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My DME wants to fire me

Posted: Tue Apr 24, 2007 6:12 pm
by girlsaylor
About 2 weeks ago I got a call from my insurance company advising me
that I won my appeal to have insurance coverage for my Bi-PAP
supplies under my DME benefits. They were supposed to issue me
and both the DME and the ordering pulmy letters stating such.

I never got the letter, so yesterday I called the DME to advise them I
won my appeal and I need replacement tubing, filters, and mask parts,
if not a complete new mask. I spoke with the gal who fills the orders
for supplies. She advised me that she would have to speak with the
director of the facility to find out what they are going to do.

I asked if she meant to imply that they may not want to be my DME
provider anymore, and she said that is a possibility. Guess fighting
for my medical benefits rights got a few toes in the process.

So, I call my insurance company to ask for names of DME providers who
handle CPAP supplies, as my provider listing does not break that type
of thing down and I shouldn't have to call all the DME providers on
their panel to ask, chewing up my cell phone minutes. To make a long
story short, both the first insurance rep I spoke with and the rep I
was transferred to (tho I only got her voicemail), were leaning
towards me filing a complaint against the Sleep Lab/DME provider, a
one stop sleep disorders facility. I got a voicemail back from the
insurance a bit ago advising they will begin working on finding me a
new DME provider if this current one is dropping me.

I am shocked, as this battle has been all about getting proper
treatment. When I requested copies of my entire sleep studies with
graphs and tables, I was advised by the sleep lab that performed the
studies that I don't need them, that I couldn't possibly
understand them. Well, they changed their tune when I advised them I
have 2 college degrees under my belt and that understanding the
reports is the least of the problem. In fact, it is in direct
violation of Federal law to deny patients their medical records. I
don't figure I was in the wrong when I insisted on copies; they were
the ones who should have apologized. Then, when my fully-data-capable
bipap indicates that the sleep study results were entirely wrong, and
their sleep doc prescribed pressures that did not work, I was told in effect that I was nutso, that I could not speak with the sleep physician who
read the sleep study results. I repeatedly requested to speak with
her, and indicated that I was sure she would want my treatment to
work for me and would certainly want to know if there were incorrect
titration studies being done at their facility, with her signing off on her sleep tech's work. But still, these same people denied me the opportunity to
discuss my breathing issues with the sleep lab's physician, and instead
transferred my call to their facility manager. I told him I needed to
speak with a medically trained sleep doc, and he refused to allow me
to discuss the treatment problems with the doc.

After yesterday's little insult (I should be firing them, not the other
way around), I'm more than a bit perturbed. I still do not have any
replacement supplies, despite this issue being unresolved since last
November of 2006, when I was undergoing the initial sleep studies and
trying to get correct benefits out of my health insurer. I finally
began e-mailing the president of my health insurance company, and
kept cc-ing the state insurance board. I think they got the hint and
approved my bipap supplies as medically necessary. Now I have a nasty
DME throwing a temper tantrum and not being fair with me. It stinks,
as if I have to change DMEs, I have to start over with another 10
month bipap rental which would mean I'm going to fall under next
year's deductible and it's going to cost me an arm and a leg to get
the machine, much more than it should have had this DME not had his
head up his b*tt. I've paid my copay in full for the entire machine
rental up front to this sleep clinic, and got to find out how the
insurance company is going to handle this one. Like we will ever see
that money?! They ought to know by this time that I'll cc the state insurance board if this situation goes any farther south.

If y'all are still with me, thanks for listening and supporting me.
Lord knows, there's no support here in the medical community. I'm
looking for yet another pulmy at this time, as the first 2 I've been
to here in south FL haven't been interested at all in my medical
care, only in the payment. The first pulmy couldn't even pull my
chart before talking with me on the phone and couldn't discuss my
treatment problems intelligently as he couldn't even remember who I
was and had me mixed up with someone else. The second one told me to
stop my stomach and breathing meds at night, without having a single
xray or blood test in front of him to know a thing about my body.
That's pulmonary medicine for ya??? Excuse me, but I tried going
without the nighttime doses of those two meds, and my bipap machine
gave horrible stats. As soon as I went back on my prilosec and advair
the stats came right back down. Interesting that the pressures that
are working for me, 15 and 9, are nowhere near what the sleep lab
prescribed, 9 and 5. Pretty scarey that they got it so far off. When
I used their prescribed pressures I got no effect on my apnea stats
at all. Seems I should be the one firing docs, not the other way
around. So, with the help of the sleep apnea patients online, I've
got my apneas and hypopneas down to an acceptable level, so that I
should at least not die of a stroke in the middle of the night. Ugh,
I am so disgusted. One has to have a physician to monitor the lung
disease, and that's a pulmy, as GPs don't have a clue there, most
usually. So, I'm still searching for yet another board-certified
sleep physician.

I'm seriously considering pursuing their (insurance company)
complaint procedure down the road after the records are all
transferred and I am at a lull in symptoms of all these dang medical
conditions. Oh, and I was supposed to receive a return call from the DME today to advise me how they intend to 'handle' me. Yeah right. No call ever received. Guess that means a nastygram from the DME is in the works. If they dare try to pull that stunt, I'll be all over my insurance company with complaints, as well as to the state; and I don't intend to begin a new rental period and another deductible whilst these DME people try to put it to me.

girlsaylor


Posted: Tue Apr 24, 2007 6:33 pm
by sharon1965
whoo--ee, that is some post there, girlsaylor!

good for you for taking the initiative and having the kahunas to fight for your rights...

i wish i could do something like that with the docs/idiots i've had to deal with so far, but around here, no doc will take you if you already have someone, even if that someone is vying for the title of moron-of-the-year; even when it comes to specialists, the GP's won't refer you to a new one if they've already referred you and you've had unsatisfactory results...we are an incredibly underserviced area, as far as both GP's and specialists go, so they have you on the ropes...your story was inspiring though and i hope you get the treatment you want, need and deserve

best of luck!
sharon1965

What a mess!

Posted: Tue Apr 24, 2007 6:33 pm
by kteague
Girlsaylor,
I'm so sorry to hear you're getting the runaround STILL! Don't have any advice - sounds like you've taken the bull by the horns. Just wanted to say I'm in your corner.
Kathy

Posted: Tue Apr 24, 2007 6:41 pm
by SleepySandy
girlsaylor wrote:About 2 weeks ago I got a call from my insurance company advising me that I won my appeal to have insurance coverage for my Bi-PAP supplies under my DME benefits.
Wohoo. That's excellent. Good for you for sticking with it. Make sure you get that letter - if it doesn't come soon call and ask them to send it again.

girlsaylor wrote:It stinks, as if I have to change DMEs, I have to start over with another 10 month bipap rental which would mean I'm going to fall under next year's deductible and it's going to cost me an arm and a leg to get the machine, much more than it should have had this DME not had his head up his b*tt. I've paid my copay in full for the entire machine rental up front to this sleep clinic, and got to find out how the insurance company is going to handle this one.
If your DME fires you, why do you think they'll make you return the BiPAP? Has the BiPAP itself been a part of the appeal? I thought it was just the replacement supplies. If they said something to imply you'll have to return the BiPAP, definitely call your insurance company. Maybe insurance will step in for you. Maybe they'll even finish paying for it and you can be done with this DME. You said you paid your component of the rental up front, so the remaining that's owed is insurance money, right? I just don't get why you would have to return it.

It sounds like they don't want to provide the replacement supplies, which I don't understand - insurance is paying for the supplies, so what's their problem?


Posted: Tue Apr 24, 2007 7:03 pm
by Snoredog
I'm trying to figure out WHY you even need the doctor? the sleep lab or the DME? Doesn't sound to me they have done you any good anyway.

You have a Bipap Auto and reports what else do you need? Hoses don't even come close to wearing out on a regular basis, I have been on therapy for more than 6 years and never had to buy a replacement hose because it was worn out or torn.

If you have the Bipap Auto in your profile, KEEP it, let insurance pay whomever has billed for it, just DON'T give it back period.

Need mask, just go on line and buy one, you don't need any script for that.


Posted: Tue Apr 24, 2007 7:10 pm
by DreamStalker
Maybe you need a lawyer to file a malpractice suit against the whole family of clowns?

Posted: Tue Apr 24, 2007 7:29 pm
by Slinky
Hey, GirlSaylor. You can "take care" of the DME thru the state licensing board. If the DME gives you unsatisfactory answers to your present situation, file a complaint w/the state licensing board.

Congratulations getting this far w/your insurance company. Good luck w/the DME!!! (((hugs)))


Posted: Tue Apr 24, 2007 7:53 pm
by lvwildcat
You go girl!!!!!!!!!!!!!!!!!!

Posted: Tue Apr 24, 2007 9:33 pm
by Bookbear
Sorry to hear that you are STILL getting a run around, but good on you for standing up and fighting for your health! You rock! (And isn't is sad that so many here have had to 'fight' for even the most basic of common courtesy from medical and and insurance personnel? Not to mention what is ours by law... copies of medical records and prescriptions.)

Posted: Wed Apr 25, 2007 8:57 am
by Guest
GirlSaylor said:
[...] haven't been interested at all in my medical
care, only in the payment.
Yeah, that pretty much sums it all up everywhere, from what I've seen. They're also interested in maintaining their egos, hence their irritating assumption that all patients are morons who cannot interpret a set of numbers or a graph. Very discouraging.

To be fair though, there might be a REASON that doctors' services and indeed the entire health care system seem designed mostly to deal with idiot patients who can barely tie their shoes correctly. Part of this is protecting doctor ego and profits, yes, but part of it has got to be because the majority of patients ARE that dumb and that incapable of comprehending anything about their conditions and treatments. Watch Mike Judge's new movie "Idiocracy" about a present-day guy sent 500 years into the future where he sees the effect of centuries of idiots breeding like rabbits and smart people barely breeding at all.... you'll simultaneously laugh and be terrified.

And I've seen these sorts of patients firsthand... one guy was confusing his stomach with his lungs, for instance, while describing his condition to me. If you're a doctor and you talk with these lovely specimens all day long, is it any wonder you get cynical and perhaps a bit offended when a patient tries to imply that he's capable of examining and interpreting the same medical data that you do?

If you're one of the minority of smart, really sharp patients whose brains are highly capable of reasoning and interpreting data, you unfortunately find yourself treated like a child by doctors and "the system". Again, very discouraging.

Wish I had a solution for you... but an APAP or Auto BiPAP, proper software and your brain skills may be your best option, if you can only find error-ridden, insulting, low-quality professional care.

Good luck!


Posted: Wed Apr 25, 2007 9:12 am
by tangents
Girlsaylor,

What a story. I truly feel your pain, as my sleep doctor runs his own sleep lab, and has the DME deliver to him so that he can bill the insurance himself. When I verbally requested requested my sleep study data, he refuesed. When I sent a letter, along with a threat to file a complaint if I didn't receive it, he sent it - but requested that I find another doctur. Essentially, he fired me as a patient.

Please let me know how things are going, either by posting or by PM. We can compare notes, if you want.

Cathy


Posted: Wed Apr 25, 2007 9:38 am
by Guest
my sleep doctor runs his own sleep lab, and has the DME deliver to him so that he can bill the insurance himself. When I verbally requested requested my sleep study data, he refuesed. When I sent a letter, along with a threat to file a complaint if I didn't receive it, he sent it - but requested that I find another doctur. Essentially, he fired me as a patient.
Grrrr. Makes me wonder what we need these guys for anyway.... egomaniacs with lucrative "one-stop shop" arrangements fueled by misinformation (you don't need an APAP, they're not as good as CPAP because CPAP keeps you dependent on my services! APAP's prevent me from buying a nicer Jaguar than the one I have now!)

With the advent of APAP's and Auto BiPAP's, detailed data recording and the accompanying analysis software, it's feasible to argue that unless one has certain unusual conditions, the average OSA-having person with some money in his pocket, cpap.com's phone number and an xPAP prescription (any doc can write one) really doesn't NEED these arrogant @#$&s AT ALL.... and one's wallet will stay fatter, as a bonus, from not funding his McMansion mortgage payments and his new Jag.