes and that weird glitch you talked about where it did not record data 2 days in a row...I thought it was a problem with the card so I was wiping it everytime that happened lol.


Posted: Thu May 01, 2008 1:30 pm
by Wulfman
joshc wrote:Ok when you say a little more time you are aware that I been using the auto for a couple months now right? I can try to seperate the data I have for each time I changed pressures its a bit of a mess due to some days me forgetting to put the card back in and also pressure changes and that weird glitch you talked about where it did not record data 2 days in a row...I thought it was a problem with the card so I was wiping it everytime that happened lol.
What I mean is at LEAST a month of therapy where your pressure is actually "working".
From the "Daily Events Per Hour" chart you posted in the beginning, the range of pressures you have your machine set to is NOT working.

Repeating my earlier suggestion......I would set the machine in CPAP mode at a pressure of 9.......give it a week and see what the numbers look like.


Den


Posted: Thu May 01, 2008 1:38 pm
by joshc
Ok thank you. Will set to CPAP mode, with a setting of 9 and will update this thread on progress thanks.


Posted: Fri May 02, 2008 9:26 am
by Guest
4.8 AHI last night but had a major leak for 30mins.

I doubt it was a mouth leak, the pillows just dont seem to be as effective as they were when i first got them last month. Last month I was wearing my mask fairly lose and it just kind of stayed in fine. Now I have to have it pretty tight and it still manages to slip lose. It could be much tigher but I dont think I would be very comfortable. I think it would stay in place if the nasal pillows didnt rotate.

I have my quattro which i like because it certainly lets you know when its leaking but its not as comfortable. I may try that teflon fix for the elbow. I dont know why me and that mask don't get along ive even woke up with me sleeping face down into my pillow and the sound of the elbow popping out and the impact wakes me up


Posted: Wed May 14, 2008 6:14 am
by joshc
Ok sorry it took so long, had a few days prior where it wasnt recording information.

http://www.ceromus.com/cpap/results/josh.htm

Posted: Wed May 14, 2008 7:39 am
by ozij
Hi Josh,
On auto, topping to 15, your AHI was 15.2
On fixed pressure, 9, you AHI was 8.8 maybe better, but definitely not good enough.

You're snoring a lot (we knew that) and leaking a lot.

I have discovered that cleaning the area of my nose daily with castile soap before I go to be, and cleaning the nasal pillows with the same soap helps the pillows maintain their original tackiness.

If it weren't for your huge tonsils, I'd say: concentrate on the leaks, and try a 10-12 range.

However, I think an ENT consultation about a tonsillectomy should not be postponed. I don't know enough about the reliability of the "time in apnea" measure - but if it is reliable, than an AHI of about 9 and 8+ mins in apnea nightly gives me the creeps.

Set up the appointment now - if changing the setup will make dramatic changes in your results then you can always cancel the appointment.

How are you feeling at 9?

O.


Posted: Wed May 14, 2008 4:11 pm
by joshc
yawning constantly in the morning im still pretty tired. I got a tempur-pedic adjustable bed been messing around with that trying to see the effects of sleeping on an incline.

Posted: Wed May 14, 2008 9:31 pm
by ozij
joshc wrote:yawning constantly in the morning im still pretty tired. I got a tempur-pedic adjustable bed been messing around with that trying to see the effects of sleeping on an incline.
But not surprising.... you're still not getting proper therapy.

O.