Severe mixed apnea at the age of 35

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Rubicon
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Re: Severe mixed apnea with 35

Post by Rubicon » Fri Feb 03, 2023 1:25 pm

30 seconds is fine.

I want to see it.

I want to touch it.

I want to feel it.
Freeze this moment a little bit longer.
Make each sensation a little bit stronger.
Experience slips away.

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Rubicon
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Re: Severe mixed apnea with 35

Post by Rubicon » Fri Feb 03, 2023 1:26 pm

And measure r-r intervals.
Freeze this moment a little bit longer.
Make each sensation a little bit stronger.
Experience slips away.

Herbert
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Re: Severe mixed apnea with 35

Post by Herbert » Fri Feb 03, 2023 3:03 pm

it's already in your Gmail box. but I fear Detail level will be disappointing for you. at least it always shows if SNR kr Afib

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Rubicon
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Re: Severe mixed apnea with 35

Post by Rubicon » Sat Feb 04, 2023 4:46 am

Well, it shows that the Pulse Data on the Wellue tells you basically if you're alive or not and that's about it.
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Re: Severe mixed apnea with 35

Post by Herbert » Sun Feb 05, 2023 4:29 pm

sorry for not answering for two days. yesterday my daughter was born, so my breathing business needs to wait for a few days. guess I'll be back on Wednesday.

I will keep going with 5cmh2o until then and check the reports all at once... maybe it will give me a valid trend.

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Re: Severe mixed apnea with 35

Post by Pugsy » Sun Feb 05, 2023 4:32 pm

Congratulations.

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Re: Severe mixed apnea with 35

Post by Herbert » Sat Feb 11, 2023 5:47 am

Hey guys, Rubicon,

I'm back (terminator intro playing). Took me a bit longer than expected, but who could have guessed that a newborn means a lot of action :)

I just uploaded my last nights to sleephq and had a look on it in Oscar. Unfortunately the good trend that was visible when I turned down pressure to 5 cmH2O was deteriorated more or less during last nights. I assume it's mostly due to the new situation, and the "daughter caused arousal". I will wait a few days until things stabilize or consider moving to our couch for the first few months. Not decided yet.

What I still wanted to share here and best case get your qualifiied opinion on is the follow: Unfortunately I could see an increase in periodic breathing during the last nights. What was new to me is, that is showed it's ugly face mainly in the morning (last hours of sleep) with short but severe episodes. Oscar even flagged it as CSR, but I know meanwhile that I should not take that too serios. Attached the links + rough time when it occured. Could you let me know your thoughts?

Time: 7 am
https://sleephq.com/public/0952eb2e-5d6 ... 89c2d980a3

Time: 7:24 am
https://sleephq.com/public/b6003367-827 ... 14111a3a26

Time: 6:20 am
https://sleephq.com/public/6f0cda11-d7d ... 9bd1ec8767

Thanks a lot in advance. appreciated a lot - as always :) :)

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Rubicon
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Re: Severe mixed apnea with 35

Post by Rubicon » Sat Feb 11, 2023 6:23 am

I think we can forget about the couch idea as there has been a significant new development. The thought there was that your wife had poor sleep that was in turn generating a lot of your arousals. Specifically, late trimester women frequently have leg movements (PLMs)(like a 50-50 chance) but even if they were there that should resolve.

Yeah, one day of one 30 minute block? I mean you could try 4.0 cmH2O to see if that completes the job, but maybe it's getting to be time to get a good quality HST (Home Sleep Test) w/o CPAP and get some hard data to see exactly how much you've improved. By good quality I mean one that differentiates central from obstructive events and has a good oximeter. Wellue is just too coarse a signal.
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Re: Severe mixed apnea with 35

Post by Rubicon » Sat Feb 11, 2023 7:00 am

And if if respiratory instability persists, then what?

I mean, knowing why would be helpful (ya think?) but consider:

1. More time.
2. Instead of CPAP, supplemental oxygen (likelihood of success unknown).
3. With CPAP, add dead space (likelihood of success unknown).
4. Drug therapy - theophylline or acetazolamide (likelihood of success unknown).
5. Bilevel (likelihood of success probably zero).
6. ASV (likelihood of success very high).
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Re: Severe mixed apnea with 35

Post by Herbert » Sat Feb 11, 2023 8:49 am

Rubicon wrote:
Sat Feb 11, 2023 6:23 am
I think we can forget about the couch idea as there has been a significant new development. The thought there was that your wife had poor sleep that was in turn generating a lot of your arousals. Specifically, late trimester women frequently have leg movements (PLMs)(like a 50-50 chance) but even if they were there that should resolve.
well on the other hand there's a new reason for arousals. My wife needs to feed ever 2-3 hours. To prevent waking me up with her movements, I already ordered two separate mattresses instead of the one big we currently have. hope this helps.
Yeah, one day of one 30 minute block? I mean you could try 4.0 cmH2O to see if that completes the job, but maybe it's getting to be time to get a good quality HST (Home Sleep Test) w/o CPAP and get some hard data to see exactly how much you've improved. By good quality I mean one that differentiates central from obstructive events and has a good oximeter. Wellue is just too coarse a signal.
I think no matter how good the HST is, I will never eceive the raw data from the doctors and even if I did I don't have the software to really read it. or what did you mean?

Also I had another HST in November. Only recently I received the result, as the doctors was out ofnoffice in december. it was AHI of 8 in total, but 18 on my back. hypopneas and central apneas as usual for me.

What do you mean "how much I've improved?" If I take the HST without CPAP I'm not sure why sth should have changed in comparison to the sleep study in August. Could you please explain what you mean exactly?

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Re: Severe mixed apnea with 35

Post by Rubicon » Sat Feb 11, 2023 9:32 am

Herbert wrote:
Sat Feb 11, 2023 8:49 am
My wife needs to feed ever 2-3 hours.
Yikes! She's going to be big as a house in a couple of months!
Freeze this moment a little bit longer.
Make each sensation a little bit stronger.
Experience slips away.

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Re: Severe mixed apnea with 35

Post by Herbert » Tue Feb 14, 2023 2:37 am

On the last day of my free trial they finally fixed the O2 import. It had sth to do with the language settings of my app, which is set to german... Attached the link. I tried to turn up my pressure again a bit to receive better sats with low periodic breathing. But seems this didn't work out. Also I was not able to link the desats to the events. mostly they just happen without any root cause in my breathing pattern. Or am I missing something?

https://sleephq.com/public/ae8ce656-edd ... 7d96e863ea

Herbert
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Re: Severe mixed apnea with 35

Post by Herbert » Tue Feb 14, 2023 4:28 am

BTW @Rubicon: My cardiologist offered to give me my 24h Holster ecg data, but as raw data. I assume I might not be able to read that out anyway without the Software?!

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Re: Severe mixed apnea with 35

Post by Herbert » Tue Feb 14, 2023 4:29 am

And one more thing that I did not understand so far: Why do I have so many apneas but my saturation seems to barely drop below 90% even without treatment?

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Re: Severe mixed apnea with 35

Post by ozij » Tue Feb 14, 2023 4:53 am

Herbert wrote:
Tue Feb 14, 2023 4:29 am
nd one more thing that I did not understand so far: Why do I have so many apneas but my saturation seems to barely drop below 90% even without treatment?
https://my.clevelandclinic.org/health/d ... ygen-level
For most people, a normal pulse oximeter reading for your oxygen saturation level is between 95% and 100%. If you have a lung disease such as COPD or pneumonia, your normal oxygen saturation level may be lower. Your healthcare provider will let you know what levels are acceptable. Your oxygen saturation levels may also be lower if you live in an area with high elevation.
You said you live at sea level. Whan makes you so happy with 90%?

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