Hi Newsgrouper,
My sleep doc said the algorithms in the APAP were not proven and that he had many studies to prove this. He told me APAP's were being flogged only by the manufacturers to promote profit. He advised me that he would not be responsible for my treatment because with an APAP he would never know what pressure I was at in the event of any emergency.
The doc made it clear that my
titration, which encompassed many factors, was X% and this should not be deviated from.
This is the same doc who:
- would not give me my
prescription.
- delayed my xPAP acquisition by not fully explaining the process.
- assumed I would rent a standard
CPAP unit for some period of time.
- spent less than 5 minutes with me on my first appointment and did not
acknowledge my persistent nasal congestion.
- would not give me the results of my
titration but rather sent me a copy of
the two letters sent to my family doc who had referred me which only
summarized the results of my two studies. This was done only after
repeated requests.
- spent less than ten minutes with me at my second appointment which was
approximately six months after my first meeting with him.
- would not even look at my print outs of the smart card results for over two
months of usage with almost 100% compliance.
- who berated me for outright purchasing a Remstar Auto
CFLEX and stating
the only reason I received gov't funding is the unit had a
CPAP
component.
- who the second I left his office called my supplier who in turn tried to
pressure me into returning the APAP unit to adjust the pressure to the
doc's original
prescription - which I had altered to reflect his
prescription
as the low setting. He did not provide a range.
I have had significant interaction with the medical profession in the past few years with a number of life threatening incidents and major operations. In every case my care has been exemplary and I am truly thankful for the wonderful help and attention I have received from each and every doctor (many) and nurse (more than many). Even the weeks and weeks of Jello was good. Ambulance drivers(5) and attendants were great - really enjoyed the sirens and lights whizzing by the multi lane stalled freeway traffic during rush hour heading into downtown Toronto when the Exhibition was on as well as a Blue Jay game on a Friday night. Cool, hey I lived!
The worst encounter I ever had was with my sleep doc.
My take on the situation is that some old guy has found a niche where he can still profess to be a practicing physician in an otherwise ignored or at least undiscovered area of medicine and continue to call himself a doctor. The bucks are still plentiful. Few have been trained or at least explored Apnea as a traditional branch of medicine, those who are in it already can suck the system dry in a high handed and secretive manner
These people feel threatened and overwhelmed with the attention and progress being made in this area and are simply trying to protect their turf. They are getting in the way of progress and ignore patients who seem to be more "with it" who have only read Reader's Digest and noted a few comments by interested "non doctor" types on the Internet whose only motives are to understand their own health issues.
So, back to the question. Why do posters on this board prefer APAP to
CPAP and what is the medical rational given for only
CPAP prescribed by certain members of the medical profession?
Because the posters know better ( Thank you 1000 club members for your tried and true experience, and to those other techie/research you know who types who give us a bucket full of facts and links and researched reports) and because not only are the medical professionals following the bucks - some are just too damn lazy to investigate new initiatives or set in their pompous ways to acknowledge the (pardon the pun) winds of change.
Sorry for the rant but I just cannot accept in my own mind that all I have learned on this subject, even with first hand use, can be summarily dismissed by a so called expert in this field.
Thanks to all for sharing.
Bob F