Why,? Why do I keep using this machine?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
Posts: 64271
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Why,? Why do I keep using this machine?

Post by Pugsy » Wed Jul 03, 2024 1:47 pm

Bubbles2024 wrote:
Wed Jul 03, 2024 1:38 pm
I do like the idea of bleep but am very allergic to medical adhesives so that may be a no go for me unless I want horrible welts, itching and burning.
The adhesive is made by 3 M company and it's the same adhesive that is made for ostomy bags to stick to the skin.
So colostomy bag adhesive.

It's about as non allerginic as any tape can be and the percentage of people who have a problem with the adhesive is extremely small....but it's still there.

If you are serious about trying the Eclipse that I use and wonder about the adhesive and your skin....send me a PM with your name and address and I will snail mail you a couple to try sticking on your nose for a few hours to see if you develop some sort of allergic response.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

Bubbles2024
Posts: 28
Joined: Sat May 25, 2024 10:25 pm

Re: Why,? Why do I keep using this machine?

Post by Bubbles2024 » Wed Jul 03, 2024 1:59 pm

robysue1 wrote:
Wed Jul 03, 2024 1:36 pm
The health problems associated with sleep apnea are associated with untreated and undertreated sleep apnea.
Well that just made me question something else. I am being treated so that's good but how do I know if I am meeting the gold standard or if I am being undertreated?
robysue1 wrote:
Wed Jul 03, 2024 1:36 pm
Bubbles2024 wrote:
Wed Jul 03, 2024 12:46 pm
My coworker has it. They don't talk about it. I know she has had tons of problems health wise and is my age. I haven't had any real health problems except for this and I am so worried this is going to lead to more.
The health problems associated with sleep apnea are associated with untreated and undertreated sleep apnea.
My coworker has severe anxiety, allergies, asthma, yeast infections in her ears, teeth problems, does horrible with ansthetic during surgeries, etc. I don't want that to be me.
Except for "does horrible with anesthesia" none of these health problems have a strong correlation with sleep apnea or CPAP therapy.

General anxiety, allergies, asthma, yeast infections, ear problems, teeth problems---all of those things develop independent of OSA. Now having any of them can make it a bit harder to treat OSA because you have to manage more than one chronic problem at a time. But OSA doesn't cause them.

The connection between OSA and "does horrible with anesthesia" boils down to two things:

1) Many people who have very small airways (high mallampati scores) have trouble with anesthesia because the airway is so small. And that small airway can also be much more prone to collapsing while asleep. So people with very small airways have a higher than expected rate of OSA even when they're skinny.

2) When people with severe OSA are sedated and their autonomic nervous system takes over responsibility for breathing, their airways tend to collapse, particularly during recovery after surgery while the anesthesia is in the process of wearing off and the tube is no longer down their airway. This is why many surgical centers are open to the idea of a person with severe OSA bringing their machine with them when they arrive for surgery: If problems with apneas occur during recovery, the correctly set CPAP + mask is already there and available for use.

I think that is my problem at the moment. My riding friend is male and he just doesn't like the mask but doesn't have any other real problems.
Just like you---he doesn't like the mask. Lots of people don't like the mask. But lots of those folks who don't like the mask use it anyway because they understand the benefits outweigh the drawbacks.
I just worry about all the side effects and want to get ahead of them so that I don't have them. Maybe that isn't realistic.
What "side effects" are you worried about? Seriously? CPAP is about as benign of a medical treatment as you can find for a chronic medical condition: It's just plain old air that is being blown at your upper airway during the night.
robysue1 wrote:
Wed Jul 03, 2024 1:36 pm
The connection between OSA and "does horrible with anesthesia" boils down to two things:

1) Many people who have very small airways (high mallampati scores) have trouble with anesthesia because the airway is so small. And that small airway can also be much more prone to collapsing while asleep. So people with very small airways have a higher than expected rate of OSA even when they're skinny.

2) When people with severe OSA are sedated and their autonomic nervous system takes over responsibility for breathing, their airways tend to collapse, particularly during recovery after surgery while the anesthesia is in the process of wearing off and the tube is no longer down their airway. This is why many surgical centers are open to the idea of a person with severe OSA bringing their machine with them when they arrive for surgery: If problems with apneas occur during recovery, the correctly set CPAP + mask is already there and available for use.
I had surgery two years ago, and nothing was said about apnea. I have come through all my surgeries like a champ no problem. So I guess that I don't need to worry about OSA making recover harder for me. I just need to think about coming out of anesthetic like I always do. Except for one exemption bringing "Nemi" just incase.
robysue1 wrote:
Wed Jul 03, 2024 1:36 pm
Just like you---he doesn't like the mask. Lots of people don't like the mask. But lots of those folks who don't like the mask use it anyway because they understand the benefits outweigh the drawbacks.
I get that. I understand the benefits. I don't think people understand my need to minimize or be proactive with the drawbacks.
robysue1 wrote:
Wed Jul 03, 2024 1:36 pm
What "side effects" are you worried about? Seriously? CPAP is about as benign of medical treatment as you can find for a chronic medical condition: It's just plain old air that is being blown at your upper airway during the night.
I have read that some side effects can be tooth decay, facial deformity, nerve damage from masks being tight, dry eyes, pimples, and sores. Don't tell me it's not real; I have also seen pictures in medical journals and articles. I do worry about these things, and if I can get ahead of them, then I won't have to deal with irreversible issues, high dental bills, etc. I have also read that the air can change your ears' pressure and cause hearing loss. I get that it is just plain air, but what parts of the machine are you breathing in? People have had lung damage and even death, as noted in recent recalls of Phillips machines. It's not just the air. If all it was was air, no mask, and no side effects, this would be much easier to deal with for me. Let's be real here. Benign is a cream you rub on and it goes away.

Thank you for sharing and helping challenge my thoughts about all this. It will work out I just need to get a plan in place, figure out how I know this is working and move ahead. I have a meeting with the Respiratory Therapist who works with my sleep specialist on Friday. I am hoping she will be able to straighten some of this out and help with the mask. I just found out when I called them today that I don't have to go to Don Paul, who is associated with the DME company ROTECH, anymore for fittings and questions. I do feel better about that already. Once again things you don't know until you start asking and get to the point you can't handle stuff anymore.

_________________
Machine: Airsense 11 w/ ClimateLine
Mask: AirFit™ N30i Nasal CPAP Mask with Headgear Starter Pack
Additional Comments: I have a humidifier but it is just a part of theachine.

Bubbles2024
Posts: 28
Joined: Sat May 25, 2024 10:25 pm

Re: Why,? Why do I keep using this machine?

Post by Bubbles2024 » Wed Jul 03, 2024 2:11 pm

Pugsy wrote:
Wed Jul 03, 2024 1:47 pm
Bubbles2024 wrote:
Wed Jul 03, 2024 1:38 pm
I do like the idea of bleep but am very allergic to medical adhesives so that may be a no go for me unless I want horrible welts, itching and burning.
The adhesive is made by 3 M company and it's the same adhesive that is made for ostomy bags to stick to the skin.
So colostomy bag adhesive.

It's about as non allerginic as any tape can be and the percentage of people who have a problem with the adhesive is extremely small....but it's still there.

If you are serious about trying the Eclipse that I use and wonder about the adhesive and your skin....send me a PM with your name and address and I will snail mail you a couple to try sticking on your nose for a few hours to see if you develop some sort of allergic response.
How do I send a PM? I have a couple of questions about it, but I would love to try out the adhesive before purchasing.

I found out I was allergic to medical adhesive in two different ways. Once when helping the fire department with a mock emergency accident. That was fun... I got to ride on a gurney in the back of an ambulance. They taped my head. When they finished at the ER and were getting ready to leave, I was lying on the gurney in a hallway. A nurse walks by and asks if I am with the Fire Department. I say yeah. She says well, they are leaving. Let me get the tape of you so you can go. She starts to remove it and says umm let me go get some things to treat you. You are experiencing a reaction to the tape. HA HA just my luck. Good story though. The second time I told the foot doctor when I had plantar fasciitis that I was allergic to medical adhesive, He said, let's try a different type. About an hour after the appointment, I called him up and said umm yeah, that didn't go well. So it is wise to try before committing.

_________________
Machine: Airsense 11 w/ ClimateLine
Mask: AirFit™ N30i Nasal CPAP Mask with Headgear Starter Pack
Additional Comments: I have a humidifier but it is just a part of theachine.

User avatar
Pugsy
Posts: 64271
Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Why,? Why do I keep using this machine?

Post by Pugsy » Wed Jul 03, 2024 2:36 pm

Bubbles2024 wrote:
Wed Jul 03, 2024 2:11 pm
How do I send a PM?
See this post.....look to left where it says my screen acct name?
See where it says "contact" and has a little cloud with 3 dots....click on the little cloud with 3 dots.
Then you will see "send private message" and what looks like to be a little blue folder....click on the blue folder and things will open in a PM with a copy of this reply and then blank space where you can compose your text.
Then don't forget to click on submit once you are done composing.

Bear in mind that the PM will go into your "outbox" until the PM is opened and read and then it goes to the "sent" box.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.

onward60
Posts: 412
Joined: Tue Sep 14, 2021 1:48 pm

Re: Why,? Why do I keep using this machine?

Post by onward60 » Wed Jul 03, 2024 2:40 pm

Not sure if this is helpful, but I am using the N30 (not the i). I have a pinched nerve in my jaw that makes pressure on my face painful and I have very sensitive skin due to Ehlers-Danlos (genetic collagen production defect). The N30 sits very lightly on my face. I use a hose-holder-upper thingy (for some reason can't think of what it's called) above me at the head of the bed to hold the hose up away from my body. One caveat, the N30 does not stay put if I toss and turn, but I don't really toss and turn. I bought a cover for the hose-holder-thingy on etsy that makes it less ugly. It's actually a fabric tube made to be filled with rice (but shipped empty) and used as a draft block under a door, but I ordered a long one in a neutral fabric and didn't fill it, just cut a tiny hole in the closed end pulled it over my hose-holder-upper-thingy. It looks quite decent that way. I just hate the look of all the medical equipment because it makes me feel old and ill (which I am, but don't like to think about :lol: ). I have my machine sitting on a plastic lid of a large, plastic Sterlite storage box that acts as a tray for it and slides easily. During the day, I slide the thing under my bed, out of sight. I actually don't have room on my nightstand for it, but I like this hidden system better anyway. When my DME gets the Beep I may try it. If you can get it, a Bleep is definitely worth a try.

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Machine: AirSense 11 Autoset
currently trying airfit N30 (not i)

User avatar
ozij
Posts: 10260
Joined: Fri Mar 18, 2005 11:52 pm

Re: Why,? Why do I keep using this machine?

Post by ozij » Thu Jul 04, 2024 6:55 am

Pugsy wrote:
Wed Jul 03, 2024 2:36 pm
Bubbles2024 wrote:
Wed Jul 03, 2024 2:11 pm
How do I send a PM?
See this post.....look to left where it says my screen acct name?
See where it says "contact" and has a little cloud with 3 dots....click on the little cloud with 3 dots.
Then you will see "send private message" and what looks like to be a little blue folder....click on the blue folder and things will open in a PM with a copy of this reply and then blank space where you can compose your text.
Then don't forget to click on submit once you are done composing.

Bear in mind that the PM will go into your "outbox" until the PM is opened and read and then it goes to the "sent" box.
IIRC The inventor of the Bleep and Eclipse recommends checking your response to the adhesive by taping it inside your upper arm for a few hours.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery

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