Re: How to determine Good Sleep?
Posted: Sun Sep 25, 2022 2:34 pm
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You think the OSA takes a break from closing down your airway tissues just because "you are on the couch without the machine" ??Billymadison420 wrote: ↑Mon Oct 03, 2022 3:41 pmAny consensus on quick naps on the couch without CPAP?
I guess a 30 min nap on the couch doesn’t seem overly harmful if I lived the last 15 years of OSA without any/many health consequences.Pugsy wrote:You think the OSA takes a break from closing down your airway tissues just because "you are on the couch without the machine" ??Billymadison420 wrote: ↑Mon Oct 03, 2022 3:41 pmAny consensus on quick naps on the couch without CPAP?
You think you get a mulligan for short nap on the couch and the OSA will give you a pass??
The general consensus is.....if you are asleep or going to maybe go to sleep.....you wear the mask and use the machine. No exceptions.
Go ahead and rationalize it (or try to) but the general consensus....if asleep then the OSA needs to be treated.Billymadison420 wrote: ↑Mon Oct 03, 2022 3:59 pmI guess a 30 min nap on the couch doesn’t seem overly harmful if I lived the last 15 years of OSA without any/many health co
Pugsy wrote:Go ahead and rationalize it (or try to) but the general consensus....if asleep then the OSA needs to be treated.Billymadison420 wrote: ↑Mon Oct 03, 2022 3:59 pmI guess a 30 min nap on the couch doesn’t seem overly harmful if I lived the last 15 years of OSA without any/many health co
Now you didn't ask me if I always adhered to that rule.
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Answer to1: If your machine writes the data to the SD card, OSCAR will read the data from the SD card. If you turn the machine on with the mask on your nose even briefly (for a couple of minutes) there should be data written to the card for OSCAR to read.Billymadison420 wrote: ↑Wed Oct 12, 2022 12:41 pm2 questions
1. what is the minimum time for OSCAR to write data?
2. This goes back to a thread i saw. How to tell the difference between CA's that precedes sleep, and CA's that are awake breathing where you take a deep breath and hold or just forget to breathe?
robysue1 wrote: ↑Wed Oct 12, 2022 1:24 pmAnswer to1: If your machine writes the data to the SD card, OSCAR will read the data from the SD card. If you turn the machine on with the mask on your nose even briefly (for a couple of minutes) there should be data written to the card for OSCAR to read.Billymadison420 wrote: ↑Wed Oct 12, 2022 12:41 pm2 questions
1. what is the minimum time for OSCAR to write data?
2. This goes back to a thread i saw. How to tell the difference between CA's that precedes sleep, and CA's that are awake breathing where you take a deep breath and hold or just forget to breathe?
Answer to 2: Without the EEG data and the "effort" data recorded by the belts during a sleep test, no-one can definitively answer whether a particular CA is sleep transition, part of awake breathing, or a real CA that would be scored on a sleep test. However, if you spend a lot of time looking at data, you start to understand certain patterns that are commonly associated with times that sleep transition are likely, what wake breathing typically looks like, and what your sleep breathing typically looks like.
The main thing is this: Sleep breathing is much, much more regular than wake breathing. And sleep breathing is usually more shallow than sleep breathing.
What did you expect, an HB (Holding Breath) Flag?Billymadison420 wrote: ↑Wed Oct 12, 2022 1:42 pmI held my breath on purpose a few times. I got multiple CA's and OA flags. So clearly it's not perfect
I could have sworn that Resmed and Oscar had such a flagDog Slobber wrote: ↑Wed Oct 12, 2022 2:42 pmWhat did you expect, an HB (Holding Breath) Flag?Billymadison420 wrote: ↑Wed Oct 12, 2022 1:42 pmI held my breath on purpose a few times. I got multiple CA's and OA flags. So clearly it's not perfect
Holding one's breath is not a CA, nor an OA, but the process you use to hold your breath may have characteristics of both. Judging the quality of the algorithm, by doing something the machine is not designed to test for, is silly.
Yep, you proved that the Resmed assumes that you are asleep whenever you are breathing with the machine on and that it will flag anything it detects something that meets its designers definition of OA, CA, and H.Billymadison420 wrote: ↑Wed Oct 12, 2022 3:07 pmI could have sworn that Resmed and Oscar had such a flagDog Slobber wrote: ↑Wed Oct 12, 2022 2:42 pmWhat did you expect, an HB (Holding Breath) Flag?Billymadison420 wrote: ↑Wed Oct 12, 2022 1:42 pmI held my breath on purpose a few times. I got multiple CA's and OA flags. So clearly it's not perfect
Holding one's breath is not a CA, nor an OA, but the process you use to hold your breath may have characteristics of both. Judging the quality of the algorithm, by doing something the machine is not designed to test for, is silly.![]()
I think your little experiment has actually been quite useful in getting you to accept the very real possibility that the pulmonologist's intuition about the narcolepsy was not based on any actual data and could very well be wrong. Whereas the sleep doc's telling you that the results of the MSLT indicate that you do not have narcolepsy is based on some data that actually has some connections to your day-to-day life.But in all seriousness. It's me being obsessive. I want to feel better and have more energy. My OSA is totally treated. My MSLT says I don't have a neurological sleep disorder (as well as my Board Certified Sleep Specialist), and the Specialist has debunked everything that the first person I saw (a pulmonologist and not a sleep specialist) said about me having N/IH. So me being an obsessive weirdo has been trying to do an at home MSLT to check my sleep latencies with my crackpot theory that maybe my sleep latencies would be lower at home, than in a lab. Although I am not sure what that would prove either LOL. Because my sleep latency wouldn't go from 16m in a lab, to 8 at home. The margin of error accounts for that.
But even if we do that, with my unscientific test, my sleep latencies with naps at home (with me looking at OSCAR data and seeing the sleep-wake breathing vs. asleep), you get sleep latencies of (and I am doing what they do in the lab and calling anything over 20, 20) of:
14 20 20 14 11 20 20 14 17 13 7 20 (minutes)
That's an average of 15.87, which was a 16 on my official MSLT. And that's not naps on the same day. So I would imagine it would be even higher spaced out as 4-5 naps in a single day.
Lots and lots of things can cause daytime fatigue and daytime exhaustion. Depression and anxiety are two big possibilities in your case since you've said that you suffer from them. Some medications can trigger fatigue. I think what you want to do is accept that the fatigue and exhaustion may be triggered by something other than a sleep problem.I don't know what I think I am looking for. Maybe everyone else just feels as tired as I do, or at least similar to what I feel. I know I am tired and not sleepy. I admit, despite the fact the N/IH issue has been debunked, that I am still making myself wrong for feeling tired and that is a learned behavior from being told that I have N/IH. So I hyper-monitor my tiredness and make myself wrong for feeling that. I am trying to do CBT/Mindfuless to unwire this reaction. Before I was ever told about N/IH (which I don't have) I didn't make myself wrong for being tired.
I agree with your assessment! I am going to do one more meeting with a separate sleep specialist to be the tiebreaker in reading all the data. That way I can put the particular narcolepsy issued to bed. And start focusing on other causes.robysue1 wrote: ↑Wed Oct 12, 2022 10:19 pmYep, you proved that the Resmed assumes that you are asleep whenever you are breathing with the machine on and that it will flag anything it detects something that meets its designers definition of OA, CA, and H.Billymadison420 wrote: ↑Wed Oct 12, 2022 3:07 pmI could have sworn that Resmed and Oscar had such a flagDog Slobber wrote: ↑Wed Oct 12, 2022 2:42 pmWhat did you expect, an HB (Holding Breath) Flag?Billymadison420 wrote: ↑Wed Oct 12, 2022 1:42 pmI held my breath on purpose a few times. I got multiple CA's and OA flags. So clearly it's not perfect
Holding one's breath is not a CA, nor an OA, but the process you use to hold your breath may have characteristics of both. Judging the quality of the algorithm, by doing something the machine is not designed to test for, is silly.![]()
But more importantly, you also now have a 30 minute period of wake breathing to look at. If you compare this 30 minute session's flow rate curve to that of a period of sleep breathing from decent night, you should see that this 30 minute chunk of wake breathing is far less regular and also contains breaths that are far bigger than your normal sleep breathing. If you take the time to study the shapes and sizes of the breaths along with their variety, you'll be better able to start distinguishing between periods where you might be awake or where you might be drifting in and out of a light sleep (i.e. SWJ, which is an unofficial shorthand for "sleep-wake-junk" breathing).
The fact that the machine can and does mistake some wake breathing patterns as OAs, CAs, or Hs is why we tend to try to tease out whether a person might have been lying in bed awake if there are a lot of events scored right at the start or end of the data where it's reasonable to assume a person might be lying in bed with the mask on while not being asleep.
I think your little experiment has actually been quite useful in getting you to accept the very real possibility that the pulmonologist's intuition about the narcolepsy was not based on any actual data and could very well be wrong. Whereas the sleep doc's telling you that the results of the MSLT indicate that you do not have narcolepsy is based on some data that actually has some connections to your day-to-day life.But in all seriousness. It's me being obsessive. I want to feel better and have more energy. My OSA is totally treated. My MSLT says I don't have a neurological sleep disorder (as well as my Board Certified Sleep Specialist), and the Specialist has debunked everything that the first person I saw (a pulmonologist and not a sleep specialist) said about me having N/IH. So me being an obsessive weirdo has been trying to do an at home MSLT to check my sleep latencies with my crackpot theory that maybe my sleep latencies would be lower at home, than in a lab. Although I am not sure what that would prove either LOL. Because my sleep latency wouldn't go from 16m in a lab, to 8 at home. The margin of error accounts for that.
But even if we do that, with my unscientific test, my sleep latencies with naps at home (with me looking at OSCAR data and seeing the sleep-wake breathing vs. asleep), you get sleep latencies of (and I am doing what they do in the lab and calling anything over 20, 20) of:
14 20 20 14 11 20 20 14 17 13 7 20 (minutes)
That's an average of 15.87, which was a 16 on my official MSLT. And that's not naps on the same day. So I would imagine it would be even higher spaced out as 4-5 naps in a single day.
Lots and lots of things can cause daytime fatigue and daytime exhaustion. Depression and anxiety are two big possibilities in your case since you've said that you suffer from them. Some medications can trigger fatigue. I think what you want to do is accept that the fatigue and exhaustion may be triggered by something other than a sleep problem.I don't know what I think I am looking for. Maybe everyone else just feels as tired as I do, or at least similar to what I feel. I know I am tired and not sleepy. I admit, despite the fact the N/IH issue has been debunked, that I am still making myself wrong for feeling tired and that is a learned behavior from being told that I have N/IH. So I hyper-monitor my tiredness and make myself wrong for feeling that. I am trying to do CBT/Mindfuless to unwire this reaction. Before I was ever told about N/IH (which I don't have) I didn't make myself wrong for being tired.