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Re: Does Anyone Hate their CPAP?
Posted: Sat Oct 29, 2022 11:05 am
by lynninnj
Rubicon wrote: ↑Sat Oct 29, 2022 9:33 am
lynninnj wrote: ↑Sat Oct 29, 2022 8:39 am
Some good mixed in with some bad advice ...
Definitely.
Reactivating the alert sig. People should be aware that there is
lynninnj wrote: ↑Sat Oct 29, 2022 8:39 am
Some good mixed in with some bad advice ...
I put people on filter but I do not feel the need to encourage others to do so with any sort of targeted harassment. Its a pity really because we all have posted some marginally informative posts here and should not be attacked for it. I find zonkers posts very amusing for example even though they don't always go right to problem solving mode (some are extremely helpful btw.)
That said, it's a pity because I respect what Rubicon has to say and don't have any idea what he is going on about. I did however go back and edit my message because my comment was not for the original poster but rather subsequent poster and that may not be clear.
To anyone who wishes to filter my posts out of your stream=FEEL FREE. And to those on my list, I wont be shouting it to the world like the mean girls of high school.
Take care all and have a splendid day.
Re: Does Anyone Hate their CPAP?
Posted: Sat Oct 29, 2022 1:07 pm
by chunkyfrog
You might benefit from a total face mask (fitlife, from respironics);
--if it is still made.
Otherwise, a cloth mask (Sleepweaver Advance), from Circadiance, might work.
Insist on a different mask, that will work for your poor, damaged nose.
It can be considered a medical necessity.
Ask your doctor to create the necessary documents.
Re: Does Anyone Hate their CPAP?
Posted: Sat Oct 29, 2022 10:36 pm
by latskogkatt
There is also one oral-only mask, Fisher & Paykel's Oracle, which may be a good one to try in your case.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 3:47 pm
by Janknitz
I HATED my CPAP at first. Every night would find me throwing the mask at the wall. Wanting to break the mask, break the machine, kill me. I worked two jobs, attended class at night, had two young kids at that point, and I couldn't sleep with the damn thing.
But my husband couldn't sleep with me any more. He made light of it, bought fuzzy footy pajamas and froze sleeping on the couch. And I knew I was going to die, because I stopped breathing more than 80 times an hour. I'd watched my mom, whose snores could raise the roof off the house, die a slow and agonizing death with dementia. Failure at CPAP was not an option.
So I strapped it on every time I got in bed. If I woke up and threw it across the room, I'd pick it up, strap it back on. Lie awake seething with anger and frustration. Every night, every time. I went through 9 masks. NINE. I fought it all, and I fought not to fail. I made simple goals. To sleep 2 hours with the mask on. To sleep 3 hours with the mask on. Like climbing Mt. Everest. Made it 2 hours 2 nights in a row, then didn't sleep for a whole night. 2 steps forward, 3 steps back. Keep going. For my husband, for my children, for my brain, for me. Hate, hate, hate. Strap it on ANYWAY. EVERY NIGHT, EVERY TIME.
And then . . .
I woke up in the morning. The sun was shining, birds were chirping, I slept all night. Instead of angry and ready to kill someone or something, I woke up feeling peaceful, and calm, like I'd just had the best, most relaxing drug in the world. Last time I woke up feeling that way I remember very distinctly. I still slept in a crib then.
One good night . . .
A few bad ones. But I want a good night like that again. I could get addicted to those.
Another good night, then another. I just tried to count the good nights. Now more good nights than bad nights. And finally, I barely remember when I last had a "bad night". I won.
Now the really bad nights happen if I can't use my machine for some reason--I wake up gasping for air. That's what a real bad night looks like--dying a little death that I got too used to before CPAP. No more. My husband sleeps beside me, my kids are adults and some day we will get the youngest on to her own two feet. I lived to see this, even though I hated that machine. I put that mask on every night. Every time.
It's OK to hate it. It's not OK to give up.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 3:53 pm
by lynninnj
Janknitz said:
It's OK to hate it. It's not OK to give up.
Amazing story and thanks for sharing.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 4:06 pm
by loggerhead12
ykf7b0 wrote: ↑Fri Oct 28, 2022 10:22 pm
Tonight is my 15th night trying to sleep with the cpap and I have not slept at all with it on. The longest I've withstood it on my face is almost 3 hours and it has cost me so much sleep I now feel awful. If anyone hate's their machine as much as I do and feels the cpap is counterproductive to their health I would love to read about it.
My sister-in-law has a colostomy bag.
My dad has to turn a valve in his groin to urinate.
One of my employees carries extra clothes and underwear and gets IV infusions every four weeks because of his inflamed bowel disease.
All I have to do is put on a mask when I go to bed and get the best damn sleep of my life. Last night I got 10.5 hours.
I love my CPAP.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 4:09 pm
by lazarus
Love the PAP; hate the OSA.
Both a statement and a recommendation.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 5:17 pm
by ykf7b0
lazarus wrote: ↑Sun Oct 30, 2022 4:09 pm
Love the PAP; hate the OSA.
Both a statement and a recommendation.
What is the OSA?
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 5:22 pm
by loggerhead12
ykf7b0 wrote: ↑Sun Oct 30, 2022 5:17 pm
What is the OSA?
Obstructive Sleep Apnea is why most people use CPAP machines.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 6:28 pm
by ykf7b0
loggerhead12 wrote: ↑Sun Oct 30, 2022 5:22 pm
ykf7b0 wrote: ↑Sun Oct 30, 2022 5:17 pm
What is the OSA?
Obstructive Sleep Apnea is why most people use CPAP machines.
Ok. I'm new. Congrats on your love for your cpap and maybe I can get there someday.
Re: Does Anyone Hate their CPAP?
Posted: Sun Oct 30, 2022 6:44 pm
by ykf7b0
Janknitz wrote: ↑Sun Oct 30, 2022 3:47 pm
I HATED my CPAP at first. Every night would find me throwing the mask at the wall. Wanting to break the mask, break the machine, kill me. I worked two jobs, attended class at night, had two young kids at that point, and I couldn't sleep with the damn thing.
But my husband couldn't sleep with me any more. He made light of it, bought fuzzy footy pajamas and froze sleeping on the couch. And I knew I was going to die, because I stopped breathing more than 80 times an hour. I'd watched my mom, whose snores could raise the roof off the house, die a slow and agonizing death with dementia. Failure at CPAP was not an option.
So I strapped it on every time I got in bed. If I woke up and threw it across the room, I'd pick it up, strap it back on. Lie awake seething with anger and frustration. Every night, every time. I went through 9 masks. NINE. I fought it all, and I fought not to fail. I made simple goals. To sleep 2 hours with the mask on. To sleep 3 hours with the mask on. Like climbing Mt. Everest. Made it 2 hours 2 nights in a row, then didn't sleep for a whole night. 2 steps forward, 3 steps back. Keep going. For my husband, for my children, for my brain, for me. Hate, hate, hate. Strap it on ANYWAY. EVERY NIGHT, EVERY TIME.
And then . . .
I woke up in the morning. The sun was shining, birds were chirping, I slept all night. Instead of angry and ready to kill someone or something, I woke up feeling peaceful, and calm, like I'd just had the best, most relaxing drug in the world. Last time I woke up feeling that way I remember very distinctly. I still slept in a crib then.
One good night . . .
A few bad ones. But I want a good night like that again. I could get addicted to those.
Another good night, then another. I just tried to count the good nights. Now more good nights than bad nights. And finally, I barely remember when I last had a "bad night". I won.
Thank You for that honest and beautiful post!
Now the really bad nights happen if I can't use my machine for some reason--I wake up gasping for air. That's what a real bad night looks like--dying a little death that I got too used to before CPAP. No more. My husband sleeps beside me, my kids are adults and some day we will get the youngest on to her own two feet. I lived to see this, even though I hated that machine. I put that mask on every night. Every time.
It's OK to hate it. It's not OK to give up.
Thank You for that painfully honest and beautiful post!!!
Re: Does Anyone Hate their CPAP?
Posted: Mon Oct 31, 2022 2:41 pm
by Oughtsix
I love my CPAP but despised it when I first started using it 20 years ago! It takes time for your body to adjust to a different way if breathing while sleeping.
I recall using the CPAP during the day while awake for short periods of time help with the acclimation.
Everyone is different though. Same people take to CPAP pretty easily and others take more time and effort.
Re: Does Anyone Hate their CPAP?
Posted: Mon Oct 31, 2022 6:58 pm
by Fed1
I've been on CPAP about 12 years. I originally thought I could just get a mouth appliance but the Doc said that probably wouldn't work for me. I experimented with a number of masks before finding one I liked. It took a little while but eventually I settled in. Recently we went camping and discovered the campground didn't have electricity so we couldn't use our CPAPS. Couldn't sleep all night. We take our CPAPS everywhere we go. I don't seem complete without it.
Re: Does Anyone Hate their CPAP?
Posted: Tue Nov 01, 2022 10:27 am
by KittyMom22
Fed1 wrote: ↑Mon Oct 31, 2022 6:58 pm
I've been on CPAP about 12 years. I originally thought I could just get a mouth appliance but the Doc said that probably wouldn't work for me. I experimented with a number of masks before finding one I liked. It took a little while but eventually I settled in. Recently we went camping and discovered the campground didn't have electricity so we couldn't use our CPAPS. Couldn't sleep all night. We take our CPAPS everywhere we go. I don't seem complete without it.
This is a bit of a concern for me, as I've read that long-term use weakens the throat muscles and makes you dependent on the machine.
Re: Does Anyone Hate their CPAP?
Posted: Tue Nov 01, 2022 10:45 am
by lazarus
KittyMom22 wrote: ↑Tue Nov 01, 2022 10:27 am
read that long-term use weakens the throat muscles
Not true.
Be careful what you read.