Data analysis

T818 · Post by **T818** » Fri Nov 18, 2022 4:21 am

I was suggested to use CPAP 4 years back. I used it for 1 year but didnt feel any better. So I quit.

Recently I have started using it again ( had 2 sleep tests done recently). Though AHI is showing less than 5 after using the machine, but I am still feeling sleepy and tired.
Also My sleeping hours are very high 12/15/18 hrs and still find very difficult to wake up. I have attached all 3 reports of sleep test & 1 OSCAR report.
I tried to modify pressure, EPAP etc settings to see if anything feels better. Best result I have got so far as shown in the attached OSCAR report.

Dr recently suggested to try BiPAP but I cannot afford it at the moment as I have to buy it on my own.

Additional notes: I am very thin built. 5'9", 64Kg,

Miss Emerita · Post by **Miss Emerita** » Fri Nov 18, 2022 11:39 am

Welcome! Your moderate, mainly obstructive, sleep apnea is being well-treated via CPAP, I'd say, if the chart you posted is for a typical night. It sounds to me as though you are experiencing hypersomnia, which is a neurological disorder. Have you been seen by a neurologist?

There is a lot of good information here:

https://www.hypersomniafoundation.org/

As you'll see by following links, a neurologist would want to review any medications you're taking now and might want to perform a day-time sleep test, to see how readily you fall asleep during the day. There are several kinds of medications that might help you feel better.

I really hope you can get help with this. It sounds very difficult to cope with.

palerider · Post by **palerider** » Fri Nov 18, 2022 6:29 pm

The OPs Apneas and Hypopneas are being well treated, but their flow limitations are not.

They've got an autoset, they should let the machine see what it can do, and adjust the min pressure based on the results.

Miss Emerita · Post by **Miss Emerita** » Fri Nov 18, 2022 9:19 pm

To follow up on PR’s observation, as your very first step you might want to raise your pressure by 1 and you EPR by 1. EPR can sometimes help with flow limitations.

If those changes sit well with you, you could try raising your pressure by another 1 and your EPR to 3, which is the highest it will go.

Feel free to post another chart so we can see how things are going as you make changes.

But above all, I hope you can get some good help with the hypersomnia.

T818 · Post by **T818** » Sun Nov 20, 2022 3:41 am

Hi Miss Emerita, Palerider
Thanks a lot for your suggestions. I will make the adjustments.
Will follow up on hypersomnia as well but it will be very difficult to find good support for that as I live in a 3rd world country(Bangladesh) and these kind of expertise are not that much available here. I had to suffer 4/5 yrs just to get this OSA diagnosed bouncing from doctor to doctor.

Miss Emerita · Post by **Miss Emerita** » Sun Nov 20, 2022 1:29 pm

I'm so sorry it would be difficult for you to see a neurologist who could evaluate the hypersomnia and suggest some treatments for you. Please keep us posted on how the adjustments to your machine go.

Rubicon · Post by **Rubicon** » Sun Nov 20, 2022 2:04 pm

On that one study you have a SOREM (Sleep Onset REM Period) at 17.5 minutes. IIWM I'd be at least taking a look at narcolepsy.

Rubicon · Post by **Rubicon** » Sun Nov 20, 2022 2:59 pm

Also tell me about the "sleep attacks" and "weakness".

Rubicon · Post by **Rubicon** » Sun Nov 20, 2022 3:03 pm

T818 wrote: ↑
Fri Nov 18, 2022 4:21 am
Dr recently suggested to try BiPAP but I cannot afford it at the moment as I have to buy it on my own.

That's OK we ain't doing that.

T818 · Post by **T818** » Fri Dec 16, 2022 11:40 am

Hi Rubicon, Miss Emerita,
I am posting my update after a month of regular usage & some trials.

At this point CA seems high. OA & HA are more or less ok.
I tried changing EPR 3 , 2, 1 but still its high. Also tried going up & down by 1cm pressure.
Flow limit goes up if I reduce EPR & CA seems to go up if I increase EPR.

I do feel lot better now but sometimes dizzy, foggy, little bit uncoordinated/lack of concentration. And also feel a must-have nap in the afternoon some days.

@Rubicon, some Sleep attacks were severe that I couldnt control myself but to fall sleep some are like i had tp struggle severely to be awake. To explain weakness, my legs, whole body felt heavy that to step out for a glass of water was difficult on a regular basis. But if I went out for a walk I could walk for an hour. I do feel lot better after a month of APAP usage these days.

I am posting another update with my experience using my new n30i mask in the next post. please have a look at that as well.

T818 · Post by **T818** » Fri Dec 16, 2022 11:55 am

Last 2 night I used nasal mask for the 1st time. Its n30i. I like it wearing so much.

But seeing massive increase in CA with same pressure settings and severe bloating that kept waking up continuously. With the same settings (Min 7, Max 10) I dont feel bloated if wear full face mask. On first night I set the mask type as Nasal & on 2nd night I set it to Pillow. Also set max to 9 to see if bloating reduced and it did.

I am wearing SCC & mouth tape with the dreamwear full face & n30i. I want to continue using n30i as I find it much more comfortable. But cant really figure out the optimum setting.

Need your help badly, please.

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