Getting stuck with UARS settings!
Posted: Thu Jun 19, 2025 3:08 am
Hi there, big fan of this forum and everybody on it, you're all heros. I've tried to gather as much info over the last two weeks to work on my situation without posting but it seems I'm reaching a confusing, dead end, I hope you can help...
I have UARS (RDI on last test was 15 an hour) and I'm slowly titrating my Bipap to where I believe is the right place. My EPAP is low at 6 as it seems it's covering my OA's, I had successful surgeries to burn away quite a lot of tissue (I was a hot hot mess with cpap 4 years ago, high AHI) but on my last sleep test it was very much 'your AHI is low now but your RDI is high, we can't do anymore surgeries as it's now structural and not loose tissue'. Being left with a highish RDI with countless Reras and feeling like absolute crap I've come back to try Bipap. Learnt a hell of a lot on here and on the lankyleftys channel but I'm not sure where to go next.
EPAP hasn't moved from 6 since I've been back on in the last two weeks but I've titrated my IPAP up slowly and my waveform is looking calm and curved (like I've learnt it should be) in non rem sleep, but it seems in REM it is still struggling to stay open and RERAs occur frequently. I know a lot of you guys seem to prefer vauto mode in bipap but again from lankyleftys knowledge I've been keeping it fixed in S mode and just trying to find that top IPAP that will cover it all. He seems adamant that auto on CPAP or bipap is a no go cos it's too slow to cover the damage that's already occuring and then drops down too quickly when the higher pressure is still needed.
I guess I'm here to ask, what's next? I've visibly seen my higher IPAP smooth out my waveform but for the life of me I'm already up to 14 and it's starting to get funky, aerophagia and obvious CA's from the large pressure support (though I've hesitant to raise EPAP up as it seems to cover all my OA's and I struggle exhaling on higher pressures and the CAs are minimal). Any help would be amazing. Attached a 2 min screenshot of my regular waveform in non REM sleep and attached a 2 min screenshot with reras in REM sleep (and there's several screenshots I could have taken over the night of my choppy REM).
Bare with, there was a lot of general tossing and turning last night, crazy to think it's been hot AF in London!
I have UARS (RDI on last test was 15 an hour) and I'm slowly titrating my Bipap to where I believe is the right place. My EPAP is low at 6 as it seems it's covering my OA's, I had successful surgeries to burn away quite a lot of tissue (I was a hot hot mess with cpap 4 years ago, high AHI) but on my last sleep test it was very much 'your AHI is low now but your RDI is high, we can't do anymore surgeries as it's now structural and not loose tissue'. Being left with a highish RDI with countless Reras and feeling like absolute crap I've come back to try Bipap. Learnt a hell of a lot on here and on the lankyleftys channel but I'm not sure where to go next.
EPAP hasn't moved from 6 since I've been back on in the last two weeks but I've titrated my IPAP up slowly and my waveform is looking calm and curved (like I've learnt it should be) in non rem sleep, but it seems in REM it is still struggling to stay open and RERAs occur frequently. I know a lot of you guys seem to prefer vauto mode in bipap but again from lankyleftys knowledge I've been keeping it fixed in S mode and just trying to find that top IPAP that will cover it all. He seems adamant that auto on CPAP or bipap is a no go cos it's too slow to cover the damage that's already occuring and then drops down too quickly when the higher pressure is still needed.
I guess I'm here to ask, what's next? I've visibly seen my higher IPAP smooth out my waveform but for the life of me I'm already up to 14 and it's starting to get funky, aerophagia and obvious CA's from the large pressure support (though I've hesitant to raise EPAP up as it seems to cover all my OA's and I struggle exhaling on higher pressures and the CAs are minimal). Any help would be amazing. Attached a 2 min screenshot of my regular waveform in non REM sleep and attached a 2 min screenshot with reras in REM sleep (and there's several screenshots I could have taken over the night of my choppy REM).
Bare with, there was a lot of general tossing and turning last night, crazy to think it's been hot AF in London!