Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Thu Jan 12, 2023 11:49 am

I’m not to cpap, resmed airsense 10, aortouch full face mask. My sleep test only showed 7 interruptions per hour but I fall asleep suddenly if I’m reading or sitting during daytime. Deviated septum severe. Been using machine and experiencing claustrophobic feelings and when ramp pressure is low it’s a bit harder. I’ve gradually gone from 30 minutes to 7 hours or so using machine but feel more tired than before adjusting to sleeping with this thing. I’ve heard it can take some 3-6 months before relief but not sure I have that endurance for it without results. I’m also on sotalol fir heart which I’m sure contributed to day sleeping but hard to isolate which causes it more my meds or the apnea.
Oh, do you all recommend using a Pulse ox device while sleeping as my sleep test showed it get as low as 90%?? And if so, which one??

User avatar
Miss Emerita
Posts: 2730
Joined: Sun Nov 04, 2018 8:07 pm

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Miss Emerita » Thu Jan 12, 2023 12:33 pm

Welcome! You've done well to get to the point where you can sleep with your mask and machine. It may take a while longer to get the full benefits, though no one can tell you whether it'll be in a week or a month or whatever.

What we *can* do is to try to help you speed the process up. Could you let us know your minimum and maximum pressures? Your ramp pressure? Are you using EPR?

You can find all that information in the clinical menu on your machine. To get access to it, press the home button and the round dial at the same time. Hold them for about four seconds and you'll see that you're in the clinical menu. Click on Settings. While you're there, scroll down to Essentials, select it, and then select the Extra option. This will let you see more information on the screen, including your AHI and its breakdown into different kinds of events. Please let us know tomorrow what your AHI and breakdown are for tonight.

An O2 level of 90% is OK, and I don't think you need an oximeter. It would be good to ask your cardiologist whether your dosage or medication can be adjusted in light of how you are functioning during the day.
Oscar software is available at https://www.sleepfiles.com/OSCAR/

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Thu Jan 12, 2023 2:58 pm

Thanks. My epr setting was off but cpap.com recommended I change to on and 3 which I did. My pressure settings are 7-12 but my beginning pressure in ramp was 4 and then 5. Cpap.com just recommended I consider setting ramp to off as I’m struggling during rampup at 5 pressure but I don’t know if that’s physical or psychological, it feels constricted to me and ironically I’m told the better pressures won’t start til I fall asleep and it’s difficult to fall asleep in the ramp pressure.
I will try to get into the other settings tomorrow.

User avatar
ChicagoGranny
Posts: 13230
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by ChicagoGranny » Thu Jan 12, 2023 3:05 pm

Findjcr wrote:
Thu Jan 12, 2023 2:58 pm
I’m struggling during rampup at 5 pressure but I don’t know if that’s physical or psychological
It's not unusual to have a feeling of suffocation at pressures under 7.0.

As you proceed to get your CPAP therapy optimized, please stick to this one thread so those helping you can see the history.

Also, if you complete your equipment profile, it will show on your posts.

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Fri Jan 13, 2023 11:12 am

Ok, so I called cpap.com and got help understanding a bit more about essentials and my usage time last night was highest yet at 7.9 hours but my one night ahi was 11.6. Go figure, my sleep test showed a 7 ahi so this is worse, but because you encouraged me to increase my pressure from 5 to 7 I was much more relaxed last night and got rid of the ramp.
So my question is with using it for almost 8 hours, zero leaks recorded, and best night yet sleeping on cpap, how long does it take to see my ahi improve?
Or am I too expectant? I mean why pay $1000 for this and endure it if your stats get worse? And I am m still as normally fatigued today so no improvement there.

User avatar
Miss Emerita
Posts: 2730
Joined: Sun Nov 04, 2018 8:07 pm

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Miss Emerita » Fri Jan 13, 2023 11:33 am

I'm glad you're more comfortable. Can you tell us the breakdown of your AHI?
Oscar software is available at https://www.sleepfiles.com/OSCAR/

User avatar
chunkyfrog
Posts: 33224
Joined: Mon Jul 12, 2010 5:10 pm
Location: in a nice, moist, Nebraska bog

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by chunkyfrog » Fri Jan 13, 2023 12:10 pm

Re: getting used to full face mask: I can only use one in a pinch,
but have only been comfortable with nasal pillows--for almost 14 years.
Some of us never get used to full face masks.
Is correction of the deviated septum feasible?
I would consider it in your situation.
It would open up your mask options.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: second Airsense 10 Autoset for Her --sticking with a good thing.

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Fri Jan 13, 2023 2:38 pm

I’m 72 and the ENT doc said my septum was so bad his normal 1 1/2 hour operation would take 5 hours to fix right, doesn’t sound great to me to endure all that anesthesia at my age AND run the risk it still doesn’t help the apnea. I’m discovering from my sleep study that my other (non AHI) indexes were worse then the ahi, like my RDI and RERA.

Janknitz
Posts: 8181
Joined: Sat Mar 20, 2010 1:05 pm
Location: Northern California

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Janknitz » Fri Jan 13, 2023 4:32 pm

I'm glad you turned ramp off. It's meant to be a comfort measure, but after a few nights most people tend to feel like they are suffocating at very low pressures.

If you can possibly use Oscar to download data, it will help us see why your AHI is high. But if you find tech challenging, give it a week or so and see if that AHI rights itself--it may.

The claustrophobia is common and it may be more from the sleep apnea than the mask, but the mask intensifies it at first. Every time you struggle to breathe because of a hypopnea or apnea, your body gets a shot of stress hormones to make you breathe, and that feeds the anxiety and claustrophobia. Once you are sleeping with a good AHI, you may find your claustrophobia and anxiety about CPAP diminishes. In my case, my claustrophobia in other situations (bridges and tunnels!) improved as well.

As to "how long?" We can't say. Everyone is different. For those of us with severe apnea, it was very noticeable as soon as I could sleep all night with a low AHI (but THAT took me a LONG time to get there). I have observed the difference is less noticeable in people with more mild - moderate apnea.

As for fatigue, once I got my CPAP dialed in, I CRAVED sleep, so it took a while until I didn't want to go to bed as soon as possible. I don't believe in "sleep debt" but it just felt so good to sleep once I had my OSA treated.
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Sat Jan 14, 2023 7:42 am

Thanks for all the help.

Not sure what Oscar is but I have no modem but only the card the Dr can read. I’m not sure what additional details I can get on ahi etc off machine but open to learning. Actually I’m beginning to wonder if these indexes will go down because my nasal situation contributes to post nasal drip and I often clear my throat even during the day. And I suspect that alone would register as an “interruption?? I do take a prescription antihistamine every night from the ENT and I do regular nasal saline rinses.

Last night had the remove mask after 5 hours because of a gurgling sound and realize it has to do w humidity which I have set at 7. Probably will clean everything today and have watched videos on that but open to suggestions. I have regular not humidity tubing btw.

I’m sticking w full face mask for now but curious about the nasal pillow thing….will the pressure work w a horrible nasal anatomy?? Be great to not endure the ffm but I’m sure the pillows have there own issues…when I wear my ffm at least at first before I fall asleep I’m able to breathe through my nose and I’m sure I open mouth thereafter but amazes me I can do that.

User avatar
Miss Emerita
Posts: 2730
Joined: Sun Nov 04, 2018 8:07 pm

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Miss Emerita » Sat Jan 14, 2023 12:08 pm

I'm still curious about the breakdown for your AHI. Have you tried this yet:

You can find all that information in the clinical menu on your machine. To get access to it, press the home button and the round dial at the same time. Hold them for about four seconds and you'll see that you're in the clinical menu. Click on Settings. While you're there, scroll down to Essentials, select it, and then select the Extra option. This will let you see more information on the screen, including your AHI and its breakdown into different kinds of events. Please let us know tomorrow what your AHI and breakdown are for tonight.

Oscar is software that you would run on a laptop or desktop. It's input would be data from the SD card in your machine. Some people (like me) need a little SD card reader to plug into their computer; other people have a ready-made slot in the computer. Does this sound do-able for you?

If you breathe through your nose most of the time during the day, you might well be able to use a nasal pillow mask at night. Do you think you might give it a try?
Oscar software is available at https://www.sleepfiles.com/OSCAR/

User avatar
Miss Emerita
Posts: 2730
Joined: Sun Nov 04, 2018 8:07 pm

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Miss Emerita » Sat Jan 14, 2023 12:11 pm

Oh, I also meant to mention that an interruption caused by throat-clearing would not register as an apnea event unless you stopped breathing for 10 seconds or more.
Oscar software is available at https://www.sleepfiles.com/OSCAR/

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Sun Jan 15, 2023 7:15 am

Been doing this two weeks and making progress w time on cpap but last night was the worst. I only made it 54 minutes and had 41.1 ahi, my total for cpap usage now is ahi: 11.2, total ai: 10.6 and central ai is 10.3.
I had sleep study with no central and average interruptions were 7.
My starting, non ramp pressure of 7, which had been working fine, seemed insufficient last night no matter if I breathe through nose or open mouth in my ffm? Caused me to again have very claustrophobic feelings ….. think I was a bit stuffy last night nasally so????
Thoughts on why the huge negative shift?? No leaks btw

Findjcr
Posts: 18
Joined: Thu Jan 12, 2023 11:35 am

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Findjcr » Sun Jan 15, 2023 10:25 am

I was awake the entire time last night for 54 minutes and some reading indicated that can be recorded as central? Don’t know but I couldn’t get comfortable at all so maybe that whole time was central??

User avatar
Miss Emerita
Posts: 2730
Joined: Sun Nov 04, 2018 8:07 pm

Re: Newbie on how long it takes to get rid fatigue and claustrophobic feeling from full face mask

Post by Miss Emerita » Sun Jan 15, 2023 11:43 am

Many thanks for the AHI breakdown information. The machine can't tell whether you're awake or asleep, so if you pause your breathing for 10 seconds or more, you'll get a CA flag even if you're awake at the time. This unfortunately means that the AHI information is less helpful than I had hoped it would be, since what we really want are data from periods of time when you're mostly asleep.

I think it's time to ask whether you have a laptop or desktop computer. If you do, it'd be great if you could download the Oscar software, which will display a lot of information from the SD card in your machine. If there's no SD card reader built into your computer, get a plug-in card reader. By posting Oscar charts, you will give people here a better shot at giving you good advice.

I'm reluctant to recommend that you raise your minimum pressure without knowing more about what's going on. But one question: have you turned off the ramp option? That will ensure that you get a starting pressure at your current minimum of 7, instead of some other ramp minimum that may be one of your current settings.
Oscar software is available at https://www.sleepfiles.com/OSCAR/