CPAPtalk.com

luciferin wrote: ↑

Tue Feb 28, 2023 6:51 am

It's hit or miss finding someone who actually looks at the whole picture online, you're the first person to actually look at my charts and see the RR I'm asking about.

Yeah well I wouldn't be expecting a lot if the person you're asking for medical advice is a guy named beer du jour.

Respirator99 wrote: ↑

Tue Feb 28, 2023 2:44 am

Thank you. So what's the solution? More pressure? Something else?

Thanks for the acknowledgement (sort of) on the other forum!

I hope they realize that without you and Stuart that board would be nowhere.

Rubicon wrote: ↑

Wed Mar 01, 2023 4:43 am

Respirator99 wrote: ↑

Tue Feb 28, 2023 2:44 am

Thank you. So what's the solution? More pressure? Something else?

Thanks for the acknowledgement (sort of) on the other forum!

I hope they realize that without you and Stuart that board would be nowhere.

OTOH I'm surprised you guys let Allan flounder for so long.

(heavy sigh) Why do I bother?

Rubicon wrote: ↑

Thu Mar 02, 2023 11:35 pm

Rubicon wrote: ↑

Wed Mar 01, 2023 4:43 am

Respirator99 wrote: ↑

Tue Feb 28, 2023 2:44 am

Thank you. So what's the solution? More pressure? Something else?

Thanks for the acknowledgement (sort of) on the other forum!

I hope they realize that without you and Stuart that board would be nowhere.

OTOH I'm surprised you guys let Alan flounder for so long.

(heavy sigh) Why do I bother?

Do you think it would be a good idea to start a thread over here with the solutions for the problems over there?

IMO a major issue is that although I have xx characters with x active at any given time, people don't believe a noob with only a couple of posts vs somebody with 500 posts (even if that guy is only some CPAP DME).

Rubicon wrote: ↑

Thu Mar 02, 2023 11:35 pm

OTOH I'm surprised you guys let Allan flounder for so long.

(heavy sigh) Why do I bother?

Especially since I told you about that.

Y'know, I think the terrorists are going to win.

I want to do some experimentation to see if I can optimize my CPAP therapy while waiting for my ENT appointment. After talking with Rubicon some I tried taping my nose shut last night to see if it helped the high respiratory rate. I also lowered my pressure range under the assumption that it was a drastic change in my airway and the pressure I increased to wouldn't be needed. The weirdness is interestingly enough still there and it looks about the same. In my case it must be associated with mouth breathing. I'm considering trying mouth taping under my F20 Full mask next, but I'm very reluctant to do that. I've mouth taped with nasal masks in the past, and Rubicon is likely right that I have a palatal collapse which closes off my upper airway and forces my mouth open because the tape does not stay on no matter what I do. If anyone has any educated suggestions please let me know. If anything I try makes a positive difference I'll be sure to follow up, and ultimately I'll follow up in the thread after my ENT does any procedures.

Am I correct in reading my charts that the positive number on flow rate is inspiration, and the negative number is exhalation? If so my choppiness looks to be happening on inhalation not exhalation.

Here's my SleepHQ report from last night.

luciferin wrote: ↑

Sun Mar 05, 2023 5:31 am

If anyone has any educated suggestions please let me know. 84cfba3]Here's my SleepHQ report from last night.

That's all I got for stuff that costs less than a buck at the swim shop.

Gonna have to see how floppy is floppy. Pillar Procedure or similar stiffening is a thought, but thinking hack n' slash is going to be the most effective.

Just don't sneeze with a mouthful of milk.

My life just got a little more interesting. I have been diagnosed with Celiac disease, and I have been treating it with gluten free diet for the last 2 weeks, with a bunch of mistakes along the way. This has nothing to do with my sleep apnea, right? Well, if you go back and compare my charts from March with what I had last night those respiratory rate spikes are seriously diminished. My AHI last night was reportedly 0, and that was after drinking during the holiday.

Glossitis was apparently one of my symptoms, as well as restricted nasal breathing which I thought was due to dust allergies for the last year. My tongue looks and feels completely different today from what it was just a few weeks ago.

I have honestly no idea what this is going to mean for my sleep apnea in the long term, or how I'm going to end up treating myself or titrating myself. I am fairly confident I still have sleep apnea, but I'm also hoping that once I figure out how to live with Celiac disease I can get nasal pillows to work for me. I am also confident I'll be able to drop my extra weight, and maybe eventually get off the CPAP in the next year or two. For now I've cancelled my tonsillectomy, because I don't think having surgery a few of weeks after an autoimmune diagnosis is a good idea.

Chart from last night
Chart from May 1st
Chart from March

If anyone has any advise on if/how I should try to self-titrate down, then I'm all ears. But in all honestly, I'm sleeping better and waking up more rested the last few days than I ever have before in my life, so I'm in no big rush to make any changes with my machine.

Celiac disease can wreak havoc with your body - not only digestion. I'm glad it was diagnosed for you.

As for your charts - three different settings one APAP two CPAP, and the CPAP pressures are different, so what is there to compare?

It makes a lot of sense that your nasal passages are less congested now that your no longer eating gluten.

One of the best explainers of the subject is Alessio Fasano.

Good luck!

Edited typo

luciferin wrote: ↑

Tue May 30, 2023 9:31 am

If anyone has any advise on if/how I should try to self-titrate down, then I'm all ears.

luciferin wrote: ↑

Tue May 30, 2023 9:31 am

I'm in no big rush to make any changes with my machine.

Come back to this thread when you are serious. Then you can get some help.

Great to hear you're sleeping better and feeling more rested. By all means stick with your current settings for now if they are producing those results.

I'm not sure the recent diagnosis of celiac disease should create problems for the removal of your tonsils, but that's a question to take up with your doctor. Lots of good information here:

https://celiac.org/about-celiac-disease ... follow-up/

I hope you're getting all the evaluation, advice, and supplementation mentioned in the article. Good luck!