Herbert wrote: ↑Mon Jan 30, 2023 9:45 am
ozij wrote: ↑Mon Jan 30, 2023 9:43 am
Have you considered showing your breathing patterns to your doctors, and discussing it with them?
yep. they said periodic breathing itself is not "too harmful" - whatever that's supposed to mean. I should wait for 6 months and in case is still buggers me they would prescribe O2 as additional measure. Don't know what to think of that....
It means they were hoping your breathing would settle down with the help of Positive Air Pressure therapy.
And looking at the overview you uploaded, it looks like much of it has.
I understand you've got about a month left of those 6 months.
I suggest you keep a log of how you slept and how you feel during the day - maybe even "check in" with yourself and log the response a number of times a day.
See if you can do that
without looking at OSCAR.
It seems to me you're very worried - understandably so for a person your age who suddenly finds his heart misbehaving.
You really have to have a serious discussion of the whole issue with you cardiologist, make him/her understand what's worrying you, and try to get answers to all your concerns.
I hear a deep current of dissatisfaction and distrust of your doctors - I'm not saying "trust them". I'm saying: you need to find doctors you can trust.
As for your CPAP therapy: For some people, especially those with mixed or complex sleep apnea, getting used to the CPAP therapy takes time.
Your therapy overview shows positive changes, your doctors want you to give yourself half a year to get used to things, but you say:
It's not like they are from 2019 and everything could have changed meanwhile. But I tried to search for more recent ones and didn't find much"flagged" as CSR.
Don't let the "CSR" terminology used by ResMed freak you out - they use it easily, erring on the side of caution.
Don't obsess about "what was wrong then when my machine flagged CSR?"
Do try to focus on your therapy
now and on how you feel.
And, as I said, try to find a doctor who you can trust.
You may find reasons to trust members of this forum - I certainly did when I joined, and know who I trust today - but we are a bunch of strangers on the internet, some wiser and more knowledgeable than others, but none of us has the info your doctors have.
At the very beginning of this thread, Rubicon told you:
Rubicon wrote: ↑Sat Jan 28, 2023 2:08 pm
Analyzing sleep requires looking at about 12 channels of data. You got like 2. Trying to come up with a conclusion therefore requires a lot of WAGs and assumptions. Hence, what I come up with is only a guess, and it might be totally wrong.
A WAG is a Wild Assed Guess. I doubt you're the type of person who would really trust WAG's.
Do you have your sleep study results? Would you like to upload them (personal data hidden) for people to help you understand them?
Will that make you feel better?
By all means, do that if it will help. And even then, I still think it's crucial for you find a doctor you trust.
You write:
Herbert wrote: ↑Sun Jan 29, 2023 10:23 am
That's why I'm so obsessed with finding out why CPAP is working to some extent for me. To get a glimpse of what is causing my misery. Is there any obstructive component that is messing up my breathing or not... While for obstructive you nearly have no chance to get rid of it except with complex surgery for some cases, for centrals and periodic you might get rid of it, if you can find the cause and treat it. (That's just me trying to be positive somehow... you could call it the last straw).
I don't know where you got the idea that " for centrals and periodic you might get rid of it, if you can find the cause and treat it." It's quite possible that medical knowledge at this point can only offer you CPAP or ASV support or one of them with oxygen to help you sleep and be healthy.
Some people need glasses to help them see.
Some people need hearing aids to help them hear.
Some people need machines - with or without additional oxygen to ensure their breathing, when they sleep, is giving their body the needed oxygen, in the right way.
