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Posted: Thu Feb 21, 2008 6:22 pm
by Casiesea
I guess that it is possible there is a hole in the tube. My husband brought the machine down to his office yesterday to plug it into the computer, so he did take the hose off. The thing is, everytime we turn it on, it shuts right off. It would be hard to check for a leak when it won't stay on. I took a look at it but I don't see any obvious holes.
This SpO2 thing has me really concerned. I cannot believe these people knew his O2 was so low and no one told him. Even his doctor didn't say anything about it. I am wondering what his O2 is when he is up and active. A room air sat of 88% (while walking) qualifies a person for oxygen full time. I think I am going to make him go to a Pulmonary doc anyway, just to see whats up.
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Posted: Thu Feb 21, 2008 8:04 pm
by Banned
The ResMed VPAP Adapt SV is more effective, and obviates the need for additional O2, during sleep, in most cases. Let's hope his O2 is good during the day. He's a little young to be to be dragging an O2 bottle behind him. You might ask the pulmonary doc to run an EKG and put a 24-hr Holter Monitor on him also.
Cheers,
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
Posted: Thu Feb 21, 2008 8:07 pm
by dsm
Casiesea,
Another thought, Check all the settings again & make sure the mask selected is as close a fit as possible to the one being used.
I just remembered I once saw this situation occurring after I sold an S7 Elite machine to a friend who returned it saying it kept saying 'check the hose' - it turned out that the problem was because he had selected Mirage mask when he should have chosen Ultra Mirage F/F mask (a big difference in leak rate). Once the right mask was sleected the machine worked as normal.
Good luck
DSM
Posted: Thu Feb 21, 2008 8:17 pm
by Casiesea
Thanks guys!
Yes, I agree he is too young for an O2 tank! I am just very concerned about him. My 88 yr old grandfather has COPD, yet his sats are better than my 39 yr old husband.
Ya know, dsm, I was thinking the same thing a little bit ago. Last night, after increasing his IPAP pressure, I was looking around in that menu and may have accidentally changed a setting. I need to go back and check it. Its not going to do him much good tonight (in Maryland) but at least he may not have to go the weekend without it.
Why is it that we are not allowed to have the software in the US?
Posted: Thu Feb 21, 2008 8:35 pm
by dsm
Casiesea wrote:Thanks guys!
Yes, I agree he is too young for an O2 tank! I am just very concerned about him. My 88 yr old grandfather has COPD, yet his sats are better than my 39 yr old husband.
Ya know, dsm, I was thinking the same thing a little bit ago. Last night, after increasing his IPAP pressure, I was looking around in that menu and may have accidentally changed a setting. I need to go back and check it. Its not going to do him much good tonight (in Maryland) but at least he may not have to go the weekend without it.
Why is it that we are not allowed to have the software in the US?
Casiesea,
Really don't know that one - I have always been able to find a seller here in Oz who had it & I spoke to 2 of them (Resmed resellers) here who said they had no restrictions nor would they mind selling to US customers.
But that was last year. I haven't checked lately - it may be that when they changed over from AutoScan to ResScan (the new version of the software) they stopped supplying the old in advance.
Slinky might have some info re this.
DSM
Posted: Thu Feb 21, 2008 9:12 pm
by dsm
Casiesea,
Some further interesting products that might be worth knowing about.
Just found this while looking at a new device Slinky posted in another thread which is also of great interest in
http://www.resmed.com/en-us/assets/docu ... sa-eng.pdf
The above looks like an S8 version of what The Vpap Malibu was
This one is the machine Slinky posted a link to ...
http://www.resmed.com/en-uk/products/fl ... u=products
The above unit is designed to include supplemental oxygen
Worth keeping in mind
DSM
Posted: Thu Feb 21, 2008 9:39 pm
by Snoredog
[quote="Casiesea"]We must have spent an hour trying to fix the mask so it wouldn't leak. The machine says there was leak of 32 L/M, but it also says mask-v good fit.
Last nights numbers (with new mask)
Pressure 13.4/10.4
LEAK 32L/M
VT 150-500
RR 6-21
MV 3.2-10.2
AHI 18.7
AI 7.3
9:32 HRS
I felt like he slept better last night. He still had periods where his breathing stopped for 10-30 sec. Of course, I didn't sleep at all because I was watching him. Guess I am going to get a sleep problem of my own!
Posted: Mon Feb 25, 2008 9:35 am
by Banned
Hi Casiesea,
Couple of things.
You may want to tell your husband that they will be using the Quattro FF mask for his Adapt SV sleep study. In the unlikely event they do not hand him a Quattro, he will need to suggest to them that they get him one for an accurate Adapt SV sleep study. The mask will seal with his beard with no problem. Advise him to extend the micro-dial (head support) before he puts on the mask. When he puts the mask on, ensure the bottom portion of the mask fits snuggly and firmly in the valley of his chin. click the headgear in place, adjust the head gear straps for comfort and seal, then adjust the micro-dial (head support) for proper and comfortable seal at the bridge of his nose.
When he is hooked up to the Adapt SV and they begin the study, tell him to relax and breath normally into the machine. The Adapt SV will quickly and automatically sync to his breath flow rate. Take the breath when it is delivered. Don't fight the machine. Relax and enjoy. Sometimes I count on the inhales to help put me to sleep.
Hope it goes well.
Cheers
Posted: Mon Feb 25, 2008 2:01 pm
by Casiesea
Banned
Thanks! I will print it out for him so he won't forget.
Study is tonight, fingers crossed!!!
Posted: Mon Feb 25, 2008 2:58 pm
by dsm
Casiesea wrote:Banned
Thanks! I will print it out for him so he won't forget.
Study is tonight, fingers crossed!!!
Good luck & god bless.
DSM
Posted: Mon Feb 25, 2008 3:28 pm
by ozij
Fingers crossed here too.
Good luck.
O.
Posted: Mon Feb 25, 2008 10:32 pm
by Banned
Hey gyrl,
Don't know if you've ever seen an Adapt SV. Here's some info and the on-line User's Manual.
http://www.resmed.com/en-au/products/fl ... ochure.pdf
http://www.resmed.com/en-au/products/se ... _us_en.pdf
Cheers
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Posted: Tue Feb 26, 2008 6:30 am
by Casiesea
It went GREAT! He is on his way home now. He said the first half of the night they came in about 7-8 times to adjust the machine, but then the rest of the night he slept awesome! His sats never went below 90%!
Hopefully, we will get the machine today.
I am so grateful to all of you!
Posted: Tue Feb 26, 2008 9:46 am
by Banned
We're grateful to you!
That machine is a Cadillac, it should solve all of his sleep issues, forever. And this was just the first night. He should start feeling better each day. In the User Menu there are very few options. The 'Mask' will be Full Face, obviously. The 'Learn Circuit' is run everytime you change from humidifier to no humidifier, or change altitude, (go to another city with the machine). To run learn Circuit you simply put the machine components together as you are going to use them (i.e. machine, humidifier, hose, and mask) and DO NOT PUT THE MASK ON FACE, press 'yes, the machine will ask say 'Check Mask Clear', press 'yes' and leave everything alone until the machine does it's thing. Follow the prompts.
Let us know what the EEP (EPAP) and Inspiration Pressure is when you find out. They may not have told you when they setup the machine, it's easy to find out. The EEP and Inspiration Pressure will be displayed constantly on the Adapt SV's LCD for the entire time your husband has his mask on. The EEP is the first number and will be between 4 and 10. The Inspiration pressure will be the second number and will change constantly with each breath.
Cheers
Posted: Tue Feb 26, 2008 12:23 pm
by dsm
Casiesea wrote:It went GREAT! He is on his way home now. He said the first half of the night they came in about 7-8 times to adjust the machine, but then the rest of the night he slept awesome! His sats never went below 90%!
Hopefully, we will get the machine today.
I am so grateful to all of you!
Casiesea,
AWESOME !!!! what a relief for the both of you.
Great start to the day (tis 5:30 am here in Sydney )
DSM