Treating UARs need guidance!

Hi- this might be some sort of long post but I want to give you guys background on what I am doing.

I’m male 21 weighing 170 so it’s definitely a genetic issue. From the age of 17 I have gotten increasingly tired with IBS getting worse until when I was 19 I couldn’t take it anymore and thought I needed to see a doctor. From there I undertook a sleep study where doctors found nothing saying they couldn’t help me.

I thought they were being ignorant so I did some sled research and got my dentist to get me an oral device due to my smaller than usual mouth. I was still really tired but my IBS problems went away which was huge.

It was from here I first suspected I had uars as I had none of the indications of having normal osa and the another sleep study this past October confirmed I don’t have regular osa.

This past February I got an ent to do an endoscopy who said I probably have uars and gave me basically a prescription for any machine I want (he wasn’t able to help me further as it’s not his specialty and I think he on gave me the prescription because he felt bad). This coming Monday I am flying to Houston to undergo a uars sleep study with a dr Gerald Simmons who I have heard is the foremost expert on this.

When it comes to self treating I had been using a asv bipap (philips respironics) which helped a lot until it broke at which time I switched to a dream station bipap, which I don’t think helps that much but it could just be my settings. I am currently at work but when I get home I’ll post the data from Oscar regarding these machines.

I am going to be honest this disease is incredibly hard to live with I am always tired and I really could you some guidance.

Many thanks!

Might be nice if you kept your questions to one thread and answered the questions you were asked in the other thread.

viewtopic.php?t=182021

Since it sounds like you are having a sleep study done next week specifically looking for confirmation of UARS which I assume means you will be doing an in lab sleep study with the Pes device.....might as well wait and see what they find or don't find.

Zolty123 wrote: ↑

Mon Aug 08, 2022 7:02 am

I’m male 21 weighing 170 so it’s definitely a genetic issue.

It could also be epigenetics. But doesn't matter for now. At the moment, you need a proper diagnosis and an effective treatment.

Please stick to one thread going forward. This allows forum members to easily see your history.