WNJ wrote:62chev,
My experience was much like yours: Straight CPAP was uncomfortable and the service I got from my DME was terrible.
Consider doing what I did:
1) Get a copy of your prescription. (Mine just said “CPAP 13cm.”)
2) Fax it to cpap.com
3) Order whatever machine you want, fast service, no hassles. (I ordered a REMStar Auto.)
If you have insurance which will cover CPAP, talk to them first to see what you have to do to have them pay for an on-line purchase. In my case, my co-pay was a percentage of the total cost. Since my REMStar Auto was less than half the price the DME wanted for the most basic machine, I saved money and so did my insurance company.
After some trial, I settled on a setting of 10cm to 14 cm. I spend about 70 percent of my nights at 10 cm (with a huge improvement in comfort) and my AHI is far lower than the sleep lab attained with straight CPAP.
Wayne
Thank you all for the great advice. I was shocked to see all the informative responses.
I called my sleep lab and asked for a copy of my prescription. They were not sure if they could give it to me since they had 'called' it in to the DME (by the way the DME is owned by the same parent company as the sleep lab). He said I may have to file a records request, I said just let me know what I have to do (give up my first born, whatever, I just want a copy of my prescription).
I had emailed one of the online vendors about their prescription policy prior to posting here and they confirmed what people stated here, that a CPAP prescription will work for an Auto machine.
My P.A. called me back, I'm sure I raised a 'stink' by asking for my prescription etc. I told her the reasons I wanted a APAP machine. She was very receptive. I told her I'm sure you love these internet 'informed' patients, again she was very nice and said she encouraged patients to learn as much as they can.
I told her I could not tolerate the constant pressure of the CPAP and wanted to try an auto machine. I told her that I saw several responses on the online forum where people didn't tolerate a CPAP and loved an autopap. I told her a CPAP will not do me any good if it is so uncomfortable I only wear it a few hours a night - which I'm sure I would eventually give up on.
I told her I had even gone to my family practice Doc because I was sure I had an ear infection since one of them hurt so bad since I started using the CPAP machine. He said my ears were clear and I should talk to them about lowering the pressure on my CPAP.
I told her one of the sleep lab techs told me that they did not encourage the apap machines since the pressure can go too high. She (the P.A.) did say there is some concern with apap machines that they don't cause some type of apnea (central ? can't remember exactly). I assume setting the upper limit helps prevent this??
She said the things I brought up (thanks forum contributors ) were very reasonable and she had no problem prescribing an Apap machine. She even asked me the specific brand and model I wanted so she could prescribe it accordingly. wow.
She said she did encourage me to use a local DME in case I have issues with the machine, but she also said don't be afraid to try a different DME.
Based on a prior post, it sounds like service from a local DME may not amount to much anyway. One thing that was nice, when I switched from a nose mask to a pillow mask it was nice to go into the DME and try one before buying it.
By the way, I asked her to prescribe the Respironics Auto-Cpap with A-flex. Thanks to this forum for pointing me in that direction. It sounds like a very flexible machine (can run in all modes) and provides data reporting.
Oh, I also told the P.A. that I was nerdy enough to want to get the additional data reporting capabilities of this machine. She laughed.
I have to say she restored my faith that there are still some people out there working in the patients best interest, but I was surprised at the run around you can get if not prepared.
Again, thank you to the users of this forum for preparing me for the 'battle'.
I found a package deal on the Remstar Auto-cpap with A-flex on directhomemedical.com with the encoreviewer software, heated humidifier for $759, I can only imagine what my DME's price will be (I'm guessing close to $2,000).
I will check with my insurance provider BCBS and see if they will pay for an online purchase. The funny thing is, (I'm guessing) they will pay 80% for a local DME (i.e. $2,000 x 80% or $1,600) but will refuse to pay 80% for an online purchase (i.e. $759 x 80% or $607). Will be interesting.
Someone did ask what my pressure was set at - it was 8 on my CPAP, my P.A. said she was going to set my APAP at a range of 6 to 12.
Am I correct to assume the masks I purchased for my Resmed (the comfort gell for nose only and a pillow mask) will be compatible with the Remstar?
Thanks again for all the help. Hopefully within a week I will have a machine and enjoying a good nights sleep!
Bless you all.