Re: Pod153’s Big Mild OSA/UARS Adventure
Posted: Tue Dec 06, 2022 10:19 pm
Update - I’ve been trying a full face mask, the Dreamwear one. My nose still blocks up completely after an hour of use. I guess with the full face mask I’m still receiving pressure through my mouth when that happens but I also feel like it’s leaking a ton, I seem to have to basically clamp the thing to my face super tight to prevent it, and seem to need to clench my jaw to maintain a seal, which is very uncomfortable.
For some reason the MyAir app has also recorded 25 events per hour while I’ve been awake with it on, which given my baseline was 5.4 I suspect is - bluntly - garbage. However my heart rate has gone back to bouncing around all over the place during use so I think it actually isn’t controlling events as well as the pillows mask was.
None of this matters really. Aside from the one acceptable night I described in this thread I have slept for around an hour a night since receiving the machine and am now also increasingly unable to breathe nasally during the day. I have never experienced insomnia like this. I’m not panicking or feeling anxious about it, my body simply won’t stay asleep while wearing it. After an hour my nose blocks and I wake up and that’s that.
The lack of sleep is destroying my life. I can’t work and have had to abandon a freelance contract and go on hiatus from a volunteer role I loved. I am starting to have minor hallucinations, just shapes moving in my field of vision. My nose is extremely inflamed now and steroid spray doesn’t seem to control it so I’m also in pain all the time, and I can’t really smell or taste so I don’t want to eat. I can write still but I can barely string words together in conversation. I feel too ill to exercise. I have started to have very very bad thoughts and feel like I’m going to kill myself if I don’t get some sleep soon.
I have an appointment with a sleep dentist today to get a mandibular advancement device made. It may well be possible for me to eventually get results with CPAP but I am still averaging one hour of sleep a night after almost a week with no sign of improvement and in the meantime life doesn’t stop. I work, I study, I have responsibilities, and this feels like it’s doing more damage to my health and my life than an AHI of 5.4 ever could. Persisting is beginning to feel like it would be a form of self-harm.
My real issue was always arousals - and my arousals are vastly, vastly worse now. I essentially can’t sleep at all. I can’t do this any more and am going to try a MAD instead.
For some reason the MyAir app has also recorded 25 events per hour while I’ve been awake with it on, which given my baseline was 5.4 I suspect is - bluntly - garbage. However my heart rate has gone back to bouncing around all over the place during use so I think it actually isn’t controlling events as well as the pillows mask was.
None of this matters really. Aside from the one acceptable night I described in this thread I have slept for around an hour a night since receiving the machine and am now also increasingly unable to breathe nasally during the day. I have never experienced insomnia like this. I’m not panicking or feeling anxious about it, my body simply won’t stay asleep while wearing it. After an hour my nose blocks and I wake up and that’s that.
The lack of sleep is destroying my life. I can’t work and have had to abandon a freelance contract and go on hiatus from a volunteer role I loved. I am starting to have minor hallucinations, just shapes moving in my field of vision. My nose is extremely inflamed now and steroid spray doesn’t seem to control it so I’m also in pain all the time, and I can’t really smell or taste so I don’t want to eat. I can write still but I can barely string words together in conversation. I feel too ill to exercise. I have started to have very very bad thoughts and feel like I’m going to kill myself if I don’t get some sleep soon.
I have an appointment with a sleep dentist today to get a mandibular advancement device made. It may well be possible for me to eventually get results with CPAP but I am still averaging one hour of sleep a night after almost a week with no sign of improvement and in the meantime life doesn’t stop. I work, I study, I have responsibilities, and this feels like it’s doing more damage to my health and my life than an AHI of 5.4 ever could. Persisting is beginning to feel like it would be a form of self-harm.
My real issue was always arousals - and my arousals are vastly, vastly worse now. I essentially can’t sleep at all. I can’t do this any more and am going to try a MAD instead.